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Trigeminal neuralgia or atypical face pain

Started by happylife, June 08, 2018, 09:55:56 PM

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happylife

Please share more details if possible.

Navigator

My very first flare involved excruciating pain along the back of my head.   For a few days.  The doctors were stumped and I had multiple tests. Eventually they diagnosed SJS.   It went away by itself.   I was left with some hearing loss.  Since then I occasionally have teeth that ache for no reason.   Or a spot in the back of my head that will flare up when a flare is coming.
Hashimotos thyroiditis, Primary SJS, IBS, autoimmune hearing loss, leucopenia, arthritis,asthma.
Synthroid, Plaquenil, Crestor, Evoxac,Vit D , Fish Oil, Restasis, Daily Walking, Sleep, Baby aspirin, Probiotic, avoid gluten,dairy and sugar, hearing aide, gratitude, big dog

Nomad

I replied but it was removed or disappeared.

I developed atypical facial nerve pain involving the trigeminal nerve a good five years ago after dental work.

SLE, Sj.  Syndrome, IC, Atypical Trigeminal Neuralgia, ITP (low platelets)... Various meds and lots of vitamins. Trying to eat healthy; seems to help a little.

happylife

Hi nomad

Do u have atypical face pain only? Or has it changed into trigeminal neuralgia?

Nomad

Although at times it still can be severely painful and does involve the trigeminal nerve,
I would still think it would be classified as atypical.
SLE, Sj.  Syndrome, IC, Atypical Trigeminal Neuralgia, ITP (low platelets)... Various meds and lots of vitamins. Trying to eat healthy; seems to help a little.