Elise's Diary

[elise]

Hello Elise here,
when dad carries me upstairs, i walk up 2 steps 

Hope you are all doing well
thanks for supporting me.
last of immunoglobolins 
take care 
love elise xx 

[YICKelly]

Hi Elise.  I'm fairly new here, so you don't know me yet.  I am so glad to hear of your improvement!!  Walking up 2 steps is sooooo much better than walking up none!  Keep working, but don't over do, and soon you will be walking up 4 steps.  Thanks so much for keeping us up to date on your recovery.  (((Hugs))) to you and your family.

[Shari]

Just popping in to say, "Hi" Elise!

~~Shari~~

[lynnmarie219]

YEAHHHHHHH ELISE!!!!!!!!   


Thanks for the update! We all LOVE to hear such great news!!!

[itssue]

Hi Elise,

You are doing GREAT!!!   I am so proud of you.     Keep up the good work, be patient and before you know it you will be climbing all your steps.

Keep in touch with us,

Lots of hugs for ((((((((((((((((Elise)))))))))))))))!!!!  Tell Dad Hi too!!!

Sue

[Pooh]

Hi Elise,
I've missed hearing from you.  I've been off for a while, but I'll be back soon.  I am so glad to hear you are doing those stairs.  Don't rush it, take it one step at a time. 

Get Dad to give you a big hug for me.  I think of you often and I hope you have a terrific summer. 

Hugs and Love,
Pooh

[ktfabian]

Hey Elise-

I'm SO glad to hear things are going well for you. 

I also wanted to tell you again, thank you for my little Angel.  She's working overtime right now as my son gets ready to leave for Iraq.  But every time I start to worry, I visit my Angel, and I think of how well you are doing now, and I know that everything will be alright.

You keep getting stronger, Elise. You're an inspiration for all of us!

Tracy (ktfabian)

[Pooh]

Hi there Little One, how are you doing with those stairs?  We miss hearing from you. 

I hope your summer is filled with all the wonderful things you missed last summer when you were so very ill.

Take care and have a great summer.

Hugs, Pooh

[craigmosley]

Hi all.............
all seems to be going well..........the Methatrexate seems to be working for the JDM and Sjogrens............we have a scan on Tuesday and if all is well the Porta cath can come out............YYYYAAAAAAAAYYYYYY......

still on 2 steps but her movement is getting much better

I will keep you all informed................Take care xxxx

[genko_b]

SO GLAD to hear Elise is doing so much better. It has really made a difference to so many of us.

Onward and upward - next is three steps!

Genko

[Pooh]

Thanks Craig for the update on our gal.  I'm so glad to hear she may get that portacath out.  That will be a huge step forward. 

Give her a hug for her all "adoptive" aunts and uncles here at Sjogren's World.  I hope the progress is all forward, with no looking back.  She is such an inspiration to all of us.   

Good luck,

Hugs and God Bless,
Pooh

[Berly64]

Elise and Craig,

I was directed to your posts because I have a 9 year old daughter and it is suspected that she has Sjogrens.  She went in for a simple eye exam and came out with this possibility.  She has had urinary, skin and gastro issues since infancy so in some ways I am glad to have a direction to look into.  She doesn't have severe issues just a lot of irritations and we are treating them all with over the counter items.  We are in the process of finding a physician to treat her.

She wanted to know if there where any other girls out there with this same issue so I am glad I stumbled onto this site.   

Thanks
Kim

[craigmosley]

Hi Kim.................Elise has had it all...........and more besides i think.
Please feel free to ask any questions that may be bothering you....................i had loads when she first became ill with Sjogrens................

Finally got her back into school YAAAAAYYYY !........lol............afternoons at any rate.......im bored stiff now though.my play mate is missing  ..................

Stair lift has been fitted............and "boy" is it getting some use............"I wil fetch it dad"..........lol

[craigmosley]

Update..............

Stair lift has been fitted...................she loves it 

Had the dining room knocked into living room so Elise has more room , ahd easier for her to get around.

Her laptop has packed in and is at the menders..........

She's only on 4mg Pred now and doing well...............

She goes every afternoon to school now............iv never been so bored in all my life  but she seems to enjoy it)

Her wheel chair stays in the car now.....................she only uses it for long distances..................i had one of those old fashioned horns fitted..........the ones with a big rubber ball on the end that you squeeze to make it "Honk".........it was great going round the supermarkets............"Make way..........."HONK HONK"........COMING THROUGH !"...........LOL

Elise says "Hi" to you all and is looking forward to getting her laptop back..................

[Pooh]

HI Elise and Craig,
Oh my I bet you do miss her.  But isn't it wonderful she has come so far.  I looked back at last summer's posts and WOW! what a difference.  I pray all goes well and she continues to improve.  Now that she is out and on the go again, we shall miss her too. 

Take care Elise and have a fun, fun summer. 

Hugs and God Bless,
Pooh