Any members still here from 10 years ago onward?

[bluegardenia]

i am still here also, more or less the same a part new pain on my left knee and some blood exams not so good. usually I have a look on internet to see what does it mean but I am scared so I wait to see my doctor on the 29. take care everybody

[Judie P]

Hi, I am Judie P. also known as "Sjoggiemama" on chat.  I think I started with Sjogren's World in 2016 when I was diagnosed with Primary Sjogren's by a nurse practitioner and blood work (ANA plus SSA through the roof).  She suggested that I "Dr. Google" websites where I could talk to others with the same condition.

I am in my early 70s now so it is hard to figure out what is a Sjogren's flare and what is not.  I had extensive neck surgery in December 2022, and now have 12 screws and 2 rods in the back of my neck.  The neurosurgeon and my regular doctor thought the bone spurs (arthritis) might have something to do with having Sjogren's.  They were crushing my cervical spinal cord.  I could not take any anti-inflammatories for a year, and I know that my lower back began to really hurt (stenosis there, too) and I could do nothing about it. 

My main symptoms with PSS is digestive.  If I stress, my lower back nerves and digestion get really bad and I cannot stand up straight and walk for days cause I am very stiff and have muscle spasms.  Otherwise, I am pretty used to having Sjogren's now.

I am working full time plus volunteering for genealogy society and founding non-profit organization to preserve an old cemetery in Northern California.  So, I don't get on the forum very often.  When I did, it was a huge help for the first five years.  I no longer felt alone and it answered many questions for me.

Hugs!

[Deb 27]

Hi, I got diagnosed in 2012 and I am unsure how long I've been on the forum but I think it's about 10 years. Like many others, I was more active in the earlier years. About 5 years ago, I got diagnosed with diabetes and my husband was diagnosed with an auto immune disease two years ago. I've been so busy that I just don't get on here like I once did. My diabetes has taken front stage for my attention. The squeaky wheel gets the oil. There is a lot of great help here and the people are also very kind. I used to sign in more in the evenings and now I usually fall asleep early. Greetings to everyone.