Elise's Diary

[lynnmarie219]

((((((((((((Elise)))))))))))))

I'm so glad that you were able to type us a note to let us know that you're feeling a bit better! I hope you continue to feel a little better each day so you can go home very very soon! 

[kimbo]

Hi Elise,

Thank you sooooooooo much for your reply to us.

I hope your stay in the hospital is as good as it can be. 
Maybe you can make new friends there.
And I certainly hope you are having a speedy recovery, so you can return home.

Like Bucky said.....There really is no place like home.   

Please keep us posted, if you feel like it. 

Luv, Prayers, and Hugs..... kimbo

[elise]

thanks everyone, i am having chemotherapy today, but just this one drug, just for today,  then a month again, then again in three months.

just scared of loosing my hair. i have been in hospital for three weeks now, well this is the third week. i need to stop over today to make sure im ok with the drug, it makes  you tired and feel sick.........

i am having hospital school-work given to me. i do it all in the same day so they have to send some more. i also got sent a certificate for " the best work in school".

how has everybody else been going on?

elise xxxxxx

[Poochie]

Hey there Sweet Little girl.  I hope that chemo makes you feel better and not sick.  If you lose your hair, you will still be beautiful so don't worry.  Besides, maybe you will get a wig and you can get any color you want.  

I've always wanted pink, or maybe green hair.  You hang in there and those wonderful doctor's and nurses will have you up and out of there in no time.

Say hi to Dad and tell him we are still saying prayers and sending wonderful thoughts your way.  

{{{{{{{{{{Huggles}}}}}}}}}}  The Pooh

[wordnerd]

Hiya Elise,

I'm so sorry you are still in the hospital.  I've been in the hospital for long periods sometimes too and I know it's not fun at all.

I also just started a chemotherapy drug for my Sjogren's (and brain inflammation).  I don't know if it's the same one (mine is Rituxan), but the good news is I didn't loose my hair!  It did make me feel tired and sick, but nothing too horrible.  I hope it goes even easier for you today!

I am so proud of you doing so well in school despite everything you are going through!  You are an inspiration to me!

Stay strong honey!  I hope the new med has you feeling better in no time!

Love,
Lauren

[craigmosley]

Hi all...........................

Lauren..........................its nice to know someone else has been through this......and yes...........it is the Sjogrens that caused it all..........

Thanx to you all for your much needed support.

We are going home today...........yaaaaaaaaaaaaaaaaaaaaaaaayyyyyy.

Elise is loads better and giggles every time you say the word "wiggly"...................its better than "hickman line though......lol

Elise has been in the QMC at Nottingham

[Poochie]

WOOHOOOOOO!!!!!!!
Welcome Home Elise!!!  I am so happy you are home.  I told PoohBear and Paddy you were home and they started jumping around chasing one another up and down the hall.   They get happy whenever anyone comes home.  

Take care Little One and I pray you get to have a great summer without anymore of this stuff.

{{{{{{{{{{{{{{{{{{{{{{{{{{Huggles}}}}}}}}}}}}}}}}}}}}}}}}}

Pooh

[Bucky]

Welcome home Elise!!   

Did those ruby red slippers like Dorothy's work??   

I hope you feel better each day.  Maybe now you can get back to your photography!!     What's your favorite thing to take pictures of now??

Take care and enjoy sleeping in your own bed tonight.      

Bucky

[lynnmarie219]

WELCOME HOME ELISE!!!

[elise]

thanks everyone.
sometime next week i have to have my dressing changed from my "Wiggly"             

i dont like it, it hurts,  underneath there it shocked me to see a big pipe coming out of my skin with a stitch to hold it in place so it dont move or come out.  i have to have it changed once a week.

It's easy for me to catch infections as well with the treatment im having.

Dads like a nurse to me, he does my temperature (we bought one for home to check my temperature for infection)
he injects me every sunday.   he changes my dressing, he flushes my wiggly at home 
to be honest, id rather him do it than  the nurses, i know he will try not to hurt me.

your dogs seem very clever, jumping when you say things good.
hows everybody else?



Elise xxxxxxxxxx

i love him to bits.
a doctor saud "good boy" to me. im a girl!! so me and dad joke about it saying good boy to me, i say good girl to dad.
No more hospital for a month, YAAAAYYYYYYYYYY! 

[wordnerd]

Yay Elise I'm so glad to hear you are home!

I've had a "wiggly" too.  It is weird to see them sticking out like that!  But I think I preferred having it to being poked for new IVs all the time.

How are you feeling on your new treatment?  I think we might be on the same one, so I'm very curious to hear.

Take care honey bunch!

Love,
Lauren

[elise]

thanks,

i am feeling a bit tired and a bit frustrated because im not allowed many visitors because im proned to infections easily, we cant go nowhere or do anything because i have nurses to come round, doctors and things like that. i have to keep rubbing my hands with disifectent that doctors use that  rub into your hands and kill germs. i asked dad if i could have a bottle for myself (he has loads) and he not let me  dad bought an ear thermometer to keep track of my temperature so he knows if i  have an  infection or not. i enjoy playing with it , in peoples ears 

did your wiggly ever feel uncomfortable or feel like its moving, or move? mine feels like that all the time, its frustrating me, its sent me a little bit paranoid of people banging it or touching it and it always lingers  on my mind. but now i am poorly it means i get what i want 


elise xxxx     

[Poochie]

Hi there kiddo, I sure hope you are feeling better. 

It's no fun being in hospital for so long.  I thought you were going home?  Did something happen? 

I know how you feel with the "wiggley".  I once had to have these stainless steel "stop cocks" in both my arms at the inside of my elbows.  (couldn't bend either arm) This was a long, long time ago before they had the canula's.  I was on a blood thinner for a blood clot and they couldn't stick me every 4 hours with a needle because it took that long to stop bleeding.  So these were placed so the nurses didn't have to use the needle part of the syringe.  They just opened the "stop cock" and screwed the syringe right onto it.  It's great that medical care has come a long way since then.

Take care "Ms Wiggley",  Good job you are doing and that Dad of yours is very special. 

{{{{{{{{{{{{{{Huggles}}}}}}}}}}} The Pooh 

[elise]

haahaa, i bet that hurt then pooh!!    i am home not in hospital, i was saying when i was in hospital, when i was in hosp they woke me up in the middle of the night to take my observations!!!

so distractiong and annoying, most nurses just do it whilst i am asleep but no  Carley had to wake me up  How daree she disturb my beauty sleep!!!

How're you Pooh? And Hows Your Dogs?

[wordnerd]

Hi sweetie!

Fortunately my wiggly never felt like it was moving, but it was uncomfortable sometimes... felt irritated or itched around it sometimes.

Sorry you can't have many visitors!  I know it can get lonely and boring sometimes... do you have a webcam that you can use to chat with your friends who can't see you in person?  I do that when I'm too sick to see my friends. My friends even kept my company via webcam during my last Rituxan infusion!  (Check with your dad about it first of course.)

I'm so glad you're home where you can get a decent night's sleep!  So hard to get sleep in the hospital sometimes lol  *hugs* 

Love,
Lauren