Lesson learned

[DragonflyC]

I'm in the same boat as DK!  I want to do EVERYTHING (which, I am fully aware, is how I developed each and every one of my delightful autoimmune conditions), and my husband is the one to tell me to slow down. 

A friend invited us to his show in NYC on Friday, and I said, "Let's take the train down for the afternoon, hit a museum, grab dinner, and see the show."  He reminded me that, with plans to go to the theater on Thursday night and spending Saturday and Sunday at an event out of town, I should really take a day off in the middle.  It disappoints me that I can't do everything, but he's right--even when it's fun stuff, not stressful, it can be too much for me. 

[kathyl]

I think the swine flu is still out there.  Or maybe you got a secondary infection after the first cold.  Take it easy and get better. I'm glad you are seeing a doctor Friday.  A cold or flu can really set you back.  If someone sneezes around me I panic and get out the hand wipes.  I think my biggest fear is getting a virus.   A couple of years ago I caught something and developed pleuritis.  It caused permanent damage in my right lung.  We have to be careful to pace ourselves and rest  and take this seriously.  I hope you feel better.  I may get a hand wipe for the computer after this.
KathyL

[Bucky]

KathyL,

<<I may get a hand wipe for the computer after this.>>

Cute!  Cough, cough, achoo . . . yes, I think you better!!  My hubby still has a cold he "caught" last week.  I kept asking him "please cover your mouth when you sneeze, I don't want your germs!".  I am constantly washing my hands.  Well, guess what . . . . thank you hubby, I now have his crummy cold!!  GRRRRRR  My throat really hurts today - heading to the store for some popsicles.   

What I really want to do today . . . crawl back into bed!!

Stay well everyone!!

Bucky

[Crabcakes]

I am sorry for you Missy. I'm not yet on Plaquenil, as I still have a month to wait for my first rheumy appointment. (I'm on the cancellation list, as if...).

I understand infections such as colds, flu and bronchitis will really set us back. Before I was diagnosed, the pain came and went, but when I got a bout of bronchitis and pneumomnia, the pain came in like gangbusters, and I thanked God for the cough syrup with codeine, as it helped. When my bronchitis got worse, I went to the ER (we were actually out of town when this happened), the doc there gave me steroids. BA DA BING! ALL my pain went away. I felt like I was 16 again. The pain stayed away for about 2 weeks, then POW, it was back.

I was in light to moderate pain till 4 days ago, when severe pain hit, and hit hard. Rib cage pain, back pain, and what I beleive to be peripheral neuropathy all over my legs and hips. I have cried at night too. I felt so optimistic that this would not get me down, but these days it is.

I am taking some of my husband's pain meds because I can't take the pain... it is very painful to me now. The OTC ibuprofen, Naprosyn, etc. are not even touching this pain. After the pain meds kick in, I can do a little like some laundry and dishes. Even my skin hurts on my back and I don't want to lean back in the chair or feel clothes on it. Waaahhhhh. I am such a baby.

[Kimi]

Missy,

I came in from the rummage sale my DD is having here to sing the blues to you all of how icky I am feeling and here you already started the song! Ugh, I have been way over doing as well as live has been going in over drive for us with health and my dad's cancer. It has been over a month of over doing and low and behold, I woke up today feeling like I had been hit with several 2 by 4s. ugh.

I am not taking anything yet as my Dr started me out on Lyrica and I had a strange reaction to it. I have an appointment in a couple of weeks and when I talked to my Dr we left it as if I am doing OK we'll wait till i see her. Other wise call with any problems. If i do call, it has never take more than 2 hours before some one gets back to me.

My right wrist is just killing me and my right side of my face is hurting pretty badly too. My neck is killing me as well, of and the IBS is flaring bad too. Life is so much fun with SJS! 

But I am thankful as this too shall pass. But till it does it sucks! LOL Strange thing is my puggirl dog who also has an AI disease is flaring too! Is it the season, weather or what???

Well I am off still  singing the blues of pain while sitting at the rummage sale some more. I'll say a little prayer for ya and one for me to place it all in God's hands. Plus I am going to take a pain pill! 

Lovingly, Kimi

[missy1306]

Crabcakes you are not a baby!!! Pain is not fun! Sometimes I think we can be too hard on ourselves for feeling bad!! Sometimes we just have be OK with the fact that we having unhappy moments in our disease. I am so sorry for your pain. Please try to take it easy and take care of yourself.

Kimi, yes this too shall pass, but it is hard isn't it??? I will for sure say a prayer for you and thank you for praying for me. Take care Kimi,

Love, Missy