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Elise's Diary

Started by craigmosley, January 02, 2008, 02:10:59 PM

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lynnmarie219

((((((((Elise)))))))) Thanks for keeping us updated on how you are doing!! We all care about you so much and know that you can do it! Hang in there little one and give dad a big hug....you are both special people and so need each other.


SassieCat

Elise

I sure can relate to how you feel, once you start to feel better you want to go-go-go!  Va-Room and she's off!  :o  I wish this for you too. 

It's nice that your Dad is there for you.  Once my grown up son had to keep going to the hospital for terrible headaches.  I spent my birthday with him in the hospital and he felt soooo bad.  But I'll tell you the truth, it feels good to be needed by  your children.  I don't think there is a time when taking care of my precious little ones made me feel bad.  It does show what a kind and good heart you have to think of others!!!! 

Rest up honey girl, your Va-Room days are probably right around the corner and you'll have sooooo much fun!!! Hugs! ;D

elise

Thankyou all. Yesterday dad went and picked up work from school for me. it is three SATS papers. ive done them already so i've asked if i can have a whole lot next week.
im more weak than  i usually am and i always need help from dad. i feel sorry for him because i bet hes sick of helping me every five minitues. i had my injection last night, it stung but it wernt that bad.

elise

#453
Today i thought i wernt as bad but when dad helps me get up its my back, and my legs feel really heavy.

I feel as if dad is getting sick of helping me because sometimes he just sighs, i dont blame him but i feel down all day then because i feel he is being nasty.

I feel sick but i know im not going to be, its a horrible feeling though.
I also keep getting indigestion and its really horrible at times. it is usually when i want to go to sleep.

All i want is to get rid of everything and be as i were a few week ago.

lynnmarie219

Oh Elise,

I'm sure that Dad is not getting sick of helping you...so please don't feel down. He may be tired some days or not feeling well himself at times...but that does not mean that he doesn't still love you with all of his heart and would do anything to help his little girl. And you will always be his little girl...no matter how old you...even when you're a grown woman...that's just the way it goes with kids and parents....we are always their "little girls".  :)

Hang in there Elise....better days will come for you again! 

SassieCat

Elise,

I'm sure your dad wants you well and healthy too.  He probably feels a little but hopeless because he wants to make things better for you.  But it's true, you're still his darling little girl and the apple of his eye and he is still your hero. 

Sometimes I think when we don't feel well we all have a tendency to be a little down in the dumps.  But you have to remember that once you get down then there is no other way to go but UP.   :) 

You've made it through so much and you can and will make it through again.  Just hang in there!!!!   :-*   Hugs!

SassieCat

Elise,
I have a funny story that I though may bring a chuckle.  I have two cats in the house, Sassie (my siamese) and Weasley (my red hair cat - like in Harry Potter)  I was bored and decided to tie one of their play mice to the ceiling fan in the bedroom.  Weasley is lazy and only wants to bat it, but he bats it hard enough that the ceiling fan moves around too.
Sassie sees the flying mouse and jumps almost 4 feet off the ground to try to tag it, scaring the daylights out of Weasley who is trying to watch the flying mouse and doesn't know why that evil cat is jumping at him.  So he squats down and the next round when Sassie jumps in the air, along flies air-Weasley (not Air Bud) and both cats puff out, collide into each other and take off running like their tale was on fire. 

I laughed so hard, it was so funny. 

Hope that puts a smile on your face!!!! Hugs!

elise

Where do i begin?

Dad took me to the ward because im not getting any better on the 1st feb. a few days after...... i went on the commode and back into bed.... i couldnt breathe so my lungs were going weird and i couldnt breathe. The doctors got rushed to hospital and they injected me to sleep and paralysed me. And put me on a ventilator for a month.

They then drained the water in my body..... my  body were really swollen.
i had a operation, well a few. ....... a massive tube in my neck.(plasmaphresis).. my red cells came out and so did my white cells and i got new white cells. i had a trachy put in. and a tube put into my mouth. 15 days later i woke with a trachy and 2 tubes in my nose. the tubes have came out because im eating normal again. all was going well until today, i got a chest infection. so i have to wait another week for the trachy to come out.


Linda196

Oh Dear Elise, I had hoped that we weren't hearing from you or Dad because you felt well and were busy with your school and life and just didn't have time (and I wouldn't have minded a bit)

I'm so sorry you had to go through all of this, but it sounds as though you've overcome some massive hurdles and are on the road to recovery, again!

Let us know when the trachy comes out, and how you're doing generally. You and Dad give each other a big hug from me and all your SjS World friends.
Please check out our home page at http://www.sjogrensworld.org/index.html {{INCLUDES A LINK TO AMAZON SHOPPING!!}}
; and live chat at https:https://sjogrensworld.org/index.php?board=30.0

harrigan

Hope you are soon better from your chest infection and everything else Elise.  What a horrible time you have had.  I hope you really start to pick up soon and can get out in some spring sunshine and look forward to Easter.  Thinking of you and Dad XX Ailsa
Female, 54
Diagnosed with Sjogrens March 09; Rheumatoid Arthritis February 2010
Meds: abatacept, Methotrexate injections , Folic Acid, Amitriptyline, Ozepramole, Tramacet, Glandosane & Viscotears.

lynnmarie219

(((((Elise))))))

I was hoping the same as Linda...that we hadn't heard from you because you were busy having fun and going to school and doing all kinds of good stuff!

I'm so sorry for all that your little body has been through the past month...you are one of the strongest little girls I know and you inspire me and so many others! I am so glad to hear though that you are slowly on the  mend...if anyone can get better and back to normal (whatever that is....lol) ...its you my dear Elise!

Stay strong...keep smiling and you will be back to your old self soon!

Hugs to both you and your dad....

Katybarstool

Elise

It's lovely to see you posting again. I'm glad you're feeling better than you did, and I hope the chest infection clears soon.

Hugs
Kathyx

eyeamdry

Elise, thanks for writing to let us know how you are.  Dear girl, I hope you get well very soon and will be up and running around in the summer time.

Lucy

Scottietottie

Hi Elise  :)

Welcome back. Wow! What a horrible time you've been having. I hope you beat that latest chest infection soon and get the trachy out. You are a real inspiration you know. You tell us what's been happening to you but you never moan about it. I do so hope the future is kinder to you! (and your Dad. How is he?)

Take care - (((((( gentle hugs )))))  Scottie  :)
http://sjogrensworld.org/   (our home page)
http://www.sjogrensworld.org/chats.htm   (find our chat times here!)
https://kiwiirc.com/client/irc.dal.net  (way to chat + nickname and #Sjogrensworld)


Never do tomorrow what you can put off till the day after tomorrow!

ktfabian

Hello Elise,

I was just thinking of you the other day as I still have your picture that your Dad sent a few years ago on the bulletin board in my craft room. I was hoping that you were doing well and playing with all of your friends and such.  I'm so sorry that you aren't doing those things and that you are feeling so bad.  I hope by the time your read this that the trachy is out and that your chest is feeling much, much better!!!

You continue to amaze me,  young lady, with your strength and courage! You truly are an inpiration to all of us here, and so is your Dad.  You've been through so much and have bounced back with good humor and a strong spirit and I know you will from this current battle, too.
You and Dad and all of your family are in my prayers.  Get well and get your strength back, cutie, and get back to the fun things in your life.

(((((((((((((((gentle hugs)))))))))))))) Share some of those hugs with Dad, ok?
Tracy
________________________________________________
55yo Sjogren's, Fibro, Selective IgM Def., back pain - fused L3/4-L5/S1,  Costochondritis, Achilles tendon tear,  cluster headaches
Plaq, Medrol, Vit D, Arava, Rituxan, Mobic, Evoxac, Tumeric 1000mg daily, Cymbalta, Fiorcet, Klonopin, Soma, pain med.