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First Chemo Today, OMMG!!!!

Started by Epson, February 25, 2009, 07:06:02 PM

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JJ

I guess you should just flat out tell them they will make this a whole lot less

painful or you'll be performing it on them...my youngest daughter would

go in for her monthly blood work for thyroid...and if they didn't have a butterfly

in hand she tell them your not sticking that thing in my arm..get the butterfly..

one nurse got to know her pretty well and would take over when she saw

someone else was going to do her draw...she would tell them she was saving their life.

She just knew Miss Jess was going to tear their head off...I really hope that

they get it right and make it less painful..my heart goes out to you and uplifted

by your strength...Hugs

PS. As far as cheerleading...I'm not good at that...but will see if I can Hire

Nancy Pelosi...she seems to have a spring board attached to her feet.. ;D

JJ

Dolly Dimples

      Oh Epson,   with that wacky sense of humor you have ,  and with what you have been through,  you will get through it..
                            I bet all those nurses just love it when you crawl in there!!    Best of luck,  and chin up if nothing else!!
                                                 Ha Ha,   Dolly.

Chana M

#17
Oh Epson, this  is just too awful.  It's beyond belief that they can land on Mars but they can't work out a way of putting in a catheter without causing someone agony. 

As everyone else has been saying:  THIS ISN'T RIGHT!

Nobody should have to go through this, but particularly not someone having chemo.  And specially not our Epson.  Did you tell them how special you are?  How big your fan club is?  Or how scary your cheerleaders are?!

Thinking of you

JannaLee

Yeah Epson,

Did you tell them?  Cause they should know who they are dealing with.

quiger

Oh Epson, my heart goes out to you. I hope they are being honest when they say it will be better next time. You must be one strong dude to endure what you have. It sure seems like there has to be a better way.

You have tons of support here and we'll all be thinking of you during the next chemo visits. Let us know how it goes. I liked Pooh's idea of having the doc go first but we know that would never happen. He would be in an OR with all kinds of drugs.

Good luck to you.

quig



Check out the info on the home page  http://www.sjogrensworld.org/index.html

lynnmarie219

(((((((Epson)))))))

I will keep everything crossed for you that the next visit will go MUCH better than this one did.

I'm so sorry for all that you went through and I also think that they must be able to do something for the pain...for crying out loud.....that's ridiculous to put someone through that!

Keeping you in my thoughts....

songbird

I have everything puckered reading this...and i bet you did too.  :o  Poor thing! I was with my husband once when he was scoped but it wasnt anything as bad as you have described however he was none too happy. But i sure hope they find a better way for you!

Epson

Thank you for all your kind word, I am happy to say that I feel pretty good today, only mild discomfort.  I am very tiered, but is that due to low blood count, Sjogren's, chemo or all the above?

I would like to think that most people don't have as many complications as I have had, I'm just lucky that way ;D

Every joint in my body hurts for the last couple of days, I'm going to blame that on Sjogren's and nothing else, well maybe the rain is a co-conspirator.

I couldn't have made it through all of this without everyones encouragement, Thanks to all.

Billydude

Epson..what is the chemo for.  I think I missed something in the posts.  Do you have another problem seperate from the Sjogrens or is this somehow related.
Steve

kimbo

Epson,

I don't know what to say as so much has already been said.

I will pray for your strength. And specifically for the next person who administrates your treatment. I wonder if they could give you that stuff they give in the colonscopy procedures. Like semi consious-sleep-state-care-free-feeling-happy IV injection.

kimbo
Diagnosed March of 2007. SJS/ RA Positive at 80  International-SSA strongly positive at 811-SSB 273
ANA positive at 1:1280
Hashimoto's
Gabapentin, propanol, Celebrex, Synthroid, Cytomel, vitamin D, B complex, Omega 3 complex, and multi vitamins; At 62, I seem to be a low maintenance sjog

Bucky

Epson,

I'm with Scottie . . keeping those legs crossed.

Do you have any kids?  I was going to have you ask your wife how she prepared for childbirth . . they do hee, hee who sounds for the contractions . . wonder if it would work for your situation???  I'm sure you would have three different words other than hee, hee who!!!   :D

Here's my little cheer for you:  Epson, Epson he's our man, if he can't do it . . NO ONE CAN!!!  (jumping and waving my PAPER pom-poms)

Hang in there . . . .

Bucky

Come sit a spell and join in live chat - we serve non-fattening, zero calorie goodies while discussing all kinds of things.  ;D

http://www.sjogrensworld.org/chats.htm   (find our chat times here!)

MusicGuy

ohhhhhhh Epson...... not a good feeling, I'm sure.  good luck with the next treatments.
Dave

wednesday mc haggis

Glad to hear you feeling better, not surprised you ache all over, youve been through so much in a short space of time im surprised you aint sought out your nearest colony of lemming to hang out with.

Your doing so well, without buttering you up, scottish say what they think i assure you , i am proud to know you even if its virtually, now i am glad i know many ppl, but few i am beaming with pride in knowing, youve taken so many blows, and yet you still encourage others, your personality is a tonic,  your so hard on yourself at times, man im glad your shows aint been mines recently, you have the spirit of a rolling wave epson my friend, your one of the ppl in life i can truly say i admire.

you keep ya chin up and walk tall( if you aint too sore to)

T x

genko_b

Hi Billydude:

Epson has bladder cancer and is in his second round of treatment for it.

I know what you mean by missing posts - if I am out of here for a week, I feel like I've completely lost track.

Genko

Billydude

Oh thats tough news.  Sorry to hear that Epson.