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Anyone using preservative free cyclosporin eye drops alone, no other drops?

Started by Lotus1, October 20, 2017, 09:07:31 PM

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Lotus1

Hi

Please, I'd like to hear from anyone using p.f. cyclosporin eye drops satisfactorily without any other eye drops especially or using them with other eye drops.

I got the hospital to send my script to the compounding pharmacy to make preservative free cyclosporin eye drops since you can't buy p.f. in Australia.

I put a drop in each eye this morning.  Instructions say 1 drop each eye twice a day.
Pharmacist informed me I may need to use my normal 'refresh' over the counter p.f. drops for a few days as well before being able to just use the p.f cyclosporin drops.

Look forward to hearing from you.

Lotus1


Navigator

Yes I am only using Restasis (preservative free cyclosporin) twice a day ( upon waking up and before bed)  and I do not normally need any other drops.   

Sometimes however, I do need OTC drops if I have been out in the sun for a long time (eyes dry out)...or if I have had wind in the face for awhile...like traveling on a boat or riding a bike into the wind.  To mitigate the wind drying out the eyes I do have wrap around sun glasses but nothing is perfect.  Too much time on the computer can also dry you out even with the drops so by end of day sometimes need a little boost.   But not often.   

Restasis/cyclosporin is not magic.
Hashimotos thyroiditis, Primary SJS, IBS, autoimmune hearing loss, leucopenia, arthritis,asthma.
Synthroid, Plaquenil, Crestor, Evoxac,Vit D , Fish Oil, Restasis, Daily Walking, Sleep, Baby aspirin, Probiotic, avoid gluten,dairy and sugar, hearing aide, gratitude, big dog

Jasper

I use Restasis (preservative free cyclosporin) twice a day, once when I awake in the morning and once before bedtime.

I need NO eye drops in between.
ANA 1:160; SS-A+; MSG +; Plaquenil, Rituxan infusions, Restasis, HRT, Curcumin, Calcium, CoQ10, NAC, Resveratrol, Whole Omega, Omega 3, R Lipoic Acid, Acetyl L Carnitine, Krill Oil, Mag. Threonate, Bio-Collagen UC II, NAD+, & Vit A, B, C, D, E, K 1 & 2.

Lotus1

Hi Navigator & Jasper

Thank you for replying.

So both of you work with computers all day?

Did it take long to get used to the eye drops?

I didn't get on well with them yesterday.

I added my normal Refresh eye drops 15 minutes after putting in the p.f. cyclosporin drops.

Maybe I'll try the cyclosporin alone today & see how I go.

Lotus1

vrystaat

I was using Restasis alone for 15 years. Recently, my SS has become much more severe, and my eyes became constantly painful.
My Ophthalmologist recommended Theratears, and I am now much better. I use it twice a day and at night.
Sjogrens;Polymyositis;Polyneuropathy;Gastritis;GERD, Autonomic Neuropathy, Neurological complications, Trigeminal Neuralgia,Gamma 3 globulin low;Multiple infections;Brain fog; Ocular problems - blepharitis, scleritiis, dry eye,severe eye pain. Possible Inclusion body Myositis.Currently Endstage

Jasper

"So both of you work with computers all day?"
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I am retired but I do spend a lot of time on my computer.



"Did it take long to get used to the eye drops?"
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No, but I started out using Lotemax (steroid eyedrops) 5 minutes before the Restasis drops. I did this for 3 weeks. This regimen was used in order to heal up my cornea, which were irritated. After 3 weeks I stopped the Lotemax and used just the Restasis drops.


Now, all I need are the Restasis drops twice a day (morning and night).


Sometimes the drops burn a little but that clears up after a few minutes.
ANA 1:160; SS-A+; MSG +; Plaquenil, Rituxan infusions, Restasis, HRT, Curcumin, Calcium, CoQ10, NAC, Resveratrol, Whole Omega, Omega 3, R Lipoic Acid, Acetyl L Carnitine, Krill Oil, Mag. Threonate, Bio-Collagen UC II, NAD+, & Vit A, B, C, D, E, K 1 & 2.