Could SjS Be Making Me Hypersensitve to Fragrances ?

[SeaBreeze]

Hi...
I was wondering if anyone knows if SjS (MCTD) can cause or worsen hypersensivity to fragrances.
For the last year I have been sensitive to the point I get physical reactions like headaches and irritability.
Lately even the slightest hint of fragrance affects me...
Is anyone else really sensitive like me ? I'd like to hear from you...
Thanks <snif>

[lynnmarie219]

YES.....I experience the same thing, but I wasn't always like this..it has just gotten worse over the past several years! Certain perfumes and smoke REALLY bother me!

The bad thing about it is that it will be fall soon here in Illinois and I love this season....but that also means that there will be more fires in the area and people burning leaves and such which absolutely kills me and make my breathing really difficult!

[gsmraxe]

Hi...
I was wondering if anyone knows if SjS (MCTD) can cause or worsen hypersensivity to fragrances.
For the last year I have been sensitive to the point I get physical reactions like headaches and irritability.
Lately even the slightest hint of fragrance affects me...
Is anyone else really sensitive like me ? I'd like to hear from you...
Thanks <snif>

I have the same trouble.  I actually start to cough and gag when someone around me douses themselves with perfume or cologne.  Ever since my sinuses got so dried out, I'm really sensitive to smells.  Even in the store, if a woman walks by me with really strong perfume, I cough and gag.  I don't wear it myself anymore because then I wouldnt' be able to stand myself.   

One of the guys I works with love KFC chicken.  I can't even go into the office when he's eating it, the smell fills up my nose and makes me gag.  Weird isn't it?

[Scottietottie]

Hi 

With me it's some perfumes - but not all. What really gets me is anything out of an aerosol can. Room fresheners - deoderant0- that kind of thing. I can feel my eyes sting and my throat tighten up if I'm anywhere near them!

Take care - Scottie 

[Billydude]

Me too!   One odd one is that I can't stand the smell of a Christmas Tree.  When I used to work in an office my co-workers thought I was weird because I had such a high sensitivity to the smell of a Christmas Tree.

[Katybarstool]

Me too! I haven't been able to wear perfume or use deodrant sprays or air freshners for thirty years or more. I'm also allergic to conifers, so the Christmas tree is out for me too.

A few years ago, we were running a new campaign at work and having a press launch in London. We had a reception booked in a really smart hotel, and I was doing one of the speeches. We were taken through the lobby into the room and the pollen from what seemed liked hundres of lilies hit me. I couldn't go inthe room until the lilies had been removed and all the windows opened. I just knew I would be so ill, and probably have an asthma attack too. The hotel staff were not impressed

Kathyx

[heyamy]

I wish all perfume and smoking could be outlawed. It started causing me severe problems as soon as I started having symptoms. Curses on perfume!

I use all products with no fragrances. I'm glad they are manufactured now. I imagine it was difficult in the past to find them.

Amy

[annette2]

Same here.  No fragrance anymore.  I have no perfume at all that is not over 10 years old.  And I need to ask people at work to tone it down or change to another scent.  And the spray air freshener they have in washrooms that automatically spritz every 15 minutes AAGH.
Also seems that paint and drywall dust are really bad.  How can we ever redecorate?

Annette

[SeaBreeze]

Thank you for your responses... It's good to know others in same boat.  Do you think its related to our illnesses ?

Its a tough thing to ask people not to wear cologne etc when they see me. Some friends and most co-workers think I am a nut. Well, what I would like to say is "yes, that is true, I am a nut, but I'm a nut that is severely effected by YOUR perfume ! You dope !

I was very very popular at my office in 'cubicle-land' asking people not to wear their fav scent to work ...

I live in an apt complex. I quit smoking 2 years ago albeit 1 or 2 under extreme stress and in my car. People in other apts go onto their decks, close their sliders to smoke and the smoke comes in thru my open doors and windows, meanwhile their apt are fresh and sweet smelling.... most nights its a revolving door out there, 3-4 smokers rotating 3-4 cigs an hour all night long ... I have to keep my AC on May to October... I hate it ...
YIKES... that turned into a rant... Sorry...

[Solmom]

I am with Scottie on this one!! lysol about kills me! And those cheaper versions are terrible. I was in wal-mart and somebody was testing them and I had to leave!

barbara
aka
solmom

[nisha]

Gosh, I never thought about my sensitivity to perfumes being connected to Sjogren's.  Mine started some years ago and has just become worse each year.  If I can't get away from it, it will cause a migraine.  I am glad I read this.

nisha

[qtpie1135]

I am very sensitive to perfumes, aersol sprays, and many cleaning products. It has gotten worse over the years!

[nisha]

Does anyone know why we are this way?

nisha

[eyeamdry]

I cannot wear regular deodorant any more.  I have to buy the kind at the health store.  It's something in the product.  Although I just tied this in with SS ane decided I needed to try something different, the allergy goes back quite a few years.  One huge flareup every year or so wasn't enough to make me suspicious.  After SS, I know now that's what it is/was.
Lucy

[TerriJ]

I have become sensitive to smells over the last few months.  We were in Lowe's the other evening and we were in an area where there are a lot of chemicals.  I felt so awful.  I was almost dizzy.  It felt like I was choking.

I have always been a person who enjoyed home fragrances and the like, but it is getting more difficult to have things like that around.