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Worst day of my life!

Started by Epson, January 19, 2009, 06:49:25 PM

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quiger

Oh gosh Epson, it must seem never ending. I am so hoping this goes well for you. What you went through yesterday was horrible. I'm with the others, I vote for drugs whenever possible for all of your procedures.

I'll keep you in my prayers. I had started to think that 2009 couldn't be any worse than 2008 but I think the verdict is still out. Good luck. Let us know how you are doing. Hopefully they will get the word on the right antibiotics soon so you can get started.

quiger
Check out the info on the home page  http://www.sjogrensworld.org/index.html

ktfabian

Ouch, Ouch, Ouch, Epson.

I can only imagine what it's like for a guy, and especially a guy with a raging infection.  I've had that, "Oh, the opening isn't big enough, let's make it bigger" experience myself and it wasn't fun at all.  I was sedated the first time it was done, and it felt just as bad with sedation as it did without.

I'm so sorry to hear that, after one day of thinking you were in the clear, they're checking out suspicious areas again.  I highly doubt you were a very bad person in a past life - you're much too funny in this life.  In your next life?  Be a urologist who  only treats doctors and make sure they feel your pain!

Hang in there, Tracy
________________________________________________
55yo Sjogren's, Fibro, Selective IgM Def., back pain - fused L3/4-L5/S1,  Costochondritis, Achilles tendon tear,  cluster headaches
Plaq, Medrol, Vit D, Arava, Rituxan, Mobic, Evoxac, Tumeric 1000mg daily, Cymbalta, Fiorcet, Klonopin, Soma, pain med.

Bucky

Epson - I agree with everything everyone else has posted.

Hang in there - maybe it's just some scar tissue. 

Bucky
Come sit a spell and join in live chat - we serve non-fattening, zero calorie goodies while discussing all kinds of things.  ;D

http://www.sjogrensworld.org/chats.htm   (find our chat times here!)

Victoria05202000

Poor Epson!  I am so sorry for what you have been through.  I am glad it is not cancer though!  Take Care!

Vicky

Epson

Monday was the day of physical torture, now comes the mental torture, wait until a week from Friday for the procedure ( should be healed by then) which means the whole weekend will pass before I know anything. ???

I guess that will give me time to shop for some Manzie Pads or maybe they are secretly turning me into a women, or I am being probed my aliens from another planet :D

At least I wont be awake for the next round of torture and I have a whole bottle of Percs ;D

Dolly Dimples

   Bless you Epsom, 
             despite all these horrendous trials you are having, your lovely sense of humour shines through it all.
                your threads always make me smile, but reading about this recent procedure I must admit to a lot of wincing!!
                            Keep strong, and wish you very good luck.  Cheers Dolly
         
   

Sandra

Oh Gees Epson, your suffering brings back memories of my poor old dad, he endured the same. Blood clots! >:( Darn the bladder what a tempermental little sac  >:( ...doesn't matter if you are male or female...I had some wierd thing going on all through 2008 too where I was getting a bladder infection about every 1-1/2 to 2 months, 9 in all got so I just wanted to pretend they weren't real... :D that decision went well..... just watch what can happen when you ignore them.
So glad to hear the "mass" (another code word) was not cancerous...have they spoke to you about "TB" (BCG Virus) treatments for the bladder?
Try not to dwell on the outcome of the tests over the weekend, I have been dealing with cancer in one way or another since 2003 and if there is one thing I have learned, a person, (namely me) can sure put themsleves through allot of unnecessary torture for nothing when it comes to cancer by allowing the mind to take over and think the worst, then all the good times get used up in misery anyway and for nothing. Take good care and laugh everyday regardless.....will be pulling for you, Sandra

Sjenny

Epson:

You are one tough guy to endure all that and still keep your sense of humor.

I hope the antibiotics are making your kidneys feel better and they find nothing new in the next go-around.

Sue

Epson

I have discussed BCG treatment with the doctor, but we have to get everything else under control and find out what is happening to the right kidney before it loses function.  This whole episode has made me forget about every other ailment and pain in my body.

Sjogren's doesn't seem to be that bad now that I have something eating away at my insides and the word Cancer, very powerful,
shuts people up and stops them in their tracks.  Although I did get a, you don't look sick, today.

Pooh

Sure hope you have better days coming Epson. 

Pooh

lesleyjoy

Hi Epson, I know what you mean...when it's something far worse than Sjogrens, Sjogrens doesn't get a look in. Sometimes we get so wrapped up in the Sjs thing that we forget that other ordinary and not so ordinary things can happen to us as well  :-\ I guess this can make us hyper-vigilant which is good as we can't leave anything to chance  >:(

I hope you have a not too bad weekend and hope those antibiotics have arrived for you. Keep talking to us.

Cheers Lesley (New Zealand)

Epson

Well, they always say, when given lemons, make lemon aid and with my bladder problems, believe me, I have to make a lot of lemon aid, so why not write a book on the Cleveland Metro areas cleanest bathroom?

That would at least keep me busy for a couple of weeks ;D

ktfabian

Epson-

A guide to the cleanest bathrooms in any Metro area is sure to be a big hit among us "overactive bladder" types.  Put me down for one copy!

Keep your sense of humor and know we're all here pulling for you,
Tracy
________________________________________________
55yo Sjogren's, Fibro, Selective IgM Def., back pain - fused L3/4-L5/S1,  Costochondritis, Achilles tendon tear,  cluster headaches
Plaq, Medrol, Vit D, Arava, Rituxan, Mobic, Evoxac, Tumeric 1000mg daily, Cymbalta, Fiorcet, Klonopin, Soma, pain med.

ctrteresa

Epson, so sorry for your horrible experience.  Gosh, I cringe just thinking of it.  I had a test done several years ago to find out why I have blood in my urine all the time and it wasn't supposed to hurt.  I've never had a child, but I cannot imaging childbirth hurting worse than that.  Since no one else has asked this question, I'm going to.  How are you peeing?  Does it hurt like H***?  I know when I've had UTIs in the past it was like peeing battery acid, I was afraid to go, and yes, dammit, I cried like a baby. :D  You've got to be feeling much worse than that. 

Epson

Ctrtersa,

Yes, battery acid, that is exactly how I describe it to the doctor, but the night crawler sized blood-clot was no walk in the park.

I got my Manzie pads ready for January 30th, let the pain and blood begin :'(