How do you describe "our type of fatigue" ?

[Bucky]

Hi ozgood & jordozmom,

Welcome to Sjogren's World.  Feel free to read thru all the posts here on the forum, ask questions, make comments, etc. 

Isn't it nice to find others who are experiencing some of the same symptoms and can offer suggestions, advice?    We learn from each other. 

If you wouldn't mind, stop by our Welcome Members forum and introduce yourselves.  Welcome to the family of soggies.

Bucky

[Linda196]

Hi Ozgood and Jordoszmom, welcome from me, too.

This fatigue thing is just the worst for me, and a lot of it is because of the unpredictability and unexpectedness of the "attacks" (more like blown fuses in my case). I remember (fondly) working myself into a state of exhaustion, but it actually felt pretty good, because it built up, and I earned it! Now, I can coast along, feeling pretty good, and all of a sudden I'm at klick 45 of a 50 K run, and I'm not going to finish!

Jesse, I get the shakes at times as well, but it always seems to be in larger muscles, like thigh and upper arm, and doesn't necessarily corespond to overall fatigue. I think of it as muscle fatigue, and it's as if the affected limb(s) suddenly weigh 10 times what they should, and I've been carrying them around for hours. I did wonder about a lactic acid imbalance (possible low Lactate Threshold), but haven't actually asked for testing, because to tell you the truth, the shakes don't bother me as much as the generalized "blown fuse" fatigue.

[Jesse88]

Thanks Linda,

I agree, the shakes are really more annoying than anything else, thank goodness.  This is just me in my never-ending quest to understand and label everything that's going on.

[lynnmarie219]

Hi Ozgood and Jordozmom!

Welcome to Sjogrens World...I hope you both find the information here helpful and the friendship and support here comforting! Read all you can and ask any questions if you can't find the answers that you are looking for!



Jesse,

I get the shaky feelings at time too...I haven't related it to my fatigue, but I don't really have an answer as to what I do relate it to.... . Just wanted to let you know that you are not alone in this feeling!

[SusanL]

I'm not on ANY medications as of yet, since my Dr. thinks I'm healthy. (I don't feel as healthy as he thinks I am)  But I get get very shaky too.  I was talking to my husband last night and he said are you shaking your hand on purpose? When I'm sitting down, I notice slight tremors.  Yes, I get fatigued.  Sometimes as I'm walking in the house after work, I say to myself "I hate feeling like this".  It's a different kind of tired.  Sometimes it just pours over me like a bucket of water, but if I lie down for a few minutes it will ease up.  I agree w/some of the others that a sense of humor is good.  Laughing is my best medicine, I feel very relaxed after a good laugh.  Thanks everyone, I can relate to many of you and feel I would be understood as well.
SusanL

[Chickpea]

Hi everyone and welcome to newbies!

Maybe we should start a new thread entitled: 'our type of shakes'?!

I get the deep inner shakes that Jesse mentioned, and also the tremors that Susan's husband has noticed she gets.  I think they're probably related to the central nervous system issues that I've got, and that quite a lot of us Sjoggies get.  But they definitely get worse when I'm tired.  Prednisolone has helped with the big leg wobbles, but my right leg still enjoys going awol every so often.

Hand tremors, shaky fingers, twitchy legs, tight and locked toes?  Sound familiar to anyone?  Let's have fun with this one too ...

Take care - Chickpea

[Jesse88]

Hand tremors....yes, on occasion and twitchy legs at night....restless leg syndrome, but for some reason, either the Plaquenil or the Imuran helps with that.  There are many things worse than restless legs.  I understand that's also pretty common among us.

[Babs659]

I do not get tremors, but like Jesse I have restless legs.  Now that you mention it, they have quieted down quite a bit since being on prednisolone (and Plaquenil)...

[Jesse88]

Just re-read my post and I meant to say there AREN'T many things worse than restless legs.  Only people who have it can understand what I mean.  Absolutely maddening.  Plaquenil seems to be the common denominator here so far, in helping with restless legs, and that makes sense.  I've read that quinine can help that problem and Plaquenil has quinine in it.  Whatever, I'm just so grateful it works. 

[lynnmarie219]

I had my marathon day in Chicago yesterday....2 hours drive for rheumy and neuro visits then labs and a few other things to take care for insurance and parking etc. Then home for 2 hours ++ in RUSH HOUR!  I also had a few errands to run before and after I left town for my appts.


Geeeeeeez, was I tired and I'm sure that I would have had a good word or two to describe the fatigue...but I was too tired to remember what they were! 

[Bucky]

Awww Lynnmarie . . you must have been one tired puppy after all that!!  I don't envy the Chicago traffic one bit!!   

Are you keeping track of mileage for your doctor appointments?  You can count them on your taxes!!

Hope you had some good reviews or whatever you want to call them at the rheumy & neuro visits yesterday.  How often do you see these doctors?

Try and relax tonight . . . put your feet up and have a glass of tea.   

Take care,
Bucky

[lynnmarie219]

Hey Bucky...not a lot of answers yet, but we ran a bunch of labs to try to figure out some of my issues so I will know soon hopefully if anything shows up in them.

I used to see the rheumy and neuro every 3 to 4 months but now I have graduated to every 6 months! Wooooo hoooo!

Will let you know if I find out anything helpful from my test results!

[clarestella]

I feel as if I'm trying to swim through molasses and the shore is a long, long distance away.

[super _star*]

i usually feel like my whole body is being weighed down and i have a low energy supply that can run out from anything, even walking up stairs.

[Linda196]

Hello Super Star, welcome to Sjogren's World. That low energy supply, and no reserve, is a huge problem for a lot of us, most of the time I think it's my biggest complaint...then something hurts and I rethink it 

If you'd like to introduce yourself a bit more, please feel free to start a new topic in the Welcome Member/Social Hour board, and tell us a bit more about yourself.