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Trying to get SJS group started on my facebook

Started by jonnell, May 21, 2009, 07:07:59 AM

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jonnell

Hi its Jennas mom,  trying to get a group started on my facebook you are all welcome to come and share your thoughts.  Jonnell Labas

ErinG



LAU

Hi, I sent a friend request too. I think this is a great idea. I looked for a SjS group on facebook to no avail, so I definitely think one should be made. Thank you :)

Scottietottie

Hi  :)

I admit I haven't tried to join up yet but there are actually quite a few SjS groups on facebook because i looked the other day.

Take care - Scottie  :)
http://sjogrensworld.org/   (our home page)
http://www.sjogrensworld.org/chats.htm   (find our chat times here!)
https://kiwiirc.com/client/irc.dal.net  (way to chat + nickname and #Sjogrensworld)


Never do tomorrow what you can put off till the day after tomorrow!

jonnell


kimbo

Diagnosed March of 2007. SJS/ RA Positive at 80  International-SSA strongly positive at 811-SSB 273
ANA positive at 1:1280
Hashimoto's
Gabapentin, propanol, Celebrex, Synthroid, Cytomel, vitamin D, B complex, Omega 3 complex, and multi vitamins; At 62, I seem to be a low maintenance sjog

jonnell

Ok now I know who u are, brain fog and i dont even have sjs.  Thanks Kim         Hugs and Kissess     Jonnell and Jenna

LAU

yeah scottie you're right, the first time i looked i only typed in "sjogren's" and thought that would be enough. once i added the "syndrome" i found a lot. joined a few cause i'm on facebook way too much  :-X

dbab

I'm on Jenna's group too :)  If anyone wants to add me, just send a request  ;D

Bonnie

Hi Jonnell, I sent you a friend request.

Trudie

DanzGrl


jonnell

Thanks guys almost up to 50 members but we need some posts.

Havenhm

That's a great idea! I will send you a request, Jonnell.