I may be joining your family.

[Dolly Dimples]

 Welcome Kellie,   you have received much info here already, but just want to wish you well, and hope you get to the root problem of all your trouble soon..

     Your living in Alaska ?,  brrr, that makes me shiver !     I am complaining about the cold weather here in the UK, and it's supposed to be Spring!

    Good Luck, and  please let us know how you get on next week.. Dolly                                         

[KJ]

My appt. with internal medicine was interesting yesterday.  This doc said that she thinks I have a vitamin D deficiency, and ordered the test.  She also said that it looks like I have thrush, and since taking the medicine I feel much better.  So, after 6 months of suffering and appointments, test after test, it may be that I just need one simple little pill!  I do live in AK, and I have been asking every medical provider for months now if I could have thrush, even the ent.  All said no, that my tongue looked fine.

I don't know if this would explain my ANA, and SSB (I was wrong about the SSA).  I produce enough tears, but my tears break up at 3 seconds (that is where the poor quality comes in), but that could be a result of vit D too. 

If this turns out to be the case, I would be able to say that I know one thing that could cure all!  I am skeptical and hopefull.

Thanks for all the support, I will post again when I find out.

Blessings to all.

[Chickpea]

Hi Kellie

Sceptical and hopeful seems a good place to be!  Vit D deficiency and thrush could explain some of the symptoms but, as you say, the blood test results still have to be explained.  It's good to hear that you're feeling a bit better.

Keep posting and tel us how you are doing.

Take care - Chickpea

[KYMOM]

Kellie, Good to hear that you are responding the the pills for the thrush.  I also have a vit D deficiency.  What did they say to take for that.  I hear I have this or that but am not always told what to do for it. Roxanne

[KJ]

Hi Roxanne,

Supplements is what I was told, if my test shows a deficiency.  I was at Costco today and found all sorts of products claiming to boost D3.  I had no idea that it was so popular.  I bought the regular pills, and a juice to try.  Did you have a blood test to discover your deficiency?  If so, how long did it take to get the results?  Did your doctor seem to think that it was the root of all evil, or just an aggravator?  Kellie

[KYMOM]

Kellie, D deficiency from a blood test and it took just a few days but I had to call and find results.  Doc did not say that much about it because this was not the Rheumy that diagnosed the Sjorgren's but the regular Doc.  On my own I started to take a Calcium supplement with vitamin D.  Have not had blood work since I started with the calcium.  Through a bone density scan I was also diagnosed with Osteopenia which is pre-osteoporosis.  My husband keeps trying to get me to go to a doc he knows who is a more natural based healer who does believe that Vitamin D deficiency is most likely the root of many health problems.  Right now I am doctored out.  Just trying to deal the best I can with ice, alieve and rest.  Roxanne

[KJ]

I know what you mean by "doctored out".  My vitamin D levels were fine, and now I have to wait another 10 days to be seen in interal medicine again.  I am getting to the point where I do not want medical help at all, because of all the stress just to get treated.  I am not sure why it is okay for them to turn me into a chicken with a chronic chopped off head!

Well, I did see my ENT yesterday, and he said that he and his partner believe that I do have ss (and that was before I knew that my vitamin d level was good).

So now what?  More waiting, and waiting.  I am just going to forget what is going on the best I can, and enjoy the beautiful weather here in Anchorage, my family, and anything else that I can think of - now that's what I call practicing medicine!  Kellie

[Chickpea]

Hi Kellie

That sounds like a really good attitude to life in 'limboland'.  It's so easy to get caught up in 'what ifs' and lost in all the appointments with doctors and specialists.  Family, friends and beautiful countryside are just what you need right now. 

It's good to hear that your ENT is willing to diagnose you anyway, and is taking you seriously.

Hope you have a restful weekend.

Take care - Chickpea