I am a bit scared....

[wen.uk]

Oh Vicky - I do hope you get your answer soon - I always think that the waiting is the worse time, at least when you have all the info you can deal with things better.  Concentrate your efforts into having fun with your two little ones if you can, instead of worrying, easier said than done I know - but so much more productive and enjoyable.

Cyber hugs to you x x

[pudmott]

Hi Vicki,

Im sorry i have been a bit slow to respond. I'm sorry you are having to go through so much emotional truma at the moment to compund the pysical stuff youare going through. I will keep my fingers crossed that they make a decision soon and you get the go ahead.

I can feel that new kidney doing you god already honey.

Take care i will be thinkingof you


Pud

[Victoria05202000]

Again, thanks everyone.  I feel a little less worried today.  It is definitely on my mind, but I wouldn't say it is consuming every minute of my day.

Jessie, I appreciate your kind words, but if I went on dialysis their answer would still be no.  I am exactly the kind of patient they want to do a transplant on EXCEPT the darn Sjogrens.  My kidney function is down to less than 16% function and doctors want a candidate to not be on dialysis. Dialysis puts so much wear and tear on your body for most people.  If your kidney function is less than 20% you can be put on the transplant list....doesn't matter if you are on dialysis or not.  Some people have to go on dialysis at where my kidney function is at....some people feel somewhat fine without dialysis until their function goes less than 8%.  It just depends on the individual.  I think I would be one of the ones that could go down to a pretty low kidney function before dialysis.  I work 40 hours a week still despite everything....and I can collect disability because I am labled as End Stage Renal Disease....not to mention the Sjogrens messes me up time to time....BUT I have more good days than bad......and as long as that is the case I will keep doing what I am doing. 

Take Care!
Vicky

[Scottietottie]

Hi Vicky

With an attitude like yours you should be a perfect candidate for a kidney transplant. You're so positive and positive people tend to have the best outcomes. I hope you get word soon - and I hope that word is YES.

Take care - Scottie 

[pudmott]

Keep that positive happening honey we're all rooting for you


Pud

[Victoria05202000]

Thanks Pud!!  I feel better everyday with what the answer will be.....YES, we accept you in the transplant program......

Then it will be......YES we found a live donor......

Then it will be.....YES the transplant was a success....

Then it will be.....Happily ever after at least for 15-20 years until another kidney is needed.

THEN.....we repeat steps 1-4.         

[MusicGuy]

Vicky,
I'll keep you in my prayers too.  It's good you did not get a 'no' so hopefully things will work out for you.  try to keep a positive attitude, for you and yours.
Dave

[lady nova]

Hey Vicky,


     I just wanted to post and give you a big hug from me. OMG hun, you have more than a bit of a reason to be scared. I can totally understand why you feel the way you do. I don't think you could be a person and not be scared. I'm not sure what I can do other than keep you and your little ones in my thoughts and prayers.


Love,


Lady Nova

[beverley]

Vicky,  I am not sure what to say except that to be going through this when you have two little ones is a very cruel twist of fate.  You sound like you have your head in the right place and I hope you have the love of support of your family and friends.  Make sure you keep us all updated as I am sure everyone of the webboards will be thinking of you and sending you positive vibes.

Beverley

[ktfabian]

Vicky- I, too, am praying that you will get the all the positive answers you need to get as well as you can be.

All my best to you, Tracy

[Billydude]

Oh Vicky....Thinking of you and sending you good thoughts!
Steve

[SeaBreeze]

Hi Vicky,
I'm so impressed with your strength and willingness to reach out for support.
I ran across this website where you can 'light' a candle for a person who needs some extra help

http://www.gratefulness.org/candles/candles.cfm?l=eng

[Victoria05202000]

SeaBreeze...that is a great site. Thanks so much.  Thank you everyone!

I hopefully will know an answer today.  I hope I don't have to wait until Friday.  I will let everyone know something when I find out.  (fingers and toes crossed)   

[pudmott]

all apendages crossed, eyes tehgjhtdulk.

oopps better uncros the eyes to type.

keep us posted

pud

[SeaBreeze]

I should give Pooh the credit for that site... I saw it here in a different post... It is great isn't it...
Thanks Pooh !