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Elise's Diary

Started by craigmosley, January 02, 2008, 02:10:59 PM

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jonnell

Hi Elsie hope you are doing good, been thinking about you.  I know all about being stuck in the house,  We try to keep Jenna in as much as possible she gets so sick with the heat and it is so hot and humid here in Jersey.  Hope you are having fun with your dad and family.   Hugs and Kissess   Jonnell and Jenna

elise


kimbo

Hi Elise,

What is Skegness?

Emma sounds like a fun sister.
She is at a tough age, at 16. Life offers so much stuff and at 16 , its hard to sift through all the troubles the world has to offer. Parents have lived it and they really do have advise on cautions.

Glad your able to stand at the door and shout. I have a picture of that in my mind.  :D

blessings kimbo
Diagnosed March of 2007. SJS/ RA Positive at 80  International-SSA strongly positive at 811-SSB 273
ANA positive at 1:1280
Hashimoto's
Gabapentin, propanol, Celebrex, Synthroid, Cytomel, vitamin D, B complex, Omega 3 complex, and multi vitamins; At 62, I seem to be a low maintenance sjog

wordnerd

Elise - I forgot to tell you how glad i am you loved the card!  Hang in there sweetie!  I'm thinking of you :)

<3 Lauren

elise

thankyou you two,

skegness is a holiday place.
today i had my dressing changed for my wiggly, dad did it and had to curl this bit of pipe up again if anyone tugged it, the pipe circle will come loose, not the wiggly itself. he stuck it down and i felt it a little uncomferatable this time. I have also changed my wiggly bag.

There was this plaster stuck to my neck and it is really sticky, i have a big scar underneath, i have always been scared of ripping that off, so i keep soaking it, most of it come off and i was crying my eyes out , dad offered to do it with the tweezers and i said "no". but eventually i got fed up of going slow and asked dad to come and rip it off, he did and i was gripping my legs everytime it hurt.

I looked in the mirror and looked at my neck, there was this pipe sticking out underneath my skin, i was so scared and upset because of the state they've made me, i shown dad and he said " if they did it any deeper then your lung could of collapsed again".  but im still scared, i have been all my life.

I have the hospital tommorrow. we might go in the car or take the taxi , dad and me want to take the taxi but mum wants the car. 
we got a phone call, we have to go to queens medical centre, the nurse wasnt coming because they may as well do it at the hospital, so we've been waiting all day for nothing.   

we dont know why we are going to Queens medical.



Elise x

elise

well last night i was running around the garden playing bat and ball and football and it was great to be active like i used to be, it was so funny because dad threw a tennis ball over the roof and it landed on the front so we ran to the front to see it near the car.. it was sooooo funny! and throwing pebbles at mum whilst she was watering the plants!!  tonight my mum is going out 8:15pm till 12:00am.  Me and dad are gonna watch the whole collection of austin powers, we have crisps and sweets while we eat them! theres this big poufe, a bit like a bed and dad is gonna bring it down whilst mum is out, mum says that we cant have it down but dads gonna do it whilst mom is gone XD. were sneaky like that as you can work out lol.  :P

also, theres swine flu going about my school , about 2-8 causes now so i cant go, there is 2 cases at my big sisters school and i went to the doctors and she said not to worry, at the end of the day, we think that everybodys going to get it , so get on with your life......... so should we be worrying about swine flu or not?

elise x

kimbo

Hey Elise,

You caused me to think of a game we played when I was young.  Called annie over. Kids would split between the back yard of a house and the front yard. With a big ball that you could throw over the top of the house after you shouted ANNIE OVER. then the other side would return it when they shouted ANNIE OVER. Simple child hood memory fun.  :D

I am so glad you had such fun in your yard.

Yeah...... I think I have figured out that you and your Daddy team up in your adventures.   ;)

Swine flue  :-\  These things come and go. But it is wise to be cautious. Best not to worry to much. I am sorry to hear that it is in your schools. So I am sure your mom and dad are being watchful of you.

XXOO  kimbo

Diagnosed March of 2007. SJS/ RA Positive at 80  International-SSA strongly positive at 811-SSB 273
ANA positive at 1:1280
Hashimoto's
Gabapentin, propanol, Celebrex, Synthroid, Cytomel, vitamin D, B complex, Omega 3 complex, and multi vitamins; At 62, I seem to be a low maintenance sjog

elise

thanks Kimbo, ill see if dad will let me play annie over with him  ;D

Poochie

Hey there Little One, it sounds like you and your Dad are having fun.  Just please be careful and don't hurt yourself.

Kimbo, we use to play the same game, Annie Over.  Only we had to give up a team member to the other side if we didn't get the ball over the roof.  The team with the most members usually won.   :D

Take care Elise, I'm so happy that you feeling better.  You really had me worried a while back when you were in hospital.  I hope you have a great summer.

Hugs, Love and Smoochies,
Pooh  XXXXOOOO ;D

lynnmarie219

Hi Elise!

So glad to hear that you are able to get outside and play in the fresh air and that you are keeping dad hopping and active as well!!

I can definitely see that you and dad enjoy the sneaking around behind moms back when you can....that is too funny....but I'll bet she knows you two better than you think.....

Take care my little friend.....enjoy your time off of school!


elise

thanks, thursday we have to go to queens medical centre at 9:00 but setting off at 6:30.
i am going to have some cyclophoxamide and some methyl prednisolone......
prednisolone is 1hour
cyclophoxphomide is 6 hours.

dad is gonna cchange my plaster then to show the nurses to see if its okay.

hows everyone?

elise

kimbo

Wow Elise,

You are a very courageous young lady. I hope you can play video games or something while you endure your treatments.

And Pooh, you helped me remember with Annie over, because we also had to send a team mate to the other side of the house if the ball failed to make it over.


hugs kimbo
Diagnosed March of 2007. SJS/ RA Positive at 80  International-SSA strongly positive at 811-SSB 273
ANA positive at 1:1280
Hashimoto's
Gabapentin, propanol, Celebrex, Synthroid, Cytomel, vitamin D, B complex, Omega 3 complex, and multi vitamins; At 62, I seem to be a low maintenance sjog

jonnell

Hi Elsie been thinking about you, hope you are okay and in good spirits.  Hugs and Kissess from Jenna and me.

elise

thanks, today i am at hospital. i am writing whilst im having medication through a drip.
i am having methyl pred.. 1 hour
then cyclophoxphomade.. 12 hours but its usually six  ??? :-\
i had to get up at half 5 , im sooooooooooo  tired

elise x

Scottietottie

Awwwww

Can you nap while the treatment is going on? Sounds like you could do with some sleep. I hope it all goes smoothly.

Take care - Scottie  :)
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