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POTS anyone?

Started by deeindiana, April 12, 2024, 07:25:29 PM

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deeindiana

I was watching tic tok videos and one came on about POTS. I was shocked because the symptoms were so familiar. It sounded just like the issues i deal with. Then when I googled it, I found that SjS and POTS often go together. That was news to me!
So, does anyone here have POTS?
I'm going to bring it up at my next appt this summer.
Diagnosed June 2010.
Rheumy at University of Michigan Med Center. Age 63
Difficulty swallowing, fibromyalgia, burning mouth, GERD, anxiety, dry, dry, dry!
Medications: Atenolol, Plaquenil, Zoloft
I am my own worst enemy...

Kathy57

Deeindiana,

I don't have POTS but a co worker of mine developed it as an autoimmune issue, and had it so bad that she had to go on disability. 

I do get dizzy sometimes on standing but it's not a serious issue with me.  I know other people here have had serious problems with it. 

Hopefully someone more knowledgeable than I can shed some light for you on this.

Kathy
66 yr old female - Diagnosed Sjogrens Aug. 1st 2014.  Plaqinil, Evoxac, Prevacid, Lexapro, Hypothyroid, Esophagel Reflux, Gastritis, Barretts Esophagus, failed sinus surgery with 3 nasal septal perforations, Chronic Bronchitis, Asthma, albuterol, Breztri,  Osteoporosis,