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Licking my wounds-or what a nice board we have

Started by eyeamdry, August 05, 2008, 04:31:27 PM

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abner

This is the nicest, most considerate board that I have participated in.  It is such a pleasure to be part of it.

I also have symptoms that mimic MS from time to time--mostly rubbery legs--weakness and a lack of coordination.  I was tested up and down for MS about a dozen years ago, and assured that I did not have it.  At the time, they did not know WHAT I had, so I was left with intermittent weakness, coordination, and sensation difficulties.  It's gotten better over time, but just last week flared up again.  Never a dull moment.

kathylee

I AGREE!!!!!!
I now have been tentatively diagnosed with myasthenia gravis..the muscle weakness in my lungs and body have me in very scary place.
at least I now am getting tested and treatment. I'd tried a MG site about a month ago and do not feel comfotable there at all. There is this 'chairman' who comes on and comments..his photo is even scary....! I've felt at the least 'scolded' there a couple times. I am trying a new one that I have been told is nice by an MG foundation person. And while they are ok  so far I am having difficulty with there format...setup. I like all the catagories here. I makes so much sense.  It is very friendly for my frequently fogged and weary brain.

Kathylee

lynnmarie219

kathylee,


I had to laugh when you said the "chairman's" photo is even scary!  :D