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Asking for Help on a Stats Project still looking for 13 responses

Started by ghostkiwi, March 18, 2020, 12:42:49 PM

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ghostkiwi

Hello everyone!

I moved back to the states and I?m back in school. I?m in a statistics class. Unfortunately due to coronavirus, my classes are all online now and I can?t venture out to collect data for my project. So I thought I?d ask you guys, if you could help me and I can post my findings so we all learn something about our disease. I welcome as many people to respond as possible, but I need at least 25 people. I?m excited to learn the results and it?s something fun to do while we?re quarantined.

I need:
1. Your gender
2. Your ethnicity(you can specify more than one ethnicity if applicable)
3. The number of years it took to be formally diagnosed with sjogren?s by a doctor(Estimate as best you can)
4. The number of doctors you saw looking for a diagnosis of your symptoms before being formally diagnosed with sj?gren?s by a doctor.

If you have any questions please let me know!
Thanks in advance!!
30years old, Sjogren's, Syncope, chronic parotitis, Anemia, Pinched nerves in Neck, arthritis, Plaquenil, Methotrexate, Evoxac, Triamterene-HCTZ (for potential Meniere's Disease), Vitamin B 5, Iron Supplements, Restasis, Lotemax, artificial tears, traumeel, arnica

Linda196

Excellent and inventive use of isolation time!

I understand that, as statistics, you can't post this in the form of a poll, becaues you need more precise numbers, so, how would you like to receive responses, as replies or as personal messages?

Posting your findings at completion is a nice touch, thanks.
Please check out our home page at http://www.sjogrensworld.org/index.html {{INCLUDES A LINK TO AMAZON SHOPPING!!}}
; and live chat at https:https://sjogrensworld.org/index.php?board=30.0

ghostkiwi

Replies or personal messages are ok! Which ever individuals feel the most comfortable with.
30years old, Sjogren's, Syncope, chronic parotitis, Anemia, Pinched nerves in Neck, arthritis, Plaquenil, Methotrexate, Evoxac, Triamterene-HCTZ (for potential Meniere's Disease), Vitamin B 5, Iron Supplements, Restasis, Lotemax, artificial tears, traumeel, arnica

Carolina

It is possible to set up an actual poll with your questions.  The numbers will tally as people answer the questions, as well.

I don't know how it's done but someone here knows.

Regards, Elaine
Female-Elaine,83-CVID-pSJS-WMD (Eylea)-COPD-Inter. Cys-PN-CAD-Osteoarth-SFN-Erythromelalgia-SIBO-PMR-Adrenal Insufficiency-Hearing Loss-Achalasia-Bacteriurea-Power Chair-IVIG Gamunex 50 gm-Medrol-Wellbutrin-Buspar-Gabapentin-Atenolol-Salagen-LDN-Lipitor-Premarin-Nexium-Om.3-Repatha-KLOR-CON-Maxide

ghostkiwi

Unfortunately, the poll only seems to allow me to ask one question at a time with 5 predetermined options of answers, but I?m asking 4 joint questions(the questions are paired together with an individual) with possibly more than 5 options of answers.
30years old, Sjogren's, Syncope, chronic parotitis, Anemia, Pinched nerves in Neck, arthritis, Plaquenil, Methotrexate, Evoxac, Triamterene-HCTZ (for potential Meniere's Disease), Vitamin B 5, Iron Supplements, Restasis, Lotemax, artificial tears, traumeel, arnica

Linda196

1. Gender- female
2. Ethnicity- Irish
3. time from onset of noticible symptoms to formal diagnosis- 6 months
4 Doctors seen before diagnosis- 3: optometrist, GP and Rheumy
Please check out our home page at http://www.sjogrensworld.org/index.html {{INCLUDES A LINK TO AMAZON SHOPPING!!}}
; and live chat at https:https://sjogrensworld.org/index.php?board=30.0

Kathy57

I?d like to help:

Gender:  Female
Ethnicity:  Irish and German
Number of years til diagnoses:  about 3  but I?ve had symptoms well over 10 years
Number of doctors seen:  Internist (2), ENT (4) Oral Maxillofacial Specialist (1)  Gastroenterologist (1)
                                      Allergist/Asthma/Immunologist (1)  Optometrist (1)  Ophthalmologist (1)
                                      Rheumatologist (1) Dentist (1) Also a couple of ER visits

I hope this helps,

Kathy
66 yr old female - Diagnosed Sjogrens Aug. 1st 2014.  Plaqinil, Evoxac, Prevacid, Lexapro, Hypothyroid, Esophagel Reflux, Gastritis, Barretts Esophagus, failed sinus surgery with 3 nasal septal perforations, Chronic Bronchitis, Asthma, albuterol, Breztri,  Osteoporosis,

ghostkiwi

It helps a lot! Every bit of data paints a picture. Thank you!
30years old, Sjogren's, Syncope, chronic parotitis, Anemia, Pinched nerves in Neck, arthritis, Plaquenil, Methotrexate, Evoxac, Triamterene-HCTZ (for potential Meniere's Disease), Vitamin B 5, Iron Supplements, Restasis, Lotemax, artificial tears, traumeel, arnica

Liz D.

Gender -  Female
Ethnicity -  American with Italian and Scottish background
Years to Diagnosis - About 4 years
Number of doctors seen before diagnosis - at least 8 that I can remember.    2 Family Medicine doctors, 1 Internal Medicine doctor, ENT doctor, ophthalmologist, dentist, chiropractor, then finally a rheumatologist to get diagnosis.  And an ER visit in there too.

Hope this helps your study.

Liz D.
60 year old female
Sjogrens Syndrome (diagnosed 2004), Hypothryoidism, Asthma, Osteoporosis
Meds:  Plaquenil 200 mg; Levoxyl 100mcg; Evoxac, Symbicort, Flonase, Protonix 40 mg.,  Prozac 40 mg. Naproxen 500 mg., vitamins, calcium, flaxseed/cod liver oil, L- lysine, iron

Sweetcheex76

Sjogren's, Trigeminal Neuralgia, Reynaud's, Fibromyalgia, osteoarthritis, ocular rosacea, rosacea, endometriosis, ADHD, anxiety, depression, pre-diabetes.

Plaquenil, Cevimeline, Restasis, Metformin,  Vyvanse, Xiidra, prescription ibuprofen, Vitamin D

Joe S.

1. Male
2. German, Swedish, Norwegian
3. More than 7 years, I think 12?
4. 6 doctors and lots of referrals for additional tests.
bkn C4 & C5, herniation's 7 n, 5 t, 4 l, Nerve Damage
Lisinopril, Amlodipine, Pantoprazole, Metformin, Furosemide, Glimepiride,
Centrum Silver, Cinnamon, Magnesium, Flaxseed, Inositol, D3, ALA, ALC, Aleve, cistanche
Reiki, reflexology, meditation, electro-herbalism

Confused

What school are you attending??

Is your school accepting any work on line for credit?  Many are not.

What year are you in?

Thanks

angeldancer

1. Female
2.  Black and Indian (Cherokee)
3. Approximately 20 years
4.  about 11 doctors if i include ENT
eagles flight//

Sjogrens, Arthritis, colonrectal cancer survivor, Diverticulosis, fibromyalgia, chronic sinus, chronic pain, kidney stones,  chronic allergies, digestive tract issues, norco, plaquenil, ativan, ambien, lyrica, claritan, neuron tin, celexa,predinisome,

SjoDry


Jasper

1) Gender:  Female
2) Ethnicity:  German, French, Czech, Swiss, English, Scots, Dutch
3) Number of Years to Diagnosis:  20 years  (from first noticeable manifestation which was Systemic Vasculitis with Pericarditis, Pleuritis, and Hemolitic Anemia)
4) Number of doctors seen while looking for Sjogren's diagnosis (underlying cause of Systemic Vasculitis): Total of 12 doctors seen   ( 2 Family Medicine, 4 Internal Medicine, 2 ENT, 1 Optometrist, 1 Dermatologist, 2 Rheumatologists)
ANA 1:160; SS-A+; MSG +; Plaquenil, Rituxan infusions, Restasis, HRT, Curcumin, Calcium, CoQ10, NAC, Resveratrol, Whole Omega, Omega 3, R Lipoic Acid, Acetyl L Carnitine, Krill Oil, Mag. Threonate, Bio-Collagen UC II, NAD+, & Vit A, B, C, D, E, K 1 & 2.