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Hemifacial spasms?

Started by MAT51, October 25, 2017, 12:36:01 AM

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MAT51

I seem to be developing more and more neuro features with my seronegative Sjögren's. For ages now I've been having spasms in my eyebrows and upper cheeks. I asked my optician but he was dismissive and said just part of the Fibromyalgia/ chronic fatigue aspect of it all. I'm a terrible sleeper so this could well be right I decided.

But recently I've been waking with what feels like an insect walking around my ear - making my bedding noisy on the side of my face. It's a rhythmic scratching noise. However I have so much facial weirdness with this disease that I've tried to ignore it as my face is increasingly numb and tingly all around my eyes and I've been getting dizzy a lot.

Anyway it proved too noisy to ignore so I put my hand on the affected area and realised the muscles are spasmimg all around the upper side of my face on both sides. In fact I used to have twitching toes but now my whole face seems to have become a mass of subtle twitches and spasms, even when I'm sleeping?

A Sjögren's specialist I saw 2 weeks ago said she felt that my problems with numbness and burning corresponded with trigeminal neuropathy as part of the disease. So would Hemifacial spasms be an extension of this perhaps? I looked it up earlier and got this term but can see no mention of Sjögren's - but it mentions MS. I will broach this with my neurologist in four weeks time but she tends to dismiss most of my symptoms as relating to the chronic fatigue. I'm keen to avoid being beaded over anxious/ neurotic!
Hashimoto's, seronegative RA, Primary Sjogren's, small fibre nld polyneuropathy, hypertension, IBS-C, GORD, BMS, highly allergic disposition!

Joe S.

Trigeminal nerve is part of the stomach meridian. For me I have found that a few cups of mint tea help to calm it when it starts to trigger. For me it is only the left side that triggers. It usually trigger with the change of seasons.
bkn C4 & C5, herniation's 7 n, 5 t, 4 l, Nerve Damage
Lisinopril, Amlodipine, Pantoprazole, Metformin, Furosemide, Glimepiride,
Centrum Silver, Cinnamon, Magnesium, Flaxseed, Inositol, D3, ALA, ALC, Aleve, cistanche
Reiki, reflexology, meditation, electro-herbalism

finallyadx

I agree with joe - I believe he had told me to try mint tea when I started experiencing trigeminal neuralgia and it worked for me! 
Primary ss dx 2013, plaquenil, vitamin d, iron supplements, vitamin b12, d-mannose for chronic UTI's, magnesium for heart palpatations and Zinc

MAT51

Thanks to you both - I do drink mint tea but never with particular purpose other than to revive myself when nauseous. So I'll drink it now with a new sense of purpose.
Hashimoto's, seronegative RA, Primary Sjogren's, small fibre nld polyneuropathy, hypertension, IBS-C, GORD, BMS, highly allergic disposition!