Getting restasis for first time tomorrow, need help!

[cinmac]

If my eyes get worse I may be tempted to give Restasis another shot, although even the patient info suggests it works on a relatively small percentage of us.  Desperate times call for desperate measures and you never know when you will be the one something works for.  For anyone who isn't plugged I would definately go that route first-although it has risks of its own, I know.  Until recently it worked really well for me, and my initial Schirmers was a zero.

My eye doctor recently had me try a new type of drop.  It was an off label use and it is a drop used for conjunctivitis.  It's new even for conjunctivitis so again was expensive and it helped me just a bit, but my doc said that she had been hearing anecdotal stories from other docs that it does help.  You rub it along the eyelash line twice a day.  The name escapes me right now (brain fog) ...it was something like Azira, but I will look up my prescription and post it in the hopes that it will work better for someone else.  It is odd how one thing will work for one but not for another...I guess that is what makes this illness so difficult.

When I saw a really big mucky muck specialist 10 years ago he told me that Sjogren's was a "hot" disease-lots of research going on, and probably some big break throughs soon, but other than a few meds that sometimes half way work, and things like new gels etc, all of the posts I read make me feel like they haven't moved very far in a decade.  Plus every one I know who has it gets told different things by their rheaumies and eye doctors, so I'm not sure even the doctors are keeping up with it all.  It gets expensive to try every new thing but on the other hand when you are so anxious for some relief it's hard to let anything go by.  I really do get discouraged if I allow myself to think about it too long.