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Myositis

Started by vrystaat, September 04, 2020, 10:17:41 PM

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vrystaat

September 04, 2020, 10:17:41 PM Last Edit: October 02, 2020, 10:54:09 AM by vrystaat
Myositis can be a crippling & painful disease accompanying Sjögren's Syndrome.
It is not widely known that Sjögren's Syndrome patients can develop Polymyositis and rarer forms of this disorder, such as Inclusion Body Myositis.
Most of them, but not all, respond to immune-suppression.

I developed Inclusion Body Myositis after suffering over 30 years of Sjögren's Syndrome and Peripheral Neuropathy.

Believe me, it's heck.





Sjogrens;Polymyositis;Polyneuropathy;Gastritis;GERD, Autonomic Neuropathy, Neurological complications, Trigeminal Neuralgia,Gamma 3 globulin low;Multiple infections;Brain fog; Ocular problems - blepharitis, scleritiis, dry eye,severe eye pain. Possible Inclusion body Myositis.Currently Endstage

Robi5

#1
September 10, 2020, 01:58:57 PM
Thanks for posting this information.  Looking at the symtoms, it seems similar to what we already experience in normal Sjogrens right?  But just more severe and concentrated? 

I think the overlap might be the reason these additional diseases and conditions get missed.  I already have GERD and raynauds, and this condition keeps adding more things.

Its really good to know though so that we can get tested for these things and get proper treatment.
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