Tough day.

[Sweetgirl]

Hi,
Just need to vent a bit.

I've been in a flare since Dec 09.  I though a little while back that I was starting to come out of it, but NO.  I am so very tired of dealing with this pain!!  Today I feel like someone threw me into a trash compactor.  Everything hurts.

My husband and my son have been trying to hug me, or if I am sitting they lean over me and I want to yell "Leave me alone!!!)  This is not like me.    I usually welcome the love and affection, but I am completely consumed by this pain, I could cry as I type this.  I am overwhelmed today, and feel sad and angry that there is no end to this pain.  I see the Rheumy tomorrow, but I fear he will not give me any pain med, and refer to a neuro doc.  Which means I will be in pain til I can get into see the neuro.  I know a lot of you have been in constant pain too, I am sorry about that.  I really feel like life is only going to get worse for me.

My husband and son try to understand, but don't.  How could they unless they dealt with this amount of constant pain for 6 months or longer.  I do not wish this on anyone.

Sorry,  Just needed to talk to some people that "get it".

Kristine

[Carolina]

ARGGGGHHHH

It is just so hard, Sweetgirl.

Send gentle hug thoughts and kisses your way.

You need tons of TLC.

Kisses

Carolina

[Cricket]

I feel so bad for you sweetgirl.  I know nothing I say can help you, oh! Did you ever try the Epsom salt soak?  At least it would give you some relief while in the tub.
I can not even think how I would go through life if I did not have any pain meds, life would be unbearable.

Will pray you get some pain meds., if you have to cry and throw a fit.  it is terrible to say that we have to behave like a bi**h to get results, but sometimes we do.

Keep us posted
Cricket

[syng4hym]

It is very difficult.  No doubt.  But,  you have to come to a place of acceptance.  This doesn't mean you won't fight against it, but it means is you accept that this may be what your life is like.  You have to find things to ease the pain. Some do water aerobics, some like to walk gently, some do massages,  but it's gotta be something that works for you.  

I'm in daily pain.  As I type I can't find one area that doesn't hurt.  I still work full-time, I still try to garden...  but, only do what you can.  

We're here for you to vent or ask questions.  

If you're going to your Rheumy tomorrow, ask him for Tramadol.  It's something he can prescribe for you that isn't narcotic.  Also, ask for a Prednisone taper.  This may help you more than a pain med.  Are you on any anti-inflammatories?  Definitely get one of those.  

Hope this helps.

[lighthouse33]

I am sorry you're having a tough day.

I've been snapping and yelling at everybody all day.  Doesn't help that I've had a headache since Sunday.  Just took my temperature and it is 99.5.  Think I may have a sinus infection.  Plus all the stress.  Have had work to do and nobody is letting me get any downtime for relaxation.  Couldn't even watch tv last night because of the headache.  I swear some day they'll all put me in the hospital.

Hope you get to feeling better.

[FF Jo]

Unfortunately none for us can help you.  We can offer you word of encouragement and offer up tips that work for.  That is why we are here.  I was having a very hard week last week and felt like I was going to go crazy.  For years I have been able to work through must of my pain,  I would try to "walk it off".  Well now fatigue has gotten the bet of me, which in my mind make the pain worse.  It is a vicious cycle.  Then you start getting depressed and the mad, etc, etc, etc.  But there is always a light at the end of the tunnel.  Hang in there.     Jo



When you get to your wit's end, you'll see that God lives there.

[Sweetgirl]

Thank you for the replies.

I wasn't so much looking for help or suggestions.  Just needed to vent with those that go through the same things as I.

I tried Tramadol, 3 hours later extreme nausea, increased pain, migraine and vomited all night.  Obviously I had an allergic reaction.  Vicodin cuts the pain back, but the fatigue and stabbing joint pains are still there, helps to cut the burning down a bit.  Tried numerous antidepressants years ago and they all made me feel worse and if and when I did sleep awful terrifying vivid dreams.  I tried a few other pain meds and nothing helped or they made me feel worse.

I have been dealing with this pain and fatigue for over 10 years and have worked through raising two boys, while being a single parent with no support and working full time, (divorced when my sons were 8 months old and 6 years old) then remarried four and a half years later, and thankfully my wonderful new husband understood that I could no longer hold a job.  I would be in a flare for 4 months at a time just about every year.   And when not in a flare, still had fatigue, burning and sleep issues, just not as severe.

I know what it is to push myself above and beyond the pain.  I am not a whiner.  I force myself to go for walks, clean the house and try to be as active as possable.  I really do my best to work through it and put a smile on.  I am always pleasant to those around me.  I figure, just because I feel like I am dying on the inside does not mean that I need to ruin someone else's day. 

It's just that this flare is unrelenting and I do feel like I could loose it.  But, then who would care for my family, my beloved pugs?  Who would take care of the house, the bills, the taxes, the business paperwork, my son and his health issues??  Just me, that's who.  That's what has kept me here on earth.

I know no one here has all the answers or the cure.  I just am extremely frustrated with my body being my greatest enemy.

 

[Dolly Dimples]

  No no Sweet Girl,  we know you are not a whiner! please don't ever think that anyone here would ever suggest that.

          We all get frustrated with the different issues we have,  none more so than I !

           Many, many of us write posts such as yours every week on here, and we do understand the need to express it sometimes.

           I am so sorry you have such pain, and hope that your Rheumy can give you something to help, that won't react on you.
            Your husband and family will be hurting that you are hurting and the only thing they can give you is comfort,

                 let them see your tears, and think how they would be if it was them and not you in this way.
                    Let them feel your misery , they should know exactly how you feel if you show them.

                     I try to hide a lot from my kinfolk, but if I was ever so bad as you seem to be right now , I'd be screaming at them,
                                        Prayers and hugs , Dolly x                                                 
           

[Blue Kat]

Sorry you're having a bad day, Sweet Girl! 

I'm having one as well with the nerve pain.  I almost left work early because of it but toughed it out until the end of the day.  Normally I only have to work a half day on Fridays but because we had a holiday on Monday, I have to work a full day tomorrow and the way I'm feeling now, I'm dreading it and wondering if I'll be able to!

Here's hoping we all feel better soon! 

[Rhonda]

Sorry you are having a bad day.  Hope you feel better soon.  We ALL understand and we all need to vent now and then.  Hugs to you.

[Sweetgirl]

Thanks Everyone.

I am going to take my generic Ambien early tonight and hope for a better tomorrow.

Hugs to all.

Kristine

[Patze]

Hi Kristine,

Oh my, I'm another one that understands chronic pain.  I walked around with an awful limp for several months (a little less than a year or so) before I finally got physical therapy (the first time I ever had a TENS machine used on me, and oh my, it was wonderful.  One of these days I gotta buy one of those darn machines! ).  It took off enough of an edge so I could work past it; it's now to the point that I don't even think about it much anymore.

Also sending you ( ( ( ( ( H U G S ) ) ) ) ) my friend, and I hope you find something to help you soon.

Take care of yourself -

Patze

[jstroble]

Kristine

I am thinking of you and hoping that tomorrow is a less painful day.  I have had days like that when it just seems the pain feeds on itself and nothing makes it better.  I am sorry I do not have any answers. 

Hugs and healing thoughts

Joyce

[proudmom]

Hi just wanted to say I know how you feel I hope your doctor appt brings you relief of some kind. Hugs to you and try and relax. I know how you feel and have cried in the doc office before. Good luck and hugs, Proudmom

[harlin]

Hi
My GP just put me on Flexiril {spelling?} It has really helped with the shoulder/neck pain. I still get some but it is 80% better. Hip not so good. I feel like I am on the verge of a flare also.
I went to the beach for 4 days and how much better I felt. Now I feel like I am going into something. probably a flare.
Gental hugs to you my friend, harlin