Elise's Diary

[ktfabian]

Craig,

Thanks so much for the update.  The news is wonderful!

I'm sorry you're bored, but I bet it's the best reason you've ever had for boredom.

Take care and please give Elise a big hug from me as well. 

I've been keeping all of you in my prayers for continues good days and quiet nights,
Tracy

[lynnmarie219]

Hi Craig and Elise!


Thanks so much for the update and I'm glad that Elise is doing so much better!

Hugs to you both! 

[elise]

I have been 2 skeg for the weekend
did you all enjoy the weekend ? xx
i am really sore from the sun  :D:D
 
love from elise xxxxx
P.S i cant wait for meeting ben my brother lol never met him
xx

[Scottietottie]

Well hello Elise! Long time no see! I'm glad you had a nice weekend. Do be careful of the sun. Unfortunately it can make people with Sjogren's feel quite bad. You make sure you get your Dad to rub sunblock on you nad buy you a nice floppy hat!

So when do you get to meet your brother then? That's exciting news!

have a lovely summer - take care - Scottie 

[craigmosley]

Hi all..............

Had trouble with Elise's portacath..............couldnt take bloods from it so they have decided it may as well come out......Elise is pleased 

She has had another weekend at the seaside.............she loves the hot dogs, candy floss, fish and chips, ice cream, dough nuts............lol
going again next weekend............a bit too cold for the beach but she had a paddle

[Shari]

How  far away is the seashore??

I grew up on the seashore and just loved it.  I visit often now.

Take care ~~Shari~

[lynnmarie219]

It sounds like a wonderful time at the seaside to me! Lots of fun and good food!!

[Pooh]

Oh Craig, I'm so happy to hear she had that cath removed.  I just know she is happy about that.  So glad to hear she is having a good time at the shore.  Like Shari, I grew up on the ocean shore.  That ocean water is always cold, at least to me it is. 

Tell our little one, to have a great summer and stay well.  Don't overdo it on those sweets though, but do have fun. 

Hugs, Pooh

[craigmosley]

Here's one for you !!

iv had psoriasis for a number of years now and had creams for it.
I went to the doctors yesterday and explained the problem im having with a stiffness in my elbow.........(iv had this for 4 or 5 months and it strarted getting worse)
" You have arthritus" he said...."its connected with the psoriasis......very aggressive and spreads fast........its an auto imunne problem"...........my jaw dropped........

Does this mean that i am the reason Elise has it ?..........im shocked at the thought as you can immagine.

I got in the car........close to tears all the way home at the thought of me being the reason Elise has this problem.......

When i told Elise.....................She burst out laughing  ..................."Im just like you dad" she said............i couldnt help but laugh................

I feel terrible though

Looks like i will be joining Elise with the Methatrexate injections................"i will do your injections and you can do mine dad!" she said.................bless her....................

[genko_b]

Wow Craig!

Well welcome to the club - the club of families with AI. There are many of us out there.

And good for you Elise, for setting your Dad straight on things. There is absolutely no blame to be had here. Just remember you are both so fortunate to have each other for company, believe me.

Take care and let us know how you are doing. The only question I have is, shall we rename this string "Elise and her Dad's Diary," or should you have a separate string now that you have your own diagnosis? These are the big questions. . .

Wishing you both well and a happy summer together.

Genko

[Pooh]

Craig,
My mother had RA and I'm pretty sure Sjs, but it was never dx'd.  I don't blame her for my problems today.  Elise doesn't blame you, so don't blame yourself. 

This was not something you could control.  Follow Elise's attitude and deal with it like she does.  If it were possible (but I don't think it is possible) it will probably bring you two closer. 

Tell him Elise, he's a great Dad and he has nothing to feel guilty about. 

Take care you two, and remember we are here for you.  I hope you feel better Craig, you have a great little gal there. 

Hugs and God Bless,
Pooh

[eyeamdry]

Craig, I've been diagnosed w/Sjogrens for almost two years now.  Didn't realize I had psoraisis until just recently.  It was limited to one small rough patch on one elbow.  All of a sudden the bottom of one foot is all itchy and broken out.  Guess what?  Yep. Says the dermatologist.

I really enjoy reading Elise's diary.  You have some girl there, and she has some Dad.  Now you can share meds. 

Lucy

[Berly64]

Craig

It is very interesting to me that your elbow started getting stiff.  I have had the same thing for months with no explanation.  I have been putting it off, because I am working threw trying to get a confirmation that my 9 year old daughter has Sjogrens. 

I also share the feeling of wondering if I am the genetic reason my daughter is having issues.  It seems as her issues have mounted over the years I trace them all back to me.

It is wonderful to read how you both support each other and have such a close relationship. 

Kim

[craigmosley]

I think it will be a long time before i get a possative confirmation................but i agree..........it gets you thinking.

Had my bloods yesterday...................X-rays today...........10 days before i know anything.

Elise is having a "Beach party" at school today...........this will be her first full day !

Iv been told of a new study starting up for Sjogrens sufforers...................Elise had some bloods sent to London for a sort of Data base for the condition................its not just for UK Sjogreners..........it is going to be a world wide study..........

[Pooh]

Hi Craig,
Glad to hear Elise is back full time and it sounds like she is enjoying herself. 

That's promising news about the Worldwide study in this disease.  If you hear anymore let us know. 

Pooh