I am so disappointed with WebMD!!!

[lady nova]

Hey Everyone,


     Do you think I was a little harsh on poor old Dr. L? I was just fuming when I read what he wrote. Like all Sjogren's Syndrome patients look the same. heck, most people would not know that I am sick to look at me. Secondly, I probably have some symptoms related to RA. On my really bad days, my hands are like paddles, and my knuckles are bright red... flaming red, swollen, and my hands feel like they are on fire to the touch. HOWEVER, by the time I go to my rheumatologist say a few hours later after I first wake up... they are looking close to normal. Now, that isn't the case for say everyone that has RA, but that happens to me. So maybe poor Spencer was filmed at a good hour. I swear, for all that education some doctors are really stupid!!!!



All Best,


Lady Nova

[Katybarstool]

Wow!!

I want to echo all your comments. I think we have shown him that our Sjoggie family stick together.

Well done, everyone.

Kathyx

[Jesse88]

Lady, the doctor did us a disservice by continuing the idea that Sjogren's is no big deal.  He had an opportunity to educate a lot of people and he didn't do it, for whatever reason.  If anyone cares to read our comments they'll learn about it in a way no one without the disease can teach them.  It's bad enough that the first and main description of Sjogren's is ALWAYS (I've never seen otherwise) dry mouth, eyes, and maybe vagina.  They just gloss over the really serious problems that can result from those dry eyes, mouth, etc. and the even more problematic possible organ involvment, nervous system involvment and more.  Add to that the fact that many of us look "normal" and it's no wonder people don't take us seriously and think we're just a bunch of drama queens or cry babies.  The average person can't be blamed for their lack of knowledge, but that doctor had the chance to set things right and he missed the boat.  So, no, you weren't too hard on him.

[lady nova]

Hey Everyone,


    OMG, you should read what this person wrote. I think it could be Dr. Lloyd in disguise. It said, we shouldn't be so harsh on the poor doctor, that he was criticizing a show for shoddy writing... and this person said he/she reads his blog for help and great advice. PLEASE!!!!! Oh and they criticized my comment, attacking the dear old doctor for putting the words (true statement) after each of his comments that I found even more irritating. I said if he is going to do that,  he should site his sources as expected in any reputable publication. Regardless of the fact that it is a blog, as a doc, he should have made his points legit.


All Best,

Lady Nova

[Patze]

Well put Lady Nova!!


Patze

[Jesse88]

I read that post too and thought the same thing....the doc in disguise.  But Lady, he wrote "true statement" in big caps!  Doesn't that mean it really is true?  How can you doubt him?   

[erinthevalkyrie]

Thanks for this guys!  i went to the link and pretended that we were all yelling at all my physicians who have ever generalized the disease and told me i am too young!  AHH, Revenge.

[paperdoll]

EEEEEEEEEEEEeK

i wonder if our doctors trawl secretly on here paranoid


heehee

I'd like to print that all out and send it to my doctors ) secretly (now I am thinking secretly) they seem annoyed when I bring in some information of my own - no they don't "seem" they are...

If I had $36 to get them all a subscription to the Moisture Seekers I'd get them all subscritpions!

You guys GO GO GO!

Have a great long weekend,
P.

You all make my day!