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Happy end in related pregnancy complications

Started by Emics, September 23, 2017, 10:21:23 AM

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Emics

Hello everyone. I am 41 and I found this site last year because I got my Sjogren`s diagnosis in a very sad way.
I had a dry eye from 2009 without diagnosis. I got pregnant last year, everything was OK but in 20th week an atrioventricular block was detected in the fetus with severe bradicardia, things went bad and I lost my beloved girl 4 weeks later. This is so cruel.
So I discovered that I had a positive Anti Ro (what is that provokes fibrosis in the fetal heart electric system) in that sad way.
I visited several doctors and although we were scared we tried again. It has been a very complex and high risk pregnancy, I have received Hydroxychloroquine, plasmaferesis every 2-3 weeks in the second trimester and high dose immunoglobulins. I was monitored with fetal echocardiogram every 2-3 weeks. It has been very stressing.

After these difficult months, I delivered a healthy girl. It is impossible to know due to the rarity of these condition if she is healthy because statistics favoured us, or because of the medical treatment.

In any case, we are happy.

Thank you so much because last year when I discovered my disease I felt I was not alone and I have learned so much.
Up to now, I don't have serious symptoms, but now I am prepared and warned for the future.



eye2dry



Very happy to hear that after your heartache....you now have a precious baby girl.

Hope all remains well well for you and your wee one.


Shelly
medications: synthroid- meloxicam- plaquenil- lots of supplements

***Lord help me to be the person my dog thinks I am***

katie3

Oh my goodness, so sorry for your loss........ so very happy about your miracle baby girl...
Big Hug ,
Katie

irish

What an amazing hi-tech story. I am so happy to hear that you had this baby. Take really good care of yourself now cause you have been through so much. Rest when you can and congratulations again to you and your husband. Irish

cccourt1942

Sjogren's, Psoriasis, Hashimoto's, Osteoporosis, Osteoarthritis, Cold hands/feet,  fatigue,  pilocarpine-25 mg , Restasis, Plaquenil, Low dose Prednisone (2-3 mg daily) Xylimelt, Citrucel, Alcon-Naturale, Tears,Omega 3, Vit.D, Caltrate+D3, Fosamax, CoQ10, Zinc, Oxtellar. Levothyroxene

Jenny

65 year old female with back, shoulder, neck and knee pain, dry mouth, losing teeth, dry sinuses,Blood test positive for Sjogrens. Fibromyalgia, Osteoarthritis .
Maloxicam, Lisinopril, Norco, misc.vitamins
4 discs in low back fused. Shoulder replaced 2015 & 2017 Need knee replaced.
4 hand surgeries

A Mom on Spin

So wonderful to know that your story is happy in the end. I know that the beautiful baby you lost will be with you always ❤️
www.mysjogrenslife.blogspot.com
https://www.amazon.com/author/lizwilkey
Primary SJS. RA & lupus. Positive ANA, SSA, anti-phospholipid Antibodies. Large and small fiber peripheral neuropathy

Scottietottie

http://sjogrensworld.org/   (our home page)
http://www.sjogrensworld.org/chats.htm   (find our chat times here!)
https://kiwiirc.com/client/irc.dal.net  (way to chat + nickname and #Sjogrensworld)


Never do tomorrow what you can put off till the day after tomorrow!

Cheryl

Emics,
Congratulations on having your precious new little daughter! 
Cheryl
Chat co-host on Thursdays at 8:00 Eastern time

susanep

I am sorry you lost your first baby girl, and I am so happy to hear you now have another baby girl. Praying for your good health and for your sweet baby girl.

susanep
Sjogren's, Lupus, Rheumatoid Arthritis, Hypothyroid, Fibro, Sleep Apnea, Diabetes 2, Asthma, and Gerd.  (Meds I take) Omeprazole, Pilocarpine, Levothyroxine, Effexor, Cpap, Aspirin, Mobic, Prilosec,, Xanax, Restasis, Systane,Vitamin D3, Plaquenil, Gabapentin, Provigil , Advair, Nasonex, and Proventi