How do you describe "our type of fatigue" ?

[Bucky]

Louise,

How scary if you fall asleep for 1-2 seconds while driving!!     What seems like a few seconds could be longer than that.  Please be careful driving when you are extremely fatigued - perhaps if you pulled over and took a 15-minute nap or something - it might help you.  How long of a commute do you have to work?  Maybe after work you could take a quick nap in your car before you start driving home??

I was a passenger once in the backseat of a car with a driver who dozed off - luckily, I was watching him and hollered at him.  I never, never, never sleep in a car when it's in motion.  That one time scared the living daylights out of me.

Bucky

[Pisces24]

Thankfully, I get the fatigue only seldom. But when I do, I have a kind of premonition that I am going to hit a brick wall. Call it ESP if you want but I definitely get the feeling that I better get some extra rest or I will "run out of gas". Sleeping in more on the weekends takes care of it for me when this happens which I am very thankful is fairly rare.

[amberjolie1]

I'm also a hit-the-wall person.  I'm tired all the time, and don't wake up refreshed, but there are definitely one or two times in the day that WHAM!  I just get sooooo tired.  And it's not so much a physical tired as it is a mental tired.  I work full time, so I continue working, but I become more like a zombie, and I work on auto-pilot.  I don't quite take in what other people are telling me.

And I've gotten to the point where I have to tell the kids when I'm at that stage, because I get VERY quick tempered when I'm like that - I can't handle anything they do. 

[louise]

Bucky,    I only had one occasion where I dosed off for a second while driving .It was very scary and I have not driven again that tired.

[beebs]

I'm also a hit-the-wall person.  I'm tired all the time, and don't wake up refreshed, but there are definitely one or two times in the day that WHAM!  I just get sooooo tired.  And it's not so much a physical tired as it is a mental tired.  I work full time, so I continue working, but I become more like a zombie, and I work on auto-pilot.  I don't quite take in what other people are telling me.

And I've gotten to the point where I have to tell the kids when I'm at that stage, because I get VERY quick tempered when I'm like that - I can't handle anything they do. 

I haven't been diagnosed yet (altho my Rheumatolgists thinks it's likely) but I just had to reply...Me too!! I get so zoned out that I can have a whole conversation with someone and I'll be like "yep" "uh uh" - answering questions and then as soon as its finished I have no idea what we were just talking about! Scary.

[Beta]

This is right thread for me, my fatigue is on its worst by now, and it is even miracle I am writing this now!

Last week I spent laying on my sofa in front of TV feeling completely exhausted, I could not walk, sit up, eat(lost 5 pounds in one week), most of the day and night I was just laying down and slept.

I also have some kind of pressure in my head, my brain feels so heavy and makes me very sleepy. My whole body feels very weak, I noticed trembling in my legs and on the top of that neuropathy does what usually does.

And I must say, I am so proud of you ladies, who manage to have job, family and kids with this disease. I have very caring husband, but I feel so guilty for being so ill all the time. I am not socialising as much I used to, we booked short holiday in May and I am already in fear that I won?t be able to go.

I wish you all best!

[meow]

Hi all,

I started this topic on the old board format and I thought it would be fun to start it again since it got such a huge reaction by everyone!

So...how do you explain the type of fatigue that so many of us feel?


I describe it as, "You know when you first wake up, and you are staggering around looking for coffee? It's like that, only all day long."

Or, "You know that dream you have where you have to run but your legs are stuck in quicksand? Like that, only all day long."

[Sheltiemom]

The above descriptions already so perfectly describe this type of fatigue that I hesitate to add mine.

All I can say is that it's as if cement was running through me, and sometimes my eyelids feel as if they're going to close on the spot - but then it passes.

Yesterday, I sailed through the day pretty well, doing all the housework.  Who knows what each day will bring ....

[bloodless]

YAWN!!! I'm so watching the clock at work. I can't wait to get outta here and into my jammies!

[Katybarstool]

Bloodless

I feel for you. It's 10 pm here in the UK, and I'm well and truly in my jammies.

Hugs
Kathyx

[lynnmarie219]

Ohhhh myyyyyy...I've not been feeling well....been in a flare....and been without my provigil....so I am again experiencing this awful fatigue that we can not adequately describe to anyone who hasn't really ever experienced it.....the kind that makes you want to just lay down where ever you are at and fall into a deep deep sleep!


I KNOW you all understand!

[Bernice]

I have been feeling pretty good for past weeks, THEN, it hit me I sat down just for a few minutes after coming from work and went into a comma! The worst part about it is I am not supposed to close my eyes no more than 30 mins. with these lens in and I slept ALL night. got up and my eyes felt the worst!

[Shashi11962]

I've always described it as the type of fatigue you would feel if you had just run a 20K race, uphill, through chest-deep mud. Or that my arms and legs feel like they're encased in cement and weigh 200 lbs. each. Or that my battery has totally been drained and just moving is like trying to push a car around by myself.

[Shashi11962]

Oh, I wanted to add that even though I have had very little fatigue since I started taking the supplements in my signature, I must be having a flare because for the past few days, I can barely move! (I'm also have a lot of numbness in my left foot, balance problems, and my memory problems have gotten much worse.) I hate to think what I'd feel like without ALA and ALC!

I wanted to add too that my fatigue is not sleepiness. In fact, I seem to fight going to sleep (as you can probably tell because it's almost 2 a.m. and I'm still up, which is usual for me.) My fatigue just feels like my muscles do not want to cooperate with me.  It's like the connection between my brain and my muscles aren't getting through. Horrible!

[lynnmarie219]

Sometimes my fatigue is sleepy kind of fatigue and sometimes it is exactly as you describe Shashi.....muscle and body fatigue...it varies...sometimes just laying down without falling asleep helps...but in my case I usually end up into a good long nap!