New Flare every week??

[DesignerS]

Is that even possible?  Every single week I wake up one morning with a fever and so much pain I cannot move.  Also, I have been having achy lungs and uncomfortable bladder for 3 months now.  I suppose this could all just be frequent flares, but the lungs and bladder concern me.  Has anyone ever had these symtoms, and flares so close together?

Thanks

Designer

[mustangsally]

No, I haven't. Could be any number of triggers causing this. I may be time to contact either your PCP or your rheumy about it, since this has been happeningfor about 3 months now. I pray that you start to feel better soon.

[HL in NY]

That sounds pretty rough. I'm wondering, have you been tested for Lupus? The weekly fevers and chest pain kinda sound like it, but I'm certainly not a doctor.

You might want to discuss it with you Rheumy.

Hope you feel better.

Heather

[Katybarstool]

Hi Designer

I have been having lung and bladder problems for the last couple of months. In fact I'm on my 5th antiobiotic  (and thrussh treatment) in that time - 3 were for the bladder and two for the lungs. A complicating factor is that I have just had prolapse surgery, so I suppose that could have caused the bladder issues, but then again, it could be a coincidence. I also have a diagnosis of bronchiectasis, but that has been controlled with inhalers for a couple of years.

Anyway, just thought I would add my two penn'orth.

Kathyx

[Fairy]

I have been having the same problems since November. I have been in one big flair. It started with my lungs, I have had that 4 times now, and has hit my internal organs. I'm in a flair now. I am so sick of it. I feel for you and know exactly how you feel. Just remember to run a humidifier all of the time to keep moisture in your house.
Take care! you are not alone!

[Dolly Dimples]

   Hi all , I am sorry that you all have these worrying symptoms ,
                                                      and I only hope that all of you have informed your Doctors of these happenings..

        Any lung trouble shpould be investigated soon as..
Designer you sound tho your in a poorly way right now , and I hope you get relief soon.

       Re Katybarstool, sorry to hear that your having trouble so soon after the op, and hope that your responding to treatment by now .   
After my prolapse op 5 years ago, i was rushed back in hospital with infection , and put onto a Heparin drip..
      Quite scary , but soon rallied again .. Good luck to you all, Dolly     

[DesignerS]

Well, I am so sorry to hear that some of you are having the same difficulties.  This just stinks.  I called my regular dr. with the symptoms, and although the nurse was quite concerned, I haven't heard back from them.  I don't think he knows what to do.  My rheum. dr. has run blood tests again.  The RA factor is positive, the sed rate is up, he truly believes I have SjS, lichen planus, and a few different forms of arthritis including the spine. 
I guess before I blanketed all of these symptoms with SjS, I wanted a different perspective on it.  The Rheum. dr. always, obviously, looks at the autoimmune.  But I am concerned if there is something else going on.  I will certainly let you all know if I find anything out. 
I will say it again, this stinks!     I just found out I will be a Grandma, due on Christmas day.  I just wonder, like everyone else on this board, how many "good" days will I have.  How many times will I have to say NO to my grandbaby because I just cannot do it that day. 
Sorry for the negative attitude.  Just a little scared right now 

Love you guys, you are all the greatest.
Designer

[Fairy]

Designer,
Congrats on the Grandbaby! Don't worry, I wonder that too. We just have to take one day at a time. I think it will help if your child (the baby's parent) calls you to see how you feel that day if they want you to do something with the baby. Sometimes I wonder if I will be able to hold mine when they come.
Don't worry about being negative. We all have our days. I have been having quite a few lately. Don't hold it in, get it out of your system so you feel better.
Good luck to you and I hope you feel better soon. Tomorrow is another day!

[Dolly Dimples]

 Awwwww, Designer, congratulations on that splendid news !  Christmas Day too.
   
     I fully understand your negative attitude, which I hope that you can get some positive answers to soon!!

      I was always so negative about all my grandchildren that came along, as I was paranoid that they would end up with this stink too !!

         It's a way of life dealing with every day events, and wondering if one can stand the pace of it..

  Like ..  we are attending a big wedding do in July and I have been so uppity about it , worrying about this and that..

  At the end of the day tho' I just know that I will get it over with when it comes around!
    Prayers for you and all those who are suffering same.. Hugs Dolly x