Is this Sjogrens Related...anyone experience this?

[Billydude]

This past week both of my big toes have felt numb.   Is this Sjogrens related?  Has anyone experienced this?  I always say that Sjogrens seems to effect me from the waist up so this would be a new one for me.
Steve

[Scottietottie]

Hi Steve 

I've experienced it. Never got a doc to take it seriously - but its annoying. In my case - it's not the whole of the big toes but the inside edges of them. I wear 'sensible' shoes too - and have done for many years.

Dunno if its Sjogren's or not.

Take care - Scottie 

[Carrottop50]

That happened to me last night... Wow... I don't know what it is.

Carrottop

[eyeamdry]

I suspect it is Sjogrens related.  When I think of my Sjogrens "symptoms", I had some toes become numb a long time ago.  That was years before SJS however.  It doesn't cause much trouble except it adds to the cold feet. 
Lucy

[TerriJ]

My left big toe is numb quite a bit and has been since all of this starting happening.

Terri

[missyb]

here's another with numb big toes, the outsides though, weird huh? never heard mention of it before..

[Patze]

Hi Steve,

I've heard others mention that they have had the numbness in the lower extremities, but for me it seems to be related to how I am sitting/laying down.


Patze

[staryeye]

Hi Steve,

I too have had numb big toes but never thought much about it and I was deffinately not going to the doctor - isn?t it wierd, maybe it does have something to do with sjs.

Shas

[salsen]

Many with SJS have neuropathy related issues.  (me being one for many years).  You should be evaluated by a neurologist.  Loss of feeling in the toes can cause many balance issues.  Also nerve conduction test should be run and possibly be treated to preserve maximum nerve response.  Good Luck

[Billydude]

Yes for me its only on the outside part of my big toes and not the entire toe.   I just happen to have a neurologist appointment coming up.
Steve

[Patze]

Hi Steve,

I'm glad to see that you have a neuro appointment coming up, please do let us know what he says about the numbness.

Hang in there & take care.


Patze

[smac]

Steve,

I, too, get numb toes, not just the big one, although it seems to attack that one the most.  I have Reynaud's along with the SS so I kind of thought that it went along with that since my fingers are always going numb.    But it seems like a lot of us do have numb toes.

smac