Sjogrens Makes the NY Times - Article Link

[kindandcaring]

http://www.nytimes.com/2008/10/07/health/07brod.html?ref=health

I enjoyed reading this article especially knowing it is reaching a much wider audience...gotta be a good thing
Noted from it that the first recorded symptoms were for a male patient... 

[Linda196]

Excellent article, thanks for bringing it to our attention.

I'd just like to point out that the first male patient was in 1892, at which time women rarely went to a doctor, unless their lives were threatened! In that era, women more commonly attended "health resorts" if they had the resources, or just made do if they didn't. If we have difficulty with side effects to medications now, how about the "electrical corset for treatment of women's lassitude"!?

[Starlore]

Wow great find! This is a great article! I'm excited to see SjS getting some attention from such a well established publication, but even more excited that they bring a lot of details to light that most articles I've seen, completely miss. SjS is a very sorely underestimated disease & thats what makes it dangerous...Hopefully, this will make people (& doctors) truly start to appreciate the scope of things & start having enough respect for the condition to take it seriously.

Thanks for sharing! 

[Bonnie]

Wow this is a great article.  It would be so much better for use soggies if SJS was a well known as MS or RA.  Maybe we woudn't need to explain ourselves so much. 

[lynnmarie219]

Nice easy to read article! Thanks for sharing this with us!

[eyeamdry]

This is one of the best Sjogrens articles I've seen written.  More than just a reference to it, but short enough article that people can read and understand what it is.  (I mean is that asking too much--for people to just learn about it?)lol.  That's what we are always hollering about.  Stuff like this in national publications are just what will help combat the ignorance of our weird disease.  Hope we'll see more. Lucy

[JannaLee]

It seems there are many physicians who would learn something from that article!

I've read several of Dr. Vivino's medical abstracts...he is real clever.

[pudmott]

Electrical corset huh?

Now that could beinteresting. And what are womens lassitudes???

Pud

[kindandcaring]

Excellent article, thanks for bringing it to our attention.

I'd just like to point out that the first male patient was in 1892, at which time women rarely went to a doctor, unless their lives were threatened! In that era, women more commonly attended "health resorts" if they had the resources, or just made do if they didn't. If we have difficulty with side effects to medications now, how about the "electrical corset for treatment of women's lassitude"!?

Hey Linda..I never gave it any thought..but you might be right..especially the average women folk..those with money might have got a look in with a Doc back then.

Electrotherapy via corset for ailments...hmm would make an interesting museum piece..thank goodness ! 

We have come a long way in a lot of ways thankfully.

Ron

[Linda196]

The one I saw was a museum piece, I toured a medical museum somewhere (for the life of me can't remember where, but it was as a student nurse, and that wasn't yesterday) and that was one thing that stood out, along with the "magnetic dimple maker" and the totally exposed cathode ray tube machines for "internal visualization"...x-rays that scattered everywhere in the room!

[beverley]

Thank you - those of England would never have found this without your guidance.  This is just such a simple but thorough description of the disease and its variations.  I have printed it off because I think it's the perfect thing to give people when they ask what it is I'm suffering.

Brilliant!
Beverley

[pudmott]

This is a great article. And easy enough for the average person to understand.  I too am going to print it off and show it to people.

Pud

[KaeleysMom]

Wow - what a great article for a beginner like me.  I can't believe there has only been 200 pediatric cases reported.  I think I'm crazy for thinking Kaeley has this!!!  But then I read that sufferers drink more water than average to compensate for their dry mouth - that is one that fits that I had not heard of before.

Thanks for sharing!!
Karen

[lighthouse33]

Wow - what a great article for a beginner like me.  I can't believe there has only been 200 pediatric cases reported.  I think I'm crazy for thinking Kaeley has this!!!  But then I read that sufferers drink more water than average to compensate for their dry mouth - that is one that fits that I had not heard of before.

Thanks for sharing!!
Karen

And I think numbers like that (200 peidiatric cases) will get the drug companies more interested in doing research for new treatments. The higher the numbers the more interest. Just think how many children and adults are out there undiagnosed.  I was fortunate enough to find a rhuemy that was familiar with Sjogren's but how many people are lucky to live some place that has a doctor like that.

[stephani]

Great Article Thanks for sharing