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Elise's Diary

Started by craigmosley, January 02, 2008, 02:10:59 PM

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craigmosley

Elise has had her last MethylPred yesterday...........YAAAAAAAAAAAY !! ;D
Methatrexate still every friday but im being trained up to give that at home.

Only Goblins (once a month) now................maybe we can start relaxing now......

Hydropool this Tuesday  ;D ;D

The Pamidronate has been put on hold for the time being.

Linda196

All good news, Craig, thanks for letting us know.

Who has more fun in the hydropool, dad or daughter? LOL
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Pooh

Oh Craig, it's so wonderful to get good news on Elise.  I hope she has a great time in the hydropool.  I know how much she enjoyed it the last time.  I hope she lets you win this time. ;D

Give her a gentle hug for me and tell her she is doing great.

Hugs and God Bless,
Pooh

lynnmarie219

Thats great news! Thanks for letting us know Craig! And let Elise know we are all still thinking about her!

irish

Craig, It sounds like things have settled down for you and I hope and pray that Elise starts to show signs of remission soon. Such a hard session this has been for you both. Irish ;D

itssue

That's wonderful news!!!  Have fun in the hyropool!  Elise, and I hope you beat your Dad again, sorry Craig, but I'm cheering for Elise.  :D

Gentle {{{{hugs}}} for Elise!!!

Sue

eyeamdry

Elise, I love the pools of all kinds, too.  Your Dad is probably soooo glad he can join you in the pool.  I hope you feel better soon.  Lucy

ktfabian

Elise-

I just got back in the pool, too, though my Dad doesn't get to come with me  ;D (I'm 47).  I love every minute of it.  After I do my exercises, they let me put on a floating belt and just hang in the 6 foot deep part of the pool.  It feel SOOOOOOO good!  I swear I'm at least an inch taller when I get out of the pool.

I'm glad all the the things you and you Dad have written sound like you're doing better.  you're in my prayers and you continue to be my inspiration for being such a strong young lady!

Tracy
________________________________________________
55yo Sjogren's, Fibro, Selective IgM Def., back pain - fused L3/4-L5/S1,  Costochondritis, Achilles tendon tear,  cluster headaches
Plaq, Medrol, Vit D, Arava, Rituxan, Mobic, Evoxac, Tumeric 1000mg daily, Cymbalta, Fiorcet, Klonopin, Soma, pain med.

moonstarr

elise hope you have a great time in the pool and im thinking of you and am proud to know such a brave  young lady like you

Pooh

How was the pool?  Did you two have a good time?  ;D

Hi Elise, hope you are feeling better?  Did you beat your Dad again, or did you LET him win this time? :D

Take care Little One and stay brave, one day you will be well.

Hugs, Pooh

craigmosley

We had a great time...............they even let us have some "free time" in the pool  ;D........

Her legs were going like mad when they told her to splash dad ! :o

Shame its only once every two weeks..............its hard to find a "heated" pool...................but i will keep looking..........

We have Sheffield Hospital Tomorrow...............but only for a quick injection (Methatrexate)......then straight back home.....

I was woken the other morning by the sound of rushing water............ ???
I went into the bath room only to find Elise..............standing at the sink washing her teeth...... :o ???.........she then poddled off to her bedroom as if nothing was the matter................Bless her  :)


Scottietottie

That's great Craig! I know you'll want to -but don't wrap her in cotton wool! Her determination will take her far.

Take care - Scottie  :)
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Never do tomorrow what you can put off till the day after tomorrow!

craigmosley

Quote from: Scottietottie on February 21, 2008, 06:08:14 AM
That's great Craig! I know you'll want to -but don't wrap her in cotton wool! Her determination will take her far.

Take care - Scottie  :)

Thats the hard part !!

Linda196

That's great, Craig!

Once she starts doing more of the little things without thinking about them, there'll be no stopping her.

A lovely heated pool feels so good, I really miss the days when I was there 3 times a week. Now my best opportunity is when we travel, I always make sure the hotel has a pool and whirlpool, and try to get into it when I can. Of course there's that silly old catch 22...by the time I've travelled to where ever the hotel is, I'm so tired I don't get to the pool! :D. Same catch happened with the therapy pool, when I was working and could afford a pool membership, went just for the feel good; now that I could really benefit from it, can't afford it!
Please check out our home page at http://www.sjogrensworld.org/index.html {{INCLUDES A LINK TO AMAZON SHOPPING!!}}
; and live chat at https:https://sjogrensworld.org/index.php?board=30.0

Pooh

Oh Craig,
How wonderful to hear this.  I know how hard it must be to let her go on her own, but don't get her way.  You just might get run over. :D  It sounds like the Elise you want is immerging from her illness. 

This news this morning has made me "cry for happy".  I can't tell you how happy I am for all of you.  Enjoy the little milestones and rejoice in the big ones.

Hugs and God Bless,
Pooh