Worst day of my life!

[Epson]

Today I had another cystascope after an ultra sound showed another tumor in my bladder and kidney blockage.  The nurse told me that my urine test results were gross not to mention what it actually looked like. It turns out the there is no tumor, but there is an old bloodclot and a raging infection.  I new I was in trouble when the Novocain jell that's used to numb you before insertion of the cystascope, felt like a red hot poker, entering the urinary tract.

When the scope would not fit and the doctor said that they would have to dialate the penis, thoughts of the Spanish Inquisition came to mind and as it turned out, I was not too far off the mark, it was worse.  I hope no new patients were in the waiting room, if there was, I am sure they left in fear, as they heard my moans and a few expletives.

Without going into gory details or boring you, what they pulled out of my bladder reminded me of Linda Blair's famous regurgitation scene in The Exorcist and I even think my head turned 360 degrees at one point.  The doctor said in all of his years of practice he had never seen anything like this.

Now for the good news, no cancer and when the result of my urine culture come back, they will be able to prescribe a better antibiotic more specific to my infection.  The bad news, I have to go back through the whole thing again in 4 weeks and may have to have a stint installed to keep the use of my right kidney. 

I can see that 2009 is going to be a fabulous year, not.

[BonusMom]

Oh Epson, that sounds horrific!  I cannot begin to imagine the pain that you experienced today as they did the procedure.  Perhaps next time they'll give you some meds to take at home (Percocet or Valium come to mind) to help with the pain prior to undergoing the red hot poker.  I'm hoping that the pain was because of the extensive infection and that the next time you go in it won't be as painful as the infection will have been erradicated by what they did today and the antibiotics that I'm hoping they gave you.

I am very thankful to hear that it's not cancer, but anguished that you experienced some much pain today.  Please keep us posted on how you're doing.

Lana

[allium]

Hi Epson:

Sorry to hear about this awful procedure; you can't be the only person that finds this beyond painful.  They give people twilight sedation for colonoscopies, why not this?  BonusMom is right; drugs is good.  Demand that you are helped with pain for the next one, there is no reason to make you suffer like that. Expect the Spanish Inquisition!

I'm very glad that there was no cancer found.

Best,
Sheila

[lesleyjoy]

Hi Epson, I had a feeling it wouldn't be a reappearance of cancer after such a short period of time, but next time, demand to be put under general anesthetic...please! If you have medical insurance, you can get it done this way. Pain like that just makes everything go into spasm  If they're installing a stent I'd imagine that you'd have a 'General A' anyway.

I had a hysteroscopy a few years ago, where they numb the cervical canal and insert a long, thin scope to take a scraping from the uterus...well it didn't hurt until just after the scraping and then WOW, such cramping spasmic pain I'd never experienced in my life (and I've had 2 children). I told him next time I'm having a 'General A' which I did last year. I'm sure many women have this proceedure without too much trouble but having autoimmune disease, makes the whole thing worse.

Take care and gobble down lots of painkillers, while you wait for the antibiotics,
Lesley (NZ)

[salsen]

Well I am glad to hear of the underlining good news of no cancer.  Hopefully that can pinpoint the exact bacteria and this nasty infection can be cleared up.  This test is uncomfortable enough without horrific pain due to an infection.   Let your doctor know you will gladly bring along a driver so that he can give you the twilight sleep for the next procedure.  

Keeping you in my prayers for a good outcome to this problem.  Take care.

[eyeamdry]

We're glad you don't have cancer and hope things get better for you.  You do have a way with a story!
Lucy

[lynnmarie219]

So glad to hear that there is no more cancer...but so sorry to hear what you went through today! I cant even imagine why they didn't give you some sort of painkiller or light anesthesia. Please take care.....I hope you get this infection under control and soon! Let us know how you are doing!

[Pooh]

Happy to hear there is no cancer, but sorry you had to go through such a horrific procedure. 

Please ask for more sedation when they do they next one, or tell them if they don't you will scream the house down.  That usually works for a lot of people. 

Take care and I hope those antibiotics work quickly.

Pooh

[Katybarstool]

Epson

The no cancer news is brilliant - thank God for that, eh!

I'm with the others about drugs. Ask for them, no demand them, before they do any more testing. Hopefully, once the infection clears up, it will be so much easier to get the scope in.

Hang in there.

Kathyx

[Patze]

Hi Epson,

So glad to hear that it isn't cancer, but I sure feel for you after all the crap that you've had to endure so far.  Sending you


( ( ( ( ( giant gentle hugs ) ) ) ) )
my friend.

Please take care -

Patze

[Scottietottie]

Oh Epson - ouch!

I guess that's the nearest you'll ever get to giving birth!  It sounds horrific. As they are going to put you through it again - can't they sedate you or something? Don't suppose they'd consider an epidural?

I'm really glad its not cancer though. I hope they get the infection under control and that you can start healing! That would make some of 2009 OK. It's certainly had a lousy start!

Take care - Scottie 

[genko_b]

Hi Epson:

As everyone says, next time refuse to have the procedure done without major drugs in your system. No one should have to go through that much pain when it can be alleviated.

Take care; hopefully things can only go up from here.

Genko

[ohiolady]

Epson,

I am so sorry that you have to go through all this.  I know how you feel to just want a break from it all.  I'm still hoping that will happen for you.  They have to be able to do this under some type of anesthesia.  Surely, they would not want to put you through this again.

Anna

[Chana M]

Wow Epson - what a horrible day you've had!  I wish I'd filmed my facial expressions as I read your description of the ... they put up your ... and the ... they pulled out of your ... I squirmed, I grimaced, my legs crossed back and forth.  I thank God every day that I'm a woman but today I'm giving extra thanks.

Seriously, dear Epson I am so delighted that it's not a return of cancer.  But to go through such pain and agony when you're feeling debilitated anyway - it just seems so wrong.  A GA or even just some intravenous Valium would help.  You cannot be expected to go through anything like that ever again. 

Chana x

ps did you discover whether the scope was made in Canada?

[Epson]

I may have spoken too soon, now I have to go for another procedure at the hospital next week, which will include a biopsy of an area that looks suspicious (code word for cancer) and a better look at the ureters and kidneys, I'm still bleeding from what they did yesterday.

Oi Vey, I can't believe this is happening, I must have been been a very, very bad person in my last life, like a Hitler or something to deserve this.  If they find something that means I will have to have another procedure, I'm not sure how much more I take down there!