Concerned about your weight?

[susanep]

Yes Tamik it does start a bit at a time, but I do feel good about that. It sounds like you are doing really good. Good for you.

susanep

[joi603]

Heres something little that I do for extra exercise...Instead of just standing there brushing my teeth or straightening my hair (WARNING: hold heated product with a strong hand  ) I do leg lifts to the front, back, side, squats and lunges...Hey...why not, right?

[Scottietottie]

Hi 

Good for you joi!

If I did that I'd fall over. I guess i could always hold on to a chair rather than my toothbrush though! 

Take care - Scottie 

[Tamik]

I dance when I brush my teeth!  Forget everything my mother told me  about standing still with a toothbrush...... great time to move!!    I just bought an iPod.... it is now my best friend on my walks and makes them even more enjoyable!  It is amazing how upbeat music can make the body move more!   Tami K

[vicky484]

Oh Yes, I can relate to weight concerns too.  I put on about 80 pounds over 3 years and numerous IV solumendrol treatments.  For MS, my usual treatments are 1000 mg  (1 gram) per day for five days via IV.

The effects of the medrol seem to last for years, not months.

So, I have been methodically decreasing my portions.  It's so discouraging to have so much weight to lose.  I try to keep focused on the short term.

The first 40 years of my life, I worked at gaining 5-10 lbs.  It was hard, believe me.  Neither side is easy.

I wish all of you the best with your efforts.

Vicky

[Billydude]

I know that prednizone can cause you to gain weight.  Is there any other of our usual drugs that can cause weight gain.    I recently switched from Plaquenuil to Cellcept and was just wondering.   As I suffer from depression  weight gain will put me over the edge!!!!   My rhumy says I need to get some exersize.  I'm 6ft and 240 pounds.   I say right....you try to work out when you live in a hot climate and you are heat intolerant and need to avoid the sun.   You try to afford a gym membership when you are barely getting by because of not working as much.  You try to get exersize when all you want to do is sleep from the fatique.
Steve

[Tamik]

Steve,
my biggest form of excercise since I am in Los Angeles for the summer andit is too hot to walk, is turning on music and dancing crazily.....  I find it is fun, plus it works!  Plus, it is free!! Tami K

[missyb]

Well, I'm sure in the boat with everyone who needs to lose, last time i weighed this much, I was ready to deliver a baby..and it is seriously depressing me!  I"ve just blown up like a house the past year (25 pounds) Its bugging me since I've gone to such an extreme different  diet the last 2 weeks. I thought gluten free (no wheat or flour, ie bread) low fat and no meat would make me drop like crazy. but nothing.. If my joints weren't feeling so great, I wouldn't bother  , but I know it is helping me...
Steve, I live in the Phoenix area, and sure relate to the heat. If I can get outside to walk around 5 am, it's nice out. I find that starting the day when it's early and cool kinda makes me stay cooler all day! 
Also I was wanting to ask if anyone ever feels they are retaining mass amounts of water in their tissue? I see and feel it in my arms, thighs and around my upper back.. And do you ever feel like exercise makes you just swell like crazy?
When sjs dries out one area, does the fluid shift out into our tissue or something?
Today I'm starting a cleanse to see if I can pull some of this water off 
missyb

[navydad]

Everyone wants to lose weight,, and I cant seem to stop losing it,,, SIGH,,

[Tamik]

I am now up to fast walking 30 minutes a day on the treadmill, plus working out on the weights another 30 minutes and then stretching for 10 minutes afterwards! I feel great!!  Since my functional medicine doc put me on mass doses of vitamin D (mine was not traceable) as well as a cleanse to rid my body of toxins and some great multivitamins, I have so much more energy!  I have not had a relapse in 2 months -since I started with the functional medicine doc -  that is a record for me!  I am thinking a lot of my issues were related to the low D and B-12 - no telling what else was low!  I am spending the summer in L.A. California and the sun is not even bothering me!  I spend hours in it with my daughter at the pool!   Hopefully you all are still moving! I am fine with my weight, just want to make sure I can keep moving and after not being able to move freely for so long -2 years without dystonia on my right side - now gone, I am really enjoying it!  Tami K

[Scottietottie]

Hi Tamik 

It's great to read such a positive post. It sounds as though you're doing really well. it's so nice that you're enjoying it too.

Keep up the good work!

Take care - Scottie 

[Evenice]

Tami, the smoothies you make sound great, they seem to have all the goodies one needs for Sjoegrens and other AI complaint. I can´t wait to make some and see how they work for me.
Evenice

[JannaLee]

Tami,

What did you do to "Cleanse?"  I would like to give it a try.

Janna

[Tamik]

I take a Biocleanse made by Biogenesis. I get it through my functional med. doc,  but maybe you can order it online.  I take 2 pills capsules before eating , 2x a day.  really easy to do!  Make sure it is OK with your doc before you do it. A conventional doc probably will not support it though.  My functional medicine doc has given me back my life though - a lot more than my rhuemy has done for me.  I still see her though as well so in case I need both one day.  Luckily, she is supportive of my efforts and is willing to work with my other doctor.  Tami 

[Billydude]

I know prednizone can cause weight gain but does anyone know if Cellcept causes weight gain?
Steve