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Started by Helen, August 14, 2009, 04:54:43 AM

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ANannato11

Hi Everyone,
I'm not new, just returning.  :) And I find encouragement everytime I read the forum.  I can certainly identify with the swollen glands under and all around the ears.  It is very painful.  I do massage the glands and sugar free lemon drops are helpful if you can stand them. ???
I even swell around my mouth.  And I have a burning tongue especially if I eat spicy foods or anything with tomatoes. 
My latest problem is with my right eye.  There is a problem with the nerve behind the eye.  So I am getting a new rhuematologist because my previous one didn't understand me.  I'm not making anything up.  I have a wonderful eye Dr.  I guess we all have to find a good team of Dr.s to treat all that comes along with sjogrens.
I'm so glad to be back and I want to say Hi to all my old friends and Welcome to all of you who are new.
Jan :)

Linda196

Welcome to Sjogren's World, Voiceteacher. I've never been able to sing ( I was the one hiding in the back row of the choir when sister said "just move your lips, dear"), but I love music and I do admire your dedication to continue teaching even if you are unable to perform. I hope you find some helpful hints about treating the tongue sores. I've had some success with Oral Balance gel for moisturizing, and good old Baby Oragel to numb the areas.

Welcome back, Jan. It will be nice to have you active here, as well as in chat.
Please check out our home page at http://www.sjogrensworld.org/index.html {{INCLUDES A LINK TO AMAZON SHOPPING!!}}
; and live chat at https:https://sjogrensworld.org/index.php?board=30.0

lynnmarie219

Welcome to Sjogrens World Voiceteacher!

I have used some of the Biotene products and have found them helpful...along with my sips of water or whatever liquid that seem to help at the moment.

I also take  salagen (generic is Pilocarpine) to help produce more moisture in my mouth....many of us here benefit from either this or Evoxac which is the other med prescribed for dry mouth. Were you prescribed anything from your doc?   

Welcome back Jan....good to see you posting again!