Glad to find you.

[Soozel]

Hi Patze,
Thanks for the encouragement. 
I have requested thyroid exam from 5 physicians they run T3, T4 and Tsh? Then tell me it is fine.  Both my brothers have Graves Disease.  Duh! 

My pain is in swallowing, and esophagial spasms.  They have botoxed the esophagus and that has helped considerably.
After 2 mons on Plaquenil. my stomach aches again as it did before all the GI stuff and the daily diahrea and cramping with nausea are back.  Sure cant get back to work with this going on.   
But The best is no debilitating esoph spasms.  They would last 8 to 10 hours of the worst pain. 
You guys are so supportive,
I have been so depressed since most docs are very limited in their SjS knowledge.  My Rheumy even says that SjS does not effect hormones? what is Thyroxine?  He also says it does not cause esoph spasms, and Plaguenil will not cause diahrea.  He is the only Rheumy that even considered trying to treat this so I am staying with him... but I am also taking in the case studies re: esoph spasms. 
My family is wonderful and supportive, (I should say my kids)  but tend to blame a great deal of this on my depression.... Yes I am depressed.... High High High Ins rates, living off my rapidly decreasing retirement before retirement age and feeling generally yucky.....
You all seem to understand all this and I greatly appreciate you and am Grateful for you.
Thanks, Soozel

[lynnmarie219]

It is so good to know that I am not alone.  Everytime it comes on I think, I can't tell anyone about this, they will think I am crazy.  Now I am not crazy alone...

Isn't great to be crazy but in good company?

[Soozel]

Yea! Lynnmarie.   I am a therapist... MH in fact and Crazy is not a bad place to be with good company.
3 days of talking to you and others here and I see the light at the end of the tunnel.... And it is not a train!
Soozel
One good thing.... if it werent for the nausea I would stil be trying to get off that extra 30lbs... gone now 
HAHAHAHA

[Patze]

Hi Soozel,

You'll find a lot of us have a bit of unusual humor - survival humor I call it; anything to get you through it.

Whew, that a hard way to loss those 30 pounds!  I sure hope that you feel better soon!

Take care -

Patze