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Fatique frequency

Started by happylife, April 10, 2018, 03:53:18 AM

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happylife

Please participate and lets see how many of us face the fatigue as a sjogren symptom.

araminta

Hi Happylife, I've just replied to your personal message about symptoms, however none of my messages seem to show up in my Sent box, so I hope you receive them.
Dry eyes (MGD), nose, mouth, occasional labyrinthitis,  dry skin , mouth ulcers, constant but fluctuating fatigue, IBS.  Blood tests and Schirmers negative,no Sjogrens dx yet.   Omega 3 algal oil, multivitamins, Evolve eye drops, Xailin eye ointment,  moisturiser (Instituto Espanol 10% urea).

Kristina09

Yes I suffer from fatigue, some days I can not participate in any activities. All I can do is move from the bed to the couch, shower and back to the bed or the couch, feels like the flu with no other symptoms or any activity that I had energy for is quickly used up and I suddenly become very tired.

Carolina

Dear happylife, you are full of curiosity!

I do have fatigue every day, not from doing a lot of stuff, but as part of my 'conditions'.  Today I have both fatigue and pain, and maybe also depression.

I can't understand why I'm having pain, since I have good pain medication (low dose Naltrexone) and don't get sick anymore.

Of course, I'm always trying to figure out WHY I feel the way I do.

Maybe I will be better tomorrow.

I was going to exercise at the fitness center, but since I feel so bad, I think I'll wait until tomorrow.

I hope everyone else is feeling great!   

Hugs,  Elaine
Female-Elaine,83-CVID-pSJS-WMD (Eylea)-COPD-Inter. Cys-PN-CAD-Osteoarth-SFN-Erythromelalgia-SIBO-PMR-Adrenal Insufficiency-Hearing Loss-Achalasia-Bacteriurea-Power Chair-IVIG Gamunex 50 gm-Medrol-Wellbutrin-Buspar-Gabapentin-Atenolol-Salagen-LDN-Lipitor-Premarin-Nexium-Om.3-Repatha-KLOR-CON-Maxide

WhatYouSjo

What is the definition of fatigue you are using here? I never feel as energetic now as when I was healthy, but I only experience the 'I can't bring myself to do much of anything' level of fatigue during flares and illnesses.
Seronegative male diagnosed 2014. Using generic Plaquenil, Restasis, Xiidra, low-carb diet, moderate exercise, select supplements, helminthic therapy, & LDN. My treatment regimen

My website has posts on research and news.

bluegardenia

also for me its difficult to define my fatigue. everything slowly changed  in the last four years and also energy. in my opinion for what concerns me its stress, lack of relax. all the normal things are no more normal.im stressed when i eat because im afraid to get strangled, im stressed when i go to sleep because i have to sleep on my side because of sleep apnea while i slept for sixty years on my back, so i go to bed with tennis balls around me that should keep me in  right side. im stressed by mucous that makes so difficult to rest at night, im tired from peripherical neuropathy, from tendinitis , etc. and years are passing and i do not go towards  youth but the other side. may be there is also fatigue from sjogren but i do not want to think about, not yet, its sad to accept that i can do less things. in fact, looking around me and looking to what we are living in the world i wonder what is NOT sad
60,primary sjs, diverticulosis,ibs,atrioventricular blocks 2 degree first type, acid reflux.
omeoprazole, vit c, flack seed, omega 3, b complex, nac,systane ultra, pineapple seeds

trejonina

Hi there , Carolina 09 is exactly how I fee, except I had a dry,non mucous cold, which felt like influenza and it has left everyone( I'm the only Sjoggie), crawling our way around, soo tired.

trejonina

Correction I meant Kristina 09. Brain fog too.

lorigacc

A kind of fatigue that you just can't describe....and the brain fog too. Lately, been adding memory problems to the list ::)
Secondary Sjogrens, Rheumatoid Arthritis, Antiphospholipid Syndrome, Osteoporosis, Vertebral Compression Fractures, Seizure disorder, Neuropathy
   Plaquenil, Methotrexate, Gabapentin, Prinivil, Amlodipine, Folic Acid, Fish oil, Vit D, OsCal, Align, Ecotrin, Zantac