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A Sjogrens dream?

Started by araminta, May 16, 2017, 08:33:41 AM

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araminta

I had a dream the other night that I looked into a mirror and saw I had a tennis ball sized hole in my head, and I thought, "good, now they'll have to take my symptoms seriously".    I'm sure this says a lot about how many of us on this site feel. ::)   
Dry eyes (MGD), nose, mouth, occasional labyrinthitis,  dry skin , mouth ulcers, constant but fluctuating fatigue, IBS.  Blood tests and Schirmers negative,no Sjogrens dx yet.   Omega 3 algal oil, multivitamins, Evolve eye drops, Xailin eye ointment,  moisturiser (Instituto Espanol 10% urea).

Sharon

It's very unfortunately true that often our symptoms must worsen
in order for us to finally receive the treatment we need!
Sjogren's (+ RA): positive ANA, RNP, RNP-A, APCA. Severe eye dryness + inflammation, multiple sensitivities and allergic reactions, fatigue. 
ORENCIA, Restasis, Anti-inflammatory diet, Vit. D & C, Ubiquinol 100mg, Omega 3....