alternative views taking control, getting well, my findings

[wednesday mc haggis]

quiger

very true, but i did say clearly i am purely posting my findings and whats worked for me and not telling others what they should do.  "    i ll post links to the sites i find helpful, you can make your own mind up"   i never said do it is said this is my findings , make your own mind up as to what ive posted.

jonnell   what alternative practitioners beleive is that food intolerances and/or candida ( thrush) overgrowth leads to what is called leaky gut theory, the gut becomes inflammed, and causes it to leak toxins into the system that the immune system goes into over  drive trying to deal with, you ll get more into on leaky gut theory and candida diet through google, since there is so many school of thought , i shall leave it at that.google leaky gut syndrome, food intolerance symptoms, candida  overgrowth  symptoms. if anyone does wish to try this speak to their doctors.

kimi   indeed alot of fruits are high sugar, natural, but encourage candida growth, for me i cant have them right now, but each person is different, once die off settled, yes i now keep a food diary of what doesnt agree with me, for me its simple, as im pain free mostly, if i eat something that doesnt agree within an hour i feel fatigued again, and within 3 the pain comes back, so its easy for me to know what triggers me, they say that once candida  leaves you, the intolerances settle, but it would be a case of slowly re-adding things at that point and seeing if there is a reaction or not.

eyeamdry   true there are alot of things out there, and im not promoting anything,not like i get a share in their profits ,  just sharing my experiences,  yes we could all debate this till dawn, but ive gone from being almost sofa bound, to going back to work, enough evidence for me.

   I am saying each to their own, i just thought that the information thats taken me 3 months research on google, and 3 months hard work to get where i am, might help someone else.

   if thats causing offence, then thats fine, there will be no more posting on the subject, since for me convention was offering symptomatic releif and a life of progession, only, i went alternative and for me have reaped benefits, obviously speak to your doctor, , but so far convention has not given me what diet control has, im leading an almost normal life, and with 2 young sons , i am entitled to try what it takes to get my life back, and i am getting my life back.
 
  Sure if convention had given me all this that would be great, but i have the support of my occupational health consultant, my GP,who have looked at my diet and said im eating better than them and more nutrients than them, its  and im quite sure when i see my rheumy again, she wont be saying dont do what seems to be keeping me from pain and symptoms.also bear in mind all the supplements i take like garlic, and caprycillic acid are derived from nature and not liver toxic, ambrotrose is derived from plants , everything i take comes from nature, we know steroids, immuno suppressants and planequil long term have their price, or can have , garlic doesnt.caprycillic acid doesnt, and ambrotose is plants sugars, that dont feed candida. threelac is just a strong mix of  good bacterium thats known to recolonise  the bowel with good bacteria, which even doctors  recommend them  for IBS, its now in yogurts, and many products as they know it helps.

we know that E number and additves are not good for us, we know red meat is not as good for us, and its known fact that gluten isnt in many ppl either. thats fact.

  I supplement my diet with bee pollen which has every nutrient known to man in it and all natural superfood,spirullina another superfood rich in vitamins ,minerals and iron ,  pulses, juicing vegetables, eating more raw and steamed veg, natural bio yogurt, eggs, fish, lean meats, nuts which are vitamin b and selenium rich, millet, brown rice, tomatoe passata for sauces,humous , rice cakes,  homemade soups , cottage cheese .and ive seen my life of 36 symptoms and incapacitating pain and fatigue transform into a life of getting better daily, if that isnt evidence enough for me that i have a way to control my ill health then what is ?? can any doctor  argue with that as opposed to fries , fat laiden cheese, E numbers, additives , microwave meals , gluten,  sugar,and  take away food ?? we at least know cholesterol and heart disease is link to these things.3 months ago i couldnt have swallowed these without water, and sometimes choking, my voice was hoarse and weak , not today .

yesterday my mouth was running saliva, 2 weeks ago it was dry as  a stick, daily i see improvement, the GP in glasgow who went down this road with his son with MS set up practice to help inform and advise others, as he has seen his son living a normal life for 5 years, when convention failed him, those who have changed their diet have seen improvement. sure its not easy when you crave a big slice of cream cake, but pain is a terrible consequence for me .

  speak to your  GP  and ologits , certainly!!! i did and was told if its working for you, and your making sure your nutrients are being covered go for it, and i am.when my maxillo facial surgoen ws examining me for my dry mouth he said yes but candida  can dry your mouth too, candida just kept comming up.

time and time gain here i read recurring thrush issues that predated DX, treatment after treatment not working , except temporarily, i put two and two together, with help from my alternative therapists, and information from others who have seen massive improvements in changing diet, as a nurse myself seemed obvious to try it and i did and its payin off daily , but each to their own .id also like to add two warts i have had for 3 years have disappeared, and the skin tags on my back are gone also, as caprycillic acid is anti viral as well as anti fungal , and found naturally in coconuts .My skin is shining , my hair regrowing and the dark circles under my eyes  ive had for many years are gone  years gone.yesterday i used eye drops twice instead of 6 times .

   T x   

[kelene]

I just wanted to add something. i have tried it all too.. and yes the diet works great.. but i found that after awhile the restrictive nature and the amount of effort it took to keep up on the diet got to me and I gave in..  and then went nuts on the sugar.. sugar is my drug really.

I also had huge releif from giving up diet pop.. that has been no problem to keep up.

good luck and I am glad that you feel better...

[wednesday mc haggis]

Kelene

thanks for posting this, yes it aint easy when youve ahd a life of other foods, i know i still crave sugar at times , possibly always will  , but at 37 , cant work, cant run about with my sons who are my life, watching them suffer seeing mum ill, i just use that as my motivation, id give up my life to save my kids if it was nessesary, but certainly id give up sugar for them.


if i feel like giving up i look at my sons 9& 13 and think you deserve more than me being a quitter, i guess if i was older it might be different , but me not working would mean financial worry if they wanted to to go university , or needed new things, and no amount of craving is worth not giving my very best to them, so it keeps me on straight and narrow, i just cant in good conscience say we cant aford for you to go to university, mummy wants to eat what she cant have, i ll eat what it takes to get me well enough to give them the life and support they need from me.i was a single mum for a few years, and in a way im the one stable thing theyve ha din their lives, why my health being what it has been has scared them so much, killed me to see it, but now i know there is a way from me to do something abou that, then i ll stick to the diet like glue to save them that pain .

kelene thatkyou for your good wishes they mean alot

T x

[Linda196]

Wednesday, I'm so glad you've found something that worked so well for you, but it's the very nature of this insidious illness that what works well for one does nothing for the next person. I appreciate any and all suggestions of things to try, in case that one, or a combination of a bunch of them, is my "magic bullet".

I'm probably one of the very few Sjoggies who isn't troubled by yeast...had one yeast infection many many years ago, easily treated and cured. I've never even had issues when taking antibiotics, and I've taken my share (and those of several other people, it feels like).

I've tried exclusionary diets over the years, from gluten free, to vegetarian, to all natural, macrobiotic, organic or the "100 mile challenge"; I was tested using both conventional allergy testing and NAET (Nambudripad's Allergy Elimination Techniques), and altough a few things showed positive, and I was appropriately treated, I had no relief from the basic symptoms of SjS or other AIs. I do, however, feel that these techniques have brought me to the best level of my general health that I have ever been, leaving me in an optimal position to deal with the AI issues.

I wish it was as simple as someone finding the one true cure, and all of us benefiting, but I'm afraid that isn't so...but all suggestions are welcome, and may work for someone else! Just let your doctor know what path you are following (partly so they know of any potential interactions, and partly so they don't take credit for improvement that's due to another treatment )

[Kimi]

W said "bee pollen which has every nutrient known to man in it and all natural super food, spirullina "

I have used these for myself and my dog who has an autoimmune disorder too! (LOL, Must run in the family! LOL.)  I feel so much better when I do take them but for some reason I am one of those who does it for a while and then goes back to the old ways. Often for us it is an issue of lack of $$$ to get them.

I read a book once that stated that "Food is Medcine". I find that statement very interesting. I figure each of us will try different diets and hopefully will hit on one that helps us. I do believe we each will try things and find what does or does not work well for us. It is a strange path we are walking here and none of us are on the same road. SJS I am finding is diffrent for each person who is afflicted with it. We all have our own path to walk.

I read a study once on sugar. In the study they used  several rats that they had that were addicted to cocaine and placed them with several rats that were not addicted. In the water bottles in their cage they placed one with water laced with cocaine and one with sugar water. In the beginning the rats all tasted of both waters and the cocaine rats went to that bottle mostly, the others went to the sugar water bottles. After a while though the addicted rats started to go more often to the sugar water bottles. After a longer period of time all the rats were using the sugar water and left the cocaine water alone!!! They came to the conclusion that sugar is more addictive then cocaine! I really thought that was an amazing study.

I know my mom always says she is addicted to chocolate chip cookies, she is not not joking about it. Every day she had to have them or she actually felt shaky! She has now gotten to the point of not having to have them every day and can still enjoy them on occasion but when she has them it is a fight to stay away from her old habit. For her she said it was harder than stopping smoking!

I don't mean to start something here, I just find these things interesting and wanted to share them! Personally I am just waiting for the garden to start producing so we can eat all the fresh wonderful veggies to our hearts desire!!! Oh how I love snap peas eaten right in the garden! They never do make it into the house! Last summer my then 3 year old grandson ate a whole row of beans LOL. He loves beans. When he was in the store the other say with mum, he snitched a bean out of the bin and ate it, then he told his mum, "This don't taste like Nanna's"!!! Oh how I love the garden!

Kimi

[wednesday mc haggis]

Linda

how true!! and thanks for the post, really its seems that pppl have had success from the removal of their tooth fillings from heavy metal ones to non heavy metal ones, to quite a few things, and i agree what works for one person  isnt a cure all, just one person happening upon what does and doesnt work for them, its a process of elimination, and snakes and ladders methinks.

  Its not easy, finding whats right and wrong for you, what works and what doesnt, but now im at stage i can tell what isnt, in a way im lucky to feel rotten so quickly when i have somethign that doesnt, and can mark that down on my list of what not to have.

   Even agree that some ppl it might be environmental factors, pllution, chemicals in their area, its strange what AI sufferers can be suceptible to, but for me im just really grateful that something is working and im getting there, as you say working out what does and doesnt lead you to the best optimal health for you personally, i just wanted to post what is working for me, in the hope that it may help someone out there whose problem is same as mines.

Kimi
thats for that, yup money is a major factor for so many ppl, im truly lucky i can afford these things, and count myself so daily!

  I have found by googling the cheapest prices i can find for these things in the UK, spirullina is recommended by almost every nutritionist ive read about, and bee pollen is amazingly good for you, though id build that up slowly incase of ppl sensitive to pollen, i never was.


between the two of them it covers every nutrient we need really, from iron, to enzymes to vitamins, its said that if you were stande don a dessert island and all you had to eat was bee pollen it would cover every nutrient you need by itself, its the most complete frrd on each they say, and ive searched many sites for info on this.

i read food is medecine and it was a great read, and very thought provoking.

I can well beleive that chocolate chip cookies could be harder than cigarrettes, i know pizzza was my favorite thing on earth, saying that it was yeast laiden between the cheese and the dough, and gluten laiden and they say you crave most what you shouldnt have lolol

   I can agree the cravings i have had for sugar are terrible, its horrendous at first wanting what you cant have, but im finding as time passses it miss it less and less, but i dont miss the pain, no painkillers they gave me did anything much for the pain and fatigue was truly flooring, now im up at 8 am and in bed at 11 -12 mn, though during die off i couldnt sleep at all more than 4 hours, ask anyone who seen me in chat at 3 am my time lol.

    Now im at stage of pin pointing what makes me feel ill, and thats great, i then can avoid it and my list of what i can eat, isnt so bad, its not like my diet is rubbish, far from it , its vitmamin loaded, and its not like im not getign enough fibre, for my bowel move daily and normally, which after 19 years of IBS, is quite something, pulses and rice cakes seem to be enough, if i thought it wasnt i could always add pyssilum husk to my diet to bulk my fibre intake up, but i have ben really careful that ever nutritional need is met, i do have to take vitamin C tablet form just to make sure im gettign enough as i am not eating citrus, ecept lemons.

  thankyou all for your expereinces , each post helps to know that something worked for someone , and i truly wish everyone the best at findign that their recipie for success is!!

and when i move house my intentiion is to grow my own organic veg, i grow my own herbs right now in potsm which i love taking rom the grden and eating, but havent got apoce for the veg right now its one of the things im most looking forward to, as i used to garden alot and will eb able to do so in a bigger garden


T x




 

[harrigan]

T, I'm confused.  Are you saying that you don't have sjogrens, but do have candida sensitivity which causes symptoms similar to SS?  Or that having candida sensitivity makes SS symptoms worse?

You said you are off the amatriptyline?  Are you hoping not to start Plaquenil now too?  And do you still think you will have the lip biopsy if the saliva issues are better?

Sorry for so many questions but trying to understand it all.  It's brilliant to hear you are feeling so much better!  Enjoy bank holiday Monday with your boys XX Ailsa

[Bucky]

Mc T,

I'm glad you are feeling better and can return to your job that you love.   

Best wishes to you.

Bucky

[wednesday mc haggis]

Bucky  aww thanks honey, yeah its a big thing returning to work, i really miss it x

harrigan   i will still be going for the lip biopsy, im not saying it isnt SJS, lotus is confirm DX SJS and has revered most symptoms this way, other AI sufferers have got themselves stabilised or as good as they can get themselves through dietary changes, what in my might be causing my immune system to go haywire is what i eat and candida.

As for planequil, well i shall speak to rheumy about that, hopefully she could monitor me, and see me and check my bloods, so that way if day comes that i needed it , id still be on her list. Right now though i am seeing enough improvement as to say that id not be neding it right now.

  I ll take my life with all this a day at a time, but yes im off amytryptyline  as im sleeping just fine, and not expereincing the never pain.

   My bowens therapist has her daughter off steroids and avoided need for colostomy, but yes she is dx chrones .

I just felt that convention wasnt giving me much hope, and spent alot of time researching other ways, for myself, and now i am seeing improvement, im sharing that information with others here.

    AS linda says what works for me might not be someone esles magic bullet, i wasnt convinced when i started it all, but it made me feel better to be trying every option avaiable to me, but its paying off.

  There were just so many articles by narutopaths and alternative therapists saying untreated intolerances and candida can lead to AI, i thought well if i dont try id always be sitting thinking what if ??, im glad i did try.

  The book i read how to beat canddia was written by a ME?CFS sufferer who beat it after 10 years of suffering this way, but i cant claim its cutative, sure SJS will always be there, its about managing it , do i think i have SJS  yes i do, my rheumy thinks so, as well. I might well be on this diet for life, but if that means i get quality of life back ?? well so be it, thats what i shall do

T x

 

 

[wednesday mc haggis]

more info on leaky gut--

http://www.leakygut.co.uk/symptoms.htm

http://en.wikipedia.org/wiki/Leaky_gut

http://www.leakygut.co.uk/Candidiasis.htm

http://health-care-aus.org/leaky%20gut.htm


T x

[JannaLee]

Wednesday,

I haven't read these links yet, I'm wondering if any of them explain how you know if you have candida.  How did you find out you had the infestation?

I'm really wondering about this....

Janna

I wish you guys could get in a study to document your successes and maybe learn correlations for this disease.  I know you do, but just remember to tell all this to all your doctors!

[wednesday mc haggis]

janna

i have had vaginal yeast infections on and off for many years now, ans just from looking at the symtpoms it could cause, i went on the diet , as a see if it helps kind of thing, when i statrted epreincing die off symptoms it became obvious it was at least one of the factors, reading many sites that linked fibro with yeast, i more went on it to help the fibro, and then found agter 3 months , its helping my SJS symptoms too, fact that lotus had been so greatly helped, encouraged me to keep pushing through the die off, basically when yeast is killed off it releases toxins and you go though a worse before better stage.

  I wasnt DX with yeast, i just took aleap of faith if you will, since so many of my symptoms , were so simliar, one girl here`s rheumy reconned her brain fog was candidiasis, and since alomst weekly someone posts here about canddia in one place or another, i thought well it cant do any harm to try.

   I guess its a trial and error thing, but its wroked for me

T x

   

[JannaLee]

Thanks, honey.

[Issey]

Hi T

such an interesting post and so very very true - I went to a food allergy man many years ago and it was him that told me about Candida and how it can even get into your brain! Scared the life out of me - but like many on here I am weak willed:((( I start with great enthusiasm - feel great and then slowly slip into the old ways <sob> however I can honestly say I have never felt so bad and I feel I am partly to blame for the rubbish I feed my body sometimes (am a confessed chocoholic ) and the old saying comes to mind `heal thyself' - especially after you have had numerous tests and all are negative but you feel like **** and think `but there IS something wrong - normal people don't feel like this:(
I feel loads better just cutting out yeast products /chocolate/cookies and  cakes. I grow a lot of my own veg but also eat a healthy diet now - what is my other option?? Pain?  - we just gotta give it a go it really makes sense.
Issey

[Chickpea]

Hi everyone

I've been thinking a lot about how to reply to these posts.  I'm thrilled for Wednesday McH and Lotus - it's wonderful that they are  feeling so much better.  The Candida diet takes a lot of dedication and hard work, but when it works it works.

However .... I'm worried that we're confusing taking responsibility for our health and blaming ourselves.  The 'western' diet is over-reliant on wheat, sugar and dairy, as well as all sorts of processed foods and 'empty' calories.  We all know it would do us good to increase the amount of fresh food, vegetables and fruit that we eat and reduce the amount of 'rubbish'.  Our body weight would stabilise at a healthier point - although not all of us would be thin! - and we'd be best placed to deal with other health issues.  But many of us would still be ill. 

I hope the Candida diet works for lots of us but if it doesn't, or if it doesn't seem appropriate to you, then please don't feel that somehow you've failed.  Like Linda and many of us here, I've tried exclusion diets (including the Candida diet) but yeast and general food allergies don't seem to be my problem.  I eat as healthily as I can plus a little 'treat' every so often - life is hard enough for me without chocolate!

Love to all - Chickpea