How bad is your fatigue?

[Epson]

My fatigue has reached a new level and I am wondering if it might be something other then Sjogren's.  I have had all kinds of blood work including thyroid, Vitamin D and B.

I feel like I am going to pass out if I don't lay down and I sleep most of the day away, does anyone else have this.  This is beyond fatigue and more like complete exhaustion.

Any feedback will be greatly appreciated.

Epson

[Redetha]

The same thing happens to me.  Some days I think that if I don't sit down I will fall down.  It is a kind of weakness that is hard to explain--just want to go to bed and sleep.   I have often wondered if I have sleep apnea.  So there are more of us out here that are experiencing the same as you.  I did have low Vitamen D and I have thyroid problems also.  When they checked my Vitamen D, mine was 11 and 30-100 is normal so I am taking a high dose ea week for 3 months.  If you do find a solution for this please post. 

[Scottietottie]

Hi Epson 

The last few months have been VERY stressful for you. Your body might just be telling you that you really need to rest up - and is not giving you the option. It's making you sleep.

I've had episodes like that - but not recently.

Take care - Scottie 

[Epson]

Scottie,

That's what my wife said, but how long should it take to recover?  I might have to change my post name to Rip Van Winkle.

[Scottietottie]

I don't know. I'm not medical - so its just a theory. My youngest son always used to sleep when he was stressed. When he went to school first they had to put the zed bed out for him every afternoon for the first week - or he'd sleep in a corner. Never have I seen a child take himself to bed so early on Christmas eve(s). He couldn't stand the excitement - so he slept.

I had several summer holidays, staying with hubby's relatives, when I slept a few days away. They all thought I was the laziest person alive but finally now understand why I did it. (Days before dx)
Hubby off work - 4 kids - he could look after them - so i crashed. That's without having the health issues you're going through.

Take care - Scottie 

[ruby52]

Whatever I had last week,flare or stress I don't know .I would become blindly exhausted throughout the day.If I didn't get to a sofa or bed I knew I would collapse where I was.It's a very weird and scary feeling isn't it?You have no choice but to rest and hope it goes away as quickly as it came on.My sympathies.
                                                                                 Ruby

[Katybarstool]

Epson - I think Scottie is right. You have had too much to cope with recently. Your body could well be catching up now. Most of us cope when we have to, but when we take our foot of f the gas, the body takes the rest it needs.

Here's hoping you get some energy back soon.

Hugs
Kathyx

[Babs659]

Hi, Epson.  I must say, I don't feel like sleeping.  I feel weak and like I just need to sit on the couch and rest a while.  That usually helps.  Hope you feel better soon..
Babs

[eyeamdry]

Epson, did you have radiation with your recent cancer?  I did two years ago with my cancer and I am still not back to anywhere near what I was.  That's about the same time the sjogrens was diagnosed.  I lay on the couch most days all day.  I am not really sleeping, just laying there like a dufus with my eyes closed.

In your case (and mine) it might have something to do with having cancer.  I know everyone is exhausted, but having cancer assault your body is something special and above normal wear and tear.  lucy

[jaygee]

I get tired often, busy life, etc.

But this weekend I experienced fatigue like nothing ever before.  I was taking a short 5 minute walk on an errand.  It was raining and windy, but I had the appropriate coat on, etc.  However, I had an overwhelming feeling of such exhaustion, and I just wanted to lay down, right there, outside.  I was totally exhausted.  I could have cried.  It was a good job my husband was with me.  Just this overwhelming feeling. 

Horrid stuff. 

[Dolly Dimples]

 Epsom,   of course you will still be reeling from all that you have endured over the past months..

                     Operations take so much out of ones self, never mind that you had to endure radiation too..

                     You need to pace yourself ,  eat well, rest plenty and try not to worry ..
                  You will get there ..  Take care, Dolly

[Epson]

My chemo did not include radiation, so I don't think it is a factor, mine was mytomycin administered directly in to the bladder via the nether region for 6 dreadful weeks.  I don't know if there are any ologist left that I haven't seen, just can't live like this, might as well stay in my P.Js all day.

[Leisa]

I too have suffered from extreme fatique to the point of not being able to stand. Can only lay down and go to sleep! It's like someone came along and just totally zapped me! I know i have CFS also but this seems so severe at times! When it happens i will sleep about 20 hours out of the day.
I'm so sorry your having this problem but at least i know there's someone else out there going through the same thing!

[Patze]

Hi Epson,

Forgive me if I've missed it, but have you had a sleep test lately?


Patze

[Chickpea]

Hi Epson

Sorry to hear that you're having a hard time.  It sounds as though you don't have much choice about sleeping because it's just going to happen whether you like it or not.  I echo the others about what a dreadful few months you've endured, and about blood tests and sleep tests.  Do you think you've been expecting too much of yourself recently?

I'm also a bit confused because it could be said you're sleeping the sleep of the righteous.  Is your conscience really that clear?!  This is not the Epson I've come to know and love ...

Thinking of you - Chickpea