I'M BACK AGAIN

[Teralilly]

 

HOPE ALL ARE DOING WELL THIS SUNDAY MORNING.

I HAVEN'T POSTED HERE FOR 2 OR 3 YEARS. WAY BACK THEN I DIDN'T THINK I WAS IS SUCH BAD SHAPE. WHAT A DIFFERENCE A FEW YEARS MAKES. IT SEEMS AS TIME GOES BY I HAVE ANOTHER ILLNESS TO ADD TO MY LIST.
AND OF COURSE ANOTHER MEDICATION. I'M ON 12 MEDS NOW, SOME ARE VITAMINS THOUGH. SOMETIMES I THINK I GET FULL FROM ALL I TAKE.
I HAVE SJ SYNDROME, NEUROPATHY, FIBRO, SEVER COPD (LOL I HAD TO GO TO MY NOTES TO SEE WHAT ELSE I HAVE) ARTHRITIS IN RIGHT HAND AND WRIST AND DEPRESSION. I JUST STARTED ON LYRICA AND I HAD SOME BAD SIDE EFFECTS TO START. I'M ON 50MG. TWICE A DAY BUT WILL UP THAT DOSE TO 75 MG. TWICE A DAY TOMORROW.
I AM VERY LAZY IN MY LIFE NOW. I COULD JUST LAY IN BED ALL DAY AND NIGHT AND WATCH TV. IT TAKES A LOT OF EFFORT FOR ME TO JUST GO DOWNSTAIRS AND CLEAN MY KITCHEN MOST DAYS. EVERY ONCE IN A WHILE I TACKLE A BIG PROJECT AND WHAT USE TO TAKE ME THAT DAY TO COMPLETE, NOW TAKES 3 DAYS.
THE COPD CAUSES ME TO BE OUT OF BREATH REAL EASY NOW. I DO FIGHT BACK AND WALK A MILE ABOUT 3 OR 4 TIMES A WEEK, INHALER AT HAND. SEEMS I ALWAYS NEED SOMETHING FROM THE STORE OR REFILL ANOTHER MED. I WALK UP TO WALGREEN'S IN TOWN WHICH IS A MILE TO AND FROM. (UP HILL TOO) I'M NOT IN THE GREATEST SHAPE WHEN I GET HOME, BUT I KEEP DRAGGING MYSELF TO WALK.
I'M GOING TO POP IN AND OUT DAILY FROM NOW ON. JUST COMING BACK THIS LAST FEW WEEKS I'VE LEARNED A LITTLE BIT MORE ABOUT MY PROBLEMS.
MAY PEACE BE WITH YOU ALL,
                                         TER
PS/I TYPE IN CAPITALS BECAUSE IT'S EASIER FOR ME TO READ. I'M NOT YELLING!

[jonnell]

HI AND WELCOME BACK MY NAME IS JONNELL AND MY 4 YEAR OLD JENNA WAS DIGNOSED WITH SJS POSITIVE BLOOD WORK ANA AND SSA AND SSB.  IM SORRY YOU ARE HAVING IT SO ROUGH RIGHT NOW, THIS DISEASE SEEMS TO GET WORSE OVER TIME.  IM PRETTY NEW TO THE FORUM I JOINED IN MARCH BUT I DONT KNOW WHAT I WOULD DO WITHOUT IT.  THE PEOPLE HERE ARE WONDERFUL AND IVE LEARNED SO MUCH.  WISH YOU WELL   HUGS AND KISSESS JONNELL AND JENNA

[Patze]

HI TERALILLY AND WELCOME BACK!

I'M SORRY TO SEE THAT YOU'R NOT FEELING WELL, AND GLAD TO SEE THAT YOU'RE STILL "MOVING AND GROVIN'" AS I USED TO SAY WAY BACK WHEN (I KNOW, A LONG, LONG TIME AGO! ).  ONE DAY AT A TIME IS MY MOTTO, AND SOMETIMES ONE HOUR AT A TIME IS ALL I CAN MANAGE.

PLEASE COME OFTEN AS THERE ARE TONS OF REALLY OUTSTANDING MEMBERS THAT WILL LIKE TO GET TO KNOW YOU BETTER.

TAKE CARE OF YOURSELF AND I HOPE THAT YOU FEEL BETTER SOON.


PATZE

[Crabcakes]

Lily, Sorry you have so many problems! I'd love to know how the Lyrica does for you! What a shame when we have multile problems.

A little tip I use to enlarge text on the screen is to press the Control key,   ctrl and the Plus sign key. It enlarges screen text. To get it back to normal, ppress the Control key and the minus sign.

[lynnmarie219]

WB TERALILLY!

I'M SORRY TO HEAR HOW DIFFICULT IT HAS BEEN FOR YOU LATELY AND I HOPE YOU ARE ABLE TO GET SOME ANSWERS AND RELIEF IN THE VERY NEAR FUTURE! 

AND CRABCAKES...THANKS FOR THAT REMINDER ON ADJUSTING THE TEXT SIZE...I HAD FORGOTTEN ABOUT THAT AND I DEFINITELY NEED IT FROM TIME TO TIME!

[Poochie]

WELCOME BACK TER, IT'S GOOD TO HEAR FROM YOU AGAIN.

SHEESH! YOU KEEP IT UP WITH THOSE DX'S AND YOU'LL CATCH UP WITH ME.  LOL  WITH MY VITAMINS AND MEDS I'M UP TO 19 PILLS A DAY.  SOMETIMES I THINK THAT'S ALL THAT I NEED TO SATISFY MY HUNGER.  OF COURSE, THERE'S ALWAYS THE WATER OR FLAVORED WATER. 

TAKE CARE AND AGAIN WELCOME HOME, 

HUGS, POOH

[TerriJ]

Hi Tera,

I'm pretty new to SJS and fibro, but I have a couple of other AI's.  What you are dealing with sure makes daily living a challenge.  The COPD must make things difficult for you for sure.  I'm glad you decided to come back and post.  Maybe it will lighten your load in some way.

Terri

Thanks Patze for the note on enlarging text.

[Teralilly]

POOCHIE, LYNNMARIE, CRABCAKES, PATZE, JONNELL AND JENNA,
                                         THANK YOU ALL FOR THE WELCOME!
I THINK I WAS IN ONE OF THOSE DOWN MOODS YESTERDAY WHEN I POSTED. I'M REALLY HAPPY I CAN HANDLE MOST OF MY PROBLEMS AND STILL STILL TRY TO HAVE A SOME WHAT NORMAL LIFE. I GUESS I SHOULD BE THANKFUL THAT I CAN DO THE THINGS I WANT TO STILL.
HERE'S A STRANGE QUESTION FOR YOU ALL? WHERE I LIVE THERE IS A GROUP OF HOMEOWNER'S THAT ALL HAVE AUTO IMMUNE DISORDERS OF ONE KIND OR ANOTHER. SEEING I OWN A TOWNHOUSE, WE ARE ALL PRETTY CLOSE TO EACH OTHER. IT PUZZLES US THAT ALL OF US HAVE THESE PROBLEMS. ALSO MY DAUGHTER HAS HAD AUTO IMMUNE TROUBLE TOO FOR ABOUT 6 YEARS NOW TOO. THERE'S A PRETTY BIG CLUMP OF PEOPLE RIGHT HERE GOING THROUGH MANY PROBLEMS. I HAVE OFTEN WONDERED ABOUT THIS. PRETTY STRANGE WE ALL MOVED IN HERE HEALTHY ABOUT THE SAME TIME. SEEMS WE ALL SIT OUT AND TALK ABOUT OUR HEALTH NOW. I STILL THINK IT'S STRANGE THAT THIS CLUMP OF US ALL SHARE MANY ILLNESSES.
I'M LEAVING TOMORROW MORNING TO GO VISIT MY DEAR FRIEND IN SOUTHERN, IL. FOR A WEEK OR SO. I LIVE AT THE VERY TOP OF IL. AND SHE LIVES AT THE BOTTOM NOW. I'M GRATEFUL THAT I CAN STILL TRAVEL DOWN THERE AND HAVE A GOOD TIME ONCE A YEAR. I KNOW ONE OF THESE YEARS IT'S JUST GOING TO BE TO MUCH ON ME.
HERE'S A LITTLE BIT ABOUT ME BESIDES MY PROBLEMS. I AM A WIDOW OF 5 YEARS NEXT MONTH. I HAVE TWO WONDERFUL KIDS, A DAUGHTER 36 AND A SON 31. THEY BOTH STILL LIVE WITH ME AND HAVE NEVER BEEN OUT ON THEIR OWN. NO GRANDCHILDREN AND NEVER WILL HAVE ANY PER MY KIDS. I HAVE A GREAT FRIEND, MY DOG RIVER. HE IS BY MY SIDE 24/7. THE SWEETEST DOG I HAVE EVER HAD. REGUARDLESS OF WHAT OTHERS THINK, HE IS A MIX OF PIT BULL AND A ROTT. JUST A REALLY BIG BABY.
SO I SHALL RETURN AGAIN AFTER MY VACATION. I WILL BRING BACK EXTRA SMILES FOR ALL OF YOU, AND YOU WILL ARE BE IN MY PRAYERS.
MAY PEACE BE WITH YOU,
                                     TER

[lynnmarie219]

HAVE A FUN TIME VISITING YOUR FRIEND...I'LL WAVE AT YOU WHEN YOU GO BY MY HOUSE FROM TRAVELING NORTH TO SOUTH IN ILLINOIS!

[Patze]

HI TERALILLY,

HAVE A GREAT TIME ON YOUR VACATION AND LET US KNOW HOW IT WENT!

TAKE CARE -

PATZE

[Poochie]

HI TERRILILY,
YOU BRING UP A GOOD POINT ABOUT THE CLUSTER OF AI'S IN YOUR HOUSING COMPLEX.  HOW MANY OF US LIVE NEAR AN ATOMIC POWER PLANT? I LIVE ABOUT 20 MILES WEST OF PEACHBOTTOM ATOMIC POWER PLANT, AND MY DAUGHTER WHO IS SUFFERING TERRIBLY WITH SEVERAL AI'S LIVES EVEN CLOSER. JUST OUT THE MAIN ROAD ABOUT 4 MILES. 

MY SON AND HIS WIFE LIVE NEAR 3 MILE ISLAND ATOMIC POWER PLANT.  ALMOST ON TOP OF IT WHEN IT BLEW OFF.  SHE IS QUITE ILL WITH A COUPLE AI'S. 

I CAN'T HELP BUT FEEL THESE "LITTLE" POP OFFS THAT THEY SAY ARE NECESSARY AND "AREN'T SERIOUS', ARE REALLY DOING SOMETHING TO THE ATMOSPHERE AND SURROUNDING AREAS. 

OUR WELL WATER HAS GONE FROM GREAT TO "CAN'T DRINK, EVEN WITH WHOLE HOUSE FILTER SYSTEM" WITHOUT GETTING KIDNEY AND BLADDER INFECTIONS.  WHAT THE HECKS GIVES WITH THIS STUFF.

SORRY JUST VENTING, IT MAY ALL BE INNOCENT, BUT I CAN'T HELP BUT WONDER.

POOH