How Often Do We Need Antibody Tests?

[eye2dry]

I never got a copy of my labs or CT from my hospital stay to see
what all they did run.

I have trouble with unusual bleeding episodes. Moderate amounts of
blood coming from ureathra led to CT and cystoscopy.......no
definitive answer given w/vague diagnosis possibilities.

Spontaneous flowing nose bleeds...that I staunch by myself.
When my dad got these nose bleeds, we had to go to ER
for cauterization.

No unusual bleeding/pain episodes since discharge of 2016.

shelly

[warmwaters]

Once you've tested positive, there's no clinical need to retest. Obviously, you might be tested for additional issues.

The values can change, but you still have the disease.

[meow]

Thank you for all of your help. I'm definitely going to bring it up.

Aside from the hip pain, I am bruising way too easily. Plaquenil and I think even methotrexate both aggravate that, and I do limit NSAIDS to times when there is absolutely nothing else to take. I did take OTC naproxen for 2 days last week for the hip... and woke up Saturday morning with a black eye.

Online resources about unexplained black eyes run the gamut from "you slept wrong" to "you have sinus cancer." I am assuming it was the naproxen, but having to explain it at work was not fun.

Arthritis strength tylenol doesn't do enough. I've had an Rx for tramadol for years, but I rarely take it. I have bottles of it!  It keeps me awake, and doesn't do any better than tylenol with the hip pain. Exercise has interesting results-- it hurts when I do it, doesn't hurt right after, but then about an hour later it hurts a lot. This is every kind, including walking, no-impact calisthenics and yoga. Yoga!

[irish]

I forget if I mentioned this earlier, but once you have the positive Sjogrens blood work you can have it convert to negative. This has happened to me and it has been several years since my immunologist checked them. He told me it doesn't matter what they are now since they were positive when I was diagnosed plus I have high ANA and positive lip biopsy. The blood work issues is pretty much the same for all the autoimmune diseases as our bloodwork tends to convert back and forth. Blood work is so interesting. I have never had an above normal sed rate and this is one thing the doctors place so much importance in cause it is a sure fire indication of inflammation or infection.

Linda, yes, those were the blood work that I was thinking of. Thanks. You can always come up with anything I need to know. Irish