My ultimate *bleep!*to Sjogren's

[cinmac]

I went to NIH for a clinical trial (not for Sjogren's) and they were so wonderful.  In my case they paid the travel, and I got the medical results which were extensive and probably quite expensive so even though they did not recompense me for 4 days off work I thought it was worth it.  Plus it makes you feel good to know that you might be the one who will provide the clue to unlock this mystery.

Thank you for doing this and bleep to Sjogren's! 

[coopwall]

Sadrian,
Congrats on being a lab rat!  Yes, I do think it is empowering to participate in these studies!  I was in one to investigate Salagen's ability to add moisture to the eyes.  That was in 2000 at Baylor Hospital in Dallas.  I think they were trying to get Sal. approved to be prescribed for dry eyes.  I don't think that happened.  However, it was interesting and I think we learn more about our disease with participation in studies.

At your age, you could actually reap some of the results later on in life as more is dicovered from the results of these studies.  Good Job!

coopwall

[loulou]

HI sadrian

All the best with the study and i wish you well - and thanks from all us sufferers, im in uk but i think they will be doing some research over here soon. I am taking part in a clinical trial for a new drug to treat pbc, i also feel a two finger stick up to this disgusting disease.

Keep us informed how it goes.

TAke care of yourself.

loulou

[Dolly Dimples]

   
Lou Lou, it's great to hear that the UK may be starting some trials .  We certainly seem to be well behind with medical trials..
     
I pray and hope that you will do well in the PBC trial, it is a dreadful complaint and needs urgent attention, as I read somewhere that it is on the increase.
   
      Here in the North East we have had  rather an abnormal number of sufferers.. 
                     
                        Wishing you much success, Hugs Dolly.