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Sjogrens groupings -- there are four

Started by SjoGirl, January 13, 2020, 04:58:24 PM

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SjoGirl

Raynauds, sero-negative RA, Primary SjS, osteopenia, degenerative disc disease, disc protrusions,stenosis, Carpal tunnel,  poly neuropathy, myoclonus, hiatal hernia, esophagitis, viral infection, Leukopenia. Restasis, Vitamin D, B12, Evoxac, Lanzoprezole, calcium acetaminophen.

Joe S.

Wow, Statistical Analysis of Symptoms, an Artificial Intelligent approach. Now maybe we will start to see effective treatment models from the medical establishment.
bkn C4 & C5, herniation's 7 n, 5 t, 4 l, Nerve Damage
Lisinopril, Amlodipine, Pantoprazole, Metformin, Furosemide, Glimepiride,
Centrum Silver, Cinnamon, Magnesium, Flaxseed, Inositol, D3, ALA, ALC, Aleve, cistanche
Reiki, reflexology, meditation, electro-herbalism

irish

Dome people finally figured out how many of us there were and how significant out disease process is. Some things take longer than others. Thanks. irish

Maria3667

At last some progress is made into a better classification of our syndrome!  :) Although I feel there still is no universal consensus as the biological cause & manifestation can be so hugely different.

Also none of these categories fit me.

Quote:
"This resulted in four subgroups, which the researchers dubbed: low symptom burden (LSB), high symptom burden (HSB), dryness dominant with fatigue (DDF), and pain dominant with fatigue (PDF)."

I feel my category should read: dryness & pain dominant high symptom burden. So rather a combination of 3 out of 4 than a single one.

Thanks for sharing!
54. DES-daughter ('67), Lyme's ('98), GAD ('98), Sjogren's ('02) - changed to Sicca ('20), hypothyroid ('04), endometriosis ('14), osteoarthritis ('16), blepharitis & MGD ('18), Pilocarpine, thyroid meds, 12.5mg quetiapine. Allergies: sodium hydroxide, nickle, methylisothiazolinone, latex

araminta

Thank you for posting this link, Sjogirl.

I've always felt there are different manifestations of this disease, for instance I can still cry tears (!) and still have some saliva, however I have sore eyes with MGD, dry mouth at night, a lot of fatigue, and all sorts of other dryness symptoms.

Let's hope this is the beginning of some better research and treatment.
Dry eyes (MGD), nose, mouth, occasional labyrinthitis,  dry skin , mouth ulcers, constant but fluctuating fatigue, IBS.  Blood tests and Schirmers negative,no Sjogrens dx yet.   Omega 3 algal oil, multivitamins, Evolve eye drops, Xailin eye ointment,  moisturiser (Instituto Espanol 10% urea).