Elise's Diary

[elise]

I am glad it is over.

Your dad is a Super HERO! So thankful that your Mum and Dad take such great care of you. 

Hugs, kimbo

I don't know what i'd do without them. My legs are still very tender today but they have gone down from being puffed-up.

[lynnmarie219]

And I'll bet mum and dad feel the same way...they dont know what they would do without you either! You sure have a wonderful family...you are all very blessed!


((((((Elise and family)))))))

[elise]

Just having  my immugobulins , I used to be on the verge of crying every time i had it done, but now i'm getting used to it, I worry at first but then at the point where dad puts the mini-needles in, i just get it over and done with.

Once, one of the needle sites leaked. It wasn't funny at the time but It's funny now .

Dad had to take it out and it took over two hours for it all to go in.
My leg was like a balloon!! 

I have started seeing a psychiatrist at the hospital, i didn't like the one i seen before because she talked to me like i was a baby. But this psychiatrist is different, she listens to me and we have a laugh together, she keeps everything i say secret, and tells me some of her secrets. I really enjoy talking to her. She told me to keep a feelings book and write in it every time i feel happy, sad etc.

Having my flu jab Monday, i get to go off school !

my chemotherapy is on the 11th November, and mum said shes taking me trick of treating 'cause my chemos not long after that.

[Scottietottie]

Hello Elise 

How nice to see you again!

Your positive attitude is a lesson to us all. There are quite a few new people in here since you last posted. Good luck with your treatment. I hope one day there will be light at the end of the tunnel!

How is school going?

Take care - Scottie 

[elise]

Schools fine, im full time now, got science exam and maths exam next week.

Been for my chemotherapy today.
Got there half eight, waited an hour for a doctor to come... i'm not complaining , we got sorted at 12pm once before.

Everything went smoothly, but the last hour of the flush... i noticed a white long patch on my arm where my vein was spreading, and I told the nurse, she took my cannula out and we finished at 6.... at half eight we got ONE TABLET sorted, wasn't allowed to go until i got that tablet, and every nurse knows i can only take tablets, and they gave me this medicine in the syringe, it was disgusting, i actually thought i was doing to throw up.  I'm home now though, and that's all that matters I guess x I'll keep you informed what goes off.

[elise]

I've been to the doctors today, because my chest has been feeling tight when i cough and laugh.... and they gave me some Gaviscon to take as needed.

I still feel quite rough and weak. But i don't know if dad believes me.

[kimbo]

Hi Elise,

I hope your feeling better.

Sometimes when I feel rough, I want to squeeze my husbands face between my hands, grit my teeth and says, " I feel like YUCK".   But I don't , I try to understand that others have a hard time understanding.

I like that you journal your illness and feelings. Its a good idea.
I have been trying to journal, also, sometimes I get behind and I try to remember back. Remembering back is not as easy as keeping up.

Hugs, kimbo

[craigm]

Hi All.... Elises dad here..Craig

Its been a while...

well.........all has been good until end of April.....elise is now 19 and just had Cerebal Vasculitis

treatment started June 1st Rutiximab.........no improvement as yet

[Scottietottie]

Oh Craig - so sorry to hear that. Elise is an amazing young woman who has been through so much. We know she's a fighter. Here's hoping she fights this one too!

Thoughts with you - Scottie

[craigm]

Sorry to say...??..

My best friend and Daughter....Elise Amy Mosley.....Passed away on Tuesday the 14th August 2018 at 10.30pm aged 19 years.

Sleep well my Angel xxxxxxxxxx

[Linda196]

Dear Craig, you have my deepest sympathies. Elise was a delightful ray of sunshine, with an incredibly courageous heart. I cherish the lovely little wishing dolls she sent me many years ago.

[Scottietottie]

Craig - I don't know what to say. I'm so sorry. You had the most amazing daughter - wise beyond her years. She always seemed to look for the positive and such a fighter. She helped me put things in proportion as I have never had to contend with the things she has battled and overcome.

Thank you for letting us all know. I'll keep you and your family in my thoughts.

Take care - Scottie 

[Carolina]

Dear Craig,

All my sympathy and love, to you and in honor of your lovely brave daughter.

Hugs, Elaine

[Cheryl]

Craig,
I'm very sorry to hear of your loss.  Elise was (and will continue to be) an inspiration to many of us.  She was blessed with loving parents, and she obviously appreciated and loved you unconditionally.

May God bless and keep you.
Prayers for healing and peace,
Cheryl

[Liz D.]

Please accept my deepest condolences.  My heart is aching!

Liz D.