General symptoms

[smac]

I went undiagnosed for about 5 years, so I have now experienced damage to my corneas and Have had a lot of trouble with my mouth and teeth.   I also have fibromyalgia and am being treated for that.   I have a lot of the other Sjogren's symptoms, but sometimes when I feel the worst, the blood tests come back normal except for the ANA factors.  So I am very frustrated.  Does anyone else experience this?    I think that is why I went undiagnosed for so long.  I have  intestinal symptoms, lung and bronchial tube problems.  I feel a lot like I have a cold, but not, if you know what I mean.   I do have a super Rheumatologist.   

[Dolly Dimples]

     Hi Smac, I think you have probably been just like the majority of us here,  back & forward to Docs, tests that show nothing untoward, weird symptons that can't be explained, etc'
    I have had  problems for quite a number of years now ,and am really no further on. I just take the tablets  and carry on as best I can.
   To tell the truth tho' there are really a lot worse cases here than I am, so I count myself lucky .  This is truly Sjogrens and all that goes with it.  They are getting to know more and more about this beast ....but soooo slowly!
 
    You really  are lucky to have a good Rheumatologist, so hang in there.   We are right along side too if you need us..
   hugs and best wishes. Dollyx

         

[DesignerS]

Hi SMac,
Sounds familiar.  I am glad you have a good Rheum. dr. but its a very long process from what others have said, and from what I am finding out.  So many problems, and perfect bloodwork.  I also know that many here are much more pain than I am, so I am thankful.  One step, one day at a time.  Take care.

Designer

[Collie]

Been there. I have been sick for over 15 years; even had a bone marrow biopsy, and every thing came back neg. Finely was told I had fibro because "there isn't anything wrong with you." My Doc started me on Methotrexate a few months ago because I dared him to tell me I did not have sjogrens. I have plugs in both eyes because of dry eyes, I have asthma,  difficulty swallowing, paralyzed vocal cords, severe dry mouth, neuropathy both legs, digestion problems, etc.

I am glad you have a good rheumy, that is half the battle.

Collie