News:

Just a reminder: if you haven't signed in for six months or more, please do so if you wish to remain active...no need to post, just sign in so we know you're still interested.

Main Menu

Pain Diary - do you keep one? Site suggestion I am trying!

Started by paperdoll, July 18, 2009, 01:28:23 AM

Previous topic - Next topic

paperdoll

Hi there,

I am trying this free site called
relief in site dot com
no spaces

it is a fast way to log all my meds, gripes grumbles and achievements
so I can track the good and the bad and the ugly days....

i can print for doctors or share with anyone via email (email isn't HIPAA)
it creates a cool graph and has a body map.

I googled the creator and it seems very cool and helpful.

Physicians and hospitals have options that they'd pay for - but frankly i didn't read that much into it.

It takes me about 5 minutes to fill out a day.
It will help me keep track of what works
what flares me
what is new
old
ongoing
fleeting!

I di hope this helps ya out too - it may make you more aware of your pain (don't have to just have for pain)
so perhaps try not to do it before bed!
I ebven set reminders so if I forget it notifies me!

ReliefInSite . com
Take care out there!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
P.

Joe S.

I did for a while and found that I got worse because I was focused on the pain.
bkn C4 & C5, herniation's 7 n, 5 t, 4 l, Nerve Damage
Lisinopril, Amlodipine, Pantoprazole, Metformin, Furosemide, Glimepiride,
Centrum Silver, Cinnamon, Magnesium, Flaxseed, Inositol, D3, ALA, ALC, Aleve, cistanche
Reiki, reflexology, meditation, electro-herbalism

Scottietottie

Hi  :)

I don't keep a specific pain diary - but I do keep a symptom diary. Pain sometimes comes into it. I don't make an entry everyday. I have symptoms that wax and wane - come and go. I also no longer have any notions of time scales, nor do I rush to a doctor as soon as a new symptom appears. I wait and see if it will go away again first. (Obviously not anything life threatening)

When I eventually see a doctor they will say "and how long has that been going on for?" (Without the diary - I would probably say "Oh - a couple of months) With the diary I find it's more likely to be "Well I first mentioned it a couple of years ago - but its got worse."

I told a neurologist last year that neuropathy had been bothering me for about 9 months. He wanted more precision. I hadn't a clue. When I got home and checked it turned out it had actually been for over 5 years. (See what I mean about timescales? - or maybe its just cognitive disfunction)

I'd advise anyone with a long term condition to keep a symptom diary. It really helps keep track of appointments, doctors, meds and everything.

Take care - Scottie  :)
http://sjogrensworld.org/   (our home page)
http://www.sjogrensworld.org/chats.htm   (find our chat times here!)
https://kiwiirc.com/client/irc.dal.net  (way to chat + nickname and #Sjogrensworld)


Never do tomorrow what you can put off till the day after tomorrow!