Anybody else in denial?

[Scottietottie]

Hi freifamily 

You take the Plaquenil to hopefully keep you feeling as good as you do now!  I was assured by my rheumatologist that the vast majority of people with Sjogren's didn't suffer inordinately. He didn't pretend that dry mouths or eyes were comfortable but he reckons that most people live pretty normally with them.

According to him, joint pain isn't inevitable and CNS involvement is rare as is organ involvement. Maybe many of the people who don't feel too bad just don't bother to join up in here. It's possible.

I hope you never do feel really bad and that it stays in the background rather than taking over your life!

Take care - Scottie 

[eyeamdry]

I am in no state of denial and am thankful for a firm diagnosis.  Lucy

[wednesday mc haggis]

i guess thinking on it all i did all my denial before sjogrens was ever suspected, i knew there was summit strange, that i had IBS ear problems, certain amount of deafness, at times tiredness not likw now, but as irish said i thought everyone felt that tiredness .sicca symptoms , my mouth was last to go dry in a way, had dry eeys and nose for 30 years so i cant remeber being any other way likely why that doesnt really bother me much, dont know any different , aches and pain i put down to my job , 6 months ago it floored me, and docs gave many diagnosis`s , the pain of vaginal dryness and node pain down there made endometriosis and CFS a diagnosis ,until the CNS symptoms kicked in and  until the gyn doc and me ruled that out and sjogrens in, i had mentioned SJS before to my GP and was brushed off , so in a way all my denail and bargaining was done before DX , now im being listenned to and seeing Rheumy next week , it was scary at first, but god a relief to say yay  im not mad after all  , and since we need to  be monitored im glad od DX to keep an eyes on my liver kidneys etc, i think being undiagnosed is way scarier, and dangerous

T x