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Why does it hurt so much to talk about it

Started by kcoffiner, October 07, 2008, 10:53:24 AM

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lynnmarie219

I also tell people it like lupus or MS and that my immune system is attacking my own body.....thats what they relate to better and understand more.....but I do tell them the name so that they actually hear the word Sjogrens! I figure the more we say it and get the word out.....the more people will say....hmmmmmm, I heard about that the next time someone mentions it!

It's all about education!

JannaLee

You are so right Lynnie!  That is a real good idea.

I'll start adding the name to my graphic description!