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Suggestions for dry mouth

Started by Maria3667, June 02, 2016, 02:58:06 PM

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Maria3667

Okay so I don't know what this is all about, but I seem to be flaring. Dry mouth - especially painful dry tongue - is terrible at the moment.

I already take pilocarpine, low dose testosterone, dhea, several fatty acids - and even 50mg ubiquinol as of this week. Anyone have an emergency solution??
54. DES-daughter ('67), Lyme's ('98), GAD ('98), Sjogren's ('02) - changed to Sicca ('20), hypothyroid ('04), endometriosis ('14), osteoarthritis ('16), blepharitis & MGD ('18), Pilocarpine, thyroid meds, 12.5mg quetiapine. Allergies: sodium hydroxide, nickle, methylisothiazolinone, latex

Joe S.

Sip, swish and swallow...water.
bkn C4 & C5, herniation's 7 n, 5 t, 4 l, Nerve Damage
Lisinopril, Amlodipine, Pantoprazole, Metformin, Furosemide, Glimepiride,
Centrum Silver, Cinnamon, Magnesium, Flaxseed, Inositol, D3, ALA, ALC, Aleve, cistanche
Reiki, reflexology, meditation, electro-herbalism

Sharon

Sorry to hear you're flaring Maria.   :-\
50mg Ubiquinol is not enough to make a difference.
Trials done on its effectiveness for saliva production used 100mg.
I took 200mg until it kicked in at around 45 days then lowered to 100mg
but still raise back to 200mg when I'm flaring.
It's not the immediate solution you're searching for
but it's a long-term one if you keep it up.
Sjogren's (+ RA): positive ANA, RNP, RNP-A, APCA. Severe eye dryness + inflammation, multiple sensitivities and allergic reactions, fatigue. 
ORENCIA, Restasis, Anti-inflammatory diet, Vit. D & C, Ubiquinol 100mg, Omega 3....

SunshineDaydream

Not an emergency solution because it requires a prescription, but Evoxac might work for you.

In the meantime, you can get dry mouth spray, dry mouth mouthwash and dry mouth lozenges from the dental section of a drugstore. Chewing gum also helps produce saliva - sugarless is best, of course.

This thread contains other dry mouth remedies: https://sjogrensworld.org/index.php?topic=10139.0
Sjogren's, lupus, OAB and osteopenia
Rx: Evoxac and Myrbetriq
Vitamins and Supplements: A, B complex, C, D3, E, calcium orotate, magnesium glycinate, D-Mannose, curcumin, fish oil, probiotic

Wal

I use xylimelts. They work wonders! They work great at night for sleeping. Rite aid sells them or you can get them on Amazon.

Maria3667

Sorry for my late reply, internet was down.

@Joe S.: sipping, swishing, swallowing  ::)
@Sharon: due to my hypersensitivity I always start low. After 10 days I already feel a slight improvement. Nice side effect: ubiquinol also provides interesting dreams & sounder sleep?
@Sunshine: Evoxac is not available in my country. Dry mouth sprays, wash, lozenges only provide temporary relief. Constantly chewing gum produces some saliva, but not enough to cure.
@Wall: I already have Xylimelts, I don't really notice a difference.

However, I did discover that running out of Evening Primrose Oil seemed to make me flare??? Never knew the impact would be so profound! A cold virus probably started off the flare... Now doing a little better, though tongue is still sore.

Thanks for bearing with me!!  :) :) :)
54. DES-daughter ('67), Lyme's ('98), GAD ('98), Sjogren's ('02) - changed to Sicca ('20), hypothyroid ('04), endometriosis ('14), osteoarthritis ('16), blepharitis & MGD ('18), Pilocarpine, thyroid meds, 12.5mg quetiapine. Allergies: sodium hydroxide, nickle, methylisothiazolinone, latex

zsowhat

I have sjogrens and with it the horrible dry mouth. Nothing would alleviate the dryness especially overnight.
Recently I decided to start drinking green tea not for my sjogrens but for the other benefits I read that green tea helps.
In less than two weeks all my mouth dryness VANISHED!! I am amazed truly amazed I actually cant believe it.
I have moisture in my mouth  and in my nasal passages I haven't had a runny nose in years but I do now.
I drink two cups a day and I will never stop
PROVE it for your self It helped me

Vaxgal

I have used Xylimelts, ACT lozenges, Biotene mouth spray and gel. I have dry mouth, really bad at times, so depending on the situation, and where I am when I'm experiencing the worsening of the dry mouth, will decide what I use to alleviate what is going on. I also drink plenty of water too. Nothing takes it away, but does make it easier. I hope you find some relief soon.
Primary SS, ANA+, SSA+, Graves', dry eyes, OA, DDD, Chronic Pain, OSA, TKR, hx Perforated Ulcer, Migraines, Chronic Sinusitis, Dental issues, Gastric Bypass, Insomnia, Muscle Spasms, Spondylosis; Synthroid, Percocet, Restasis, Nucynta, Baclofen, Soma, Zofran, Vitamins, Supplements, Tumeric, Biotene

Maria3667

@zsowhat: I've been drinking green tea for more than a decade. There's some relief, but not enough.
@Vaxgal: tried all of them too, they provide some relief but not enough. Thanks for your support, I really need it at this time...

The best improvement so far is from pilocarpine, evening primrose oil, low dose dhea & testosterone. But during a flare all seems to no avail...
54. DES-daughter ('67), Lyme's ('98), GAD ('98), Sjogren's ('02) - changed to Sicca ('20), hypothyroid ('04), endometriosis ('14), osteoarthritis ('16), blepharitis & MGD ('18), Pilocarpine, thyroid meds, 12.5mg quetiapine. Allergies: sodium hydroxide, nickle, methylisothiazolinone, latex

Nomad

Ubiquinol 200 mgs, daily
Drink water all day long
Lemon cough drops....sugar free preferred
Chew gum for five minutes and discard. Do this a few times a day.
Biotene toothpaste.
Once in awhile I have to use Bioteen mouthwash.....just a quick swish.

If I do all this...I usually do well.

SLE, Sj.  Syndrome, IC, Atypical Trigeminal Neuralgia, ITP (low platelets)... Various meds and lots of vitamins. Trying to eat healthy; seems to help a little.

Wal

I need to start discarding my gum after 5min of chewing too bc any longer dries me out more. I wonder why.?

zsowhat

my dry mouth has been relieved.
no more waking up with a desert in my mouth.
The only thing I can attribute this to is
the green tea. Nothing worked before
or anything was just a temporary relief.
I have moisture in my mouth when before
it was constantly dry and painful.
My lips were constantly chapped and bleeding
I would have to highly recommend the green tea.

Liz D.

Zsowhat, how do you drink your green tea.  Do you drink it straight, or with honey, or milk.?  I personally don't like the taste of green tea, but if it helps dry mouth maybe I'll try it again.  I just need to know how to make it more palatable .

Liz D.
60 year old female
Sjogrens Syndrome (diagnosed 2004), Hypothryoidism, Asthma, Osteoporosis
Meds:  Plaquenil 200 mg; Levoxyl 100mcg; Evoxac, Symbicort, Flonase, Protonix 40 mg.,  Prozac 40 mg. Naproxen 500 mg., vitamins, calcium, flaxseed/cod liver oil, L- lysine, iron

Vaxgal

Hi Maria3667! I just wanted to see how you were doing with the flare. Hoping it is better, or you found something to help. I was just thinking that, depending on if you could do it, if ice would work. You know having some ice to maybe move from side to side or chew on a little. I know ice is not good for our teeth, when chewed, but I thought that it might help. I'm really hoping you are doing much better!
Primary SS, ANA+, SSA+, Graves', dry eyes, OA, DDD, Chronic Pain, OSA, TKR, hx Perforated Ulcer, Migraines, Chronic Sinusitis, Dental issues, Gastric Bypass, Insomnia, Muscle Spasms, Spondylosis; Synthroid, Percocet, Restasis, Nucynta, Baclofen, Soma, Zofran, Vitamins, Supplements, Tumeric, Biotene

Catlover

I have no saliva.  It is horrible.  I have been talking to this dentist.  He is really trying to help us.  The article below describes his device.  Praying for relief.

http://www.chesterfieldobserver.com/news/2016-06-08/News/Dry_Run.html