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Heads up for those in the US on domperidone

Started by rnathans, June 02, 2015, 07:43:21 PM

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anita

You know, with all this talk, I'm seriously thinking of ordering ANOTHER 1200 tablets...just to keep on hand.  I don't know what the shelf life is, but they do come in blister packs, so that should help extend their shelf life, I would think.

I (like many) cannot take Reglan.  I get the very black box warning of movement disorders from it (that is plastered all over the TV for lawyers to sue on your behalf).  And these movement disorders can end up being permanent.

The only thing I know for SURE, is that I CANNOT be comfortable or eat well without my Domperidone.  So I will go to any lengths to get it.
52 yr old SjS, APS w/strokes, Autonomic Neuropathy, PN, Nephrogenic DI, (CVID) IgG def., Cushing's, Asthma, Gastroparesis.  Sero-neg w/+ lip biopsy.  Meds: IVIG & pre-meds, Arixtra, Aspirin, Plaquenil, Cardizem, Toprol XL, Domperidone, Nexium, Midodrine, Symbicort, Fentanyl, Percocet, Zofran

ohiolady

I will go to Canada if needed and be seen by one of their doctors to get a script. I'm trying not to panic yet but I cannot eat without Domperidone.  I struggle with gastroparesis enough while taking it. 

Anita, on Monday I will get in touch with your pharmacy.  Good idea.

Anna
SJS  Hashimoto's   Mild Raynauds  GERD  Gastroparesis
Restasis, Evoxac, Dexilant,  Domperidone, Zofran and Synthroid. Fish Oil, Vit D and B12  R lipoic acid,  Acetyl L Cartnine, Vitamin B1, and The Perfect Food Green and Fruit supplement

Kidney Cancer Survivor   
Female   Age: 62

anita

Anna,

Were you able to reach InHouse pharmacy?  Are they going to be able to fill your prescription?  I also think you wouldn't need an Rx after the initial order (with the Rx you have).  Hopefully, they confirmed this.

This whole thing is making me nervous, so I ordered another 1800...so I now will have a year supply.  My first order arrived yesterday.  I placed another order because last time (4-5 months ago), then had run out of Domperidone and I had to wait for more to become available.  It wasn't a long time and they filled it as soon as it come in (which was exactly when they said it would be), but I am concerned that they may run out again if there is a higher demand (with other companies not being able to fill orders due to Rx restrictions).  Just like you, I cannot go without my Domperidone.

rnathans

Are you going back to InHouse pharmacy? 
52 yr old SjS, APS w/strokes, Autonomic Neuropathy, PN, Nephrogenic DI, (CVID) IgG def., Cushing's, Asthma, Gastroparesis.  Sero-neg w/+ lip biopsy.  Meds: IVIG & pre-meds, Arixtra, Aspirin, Plaquenil, Cardizem, Toprol XL, Domperidone, Nexium, Midodrine, Symbicort, Fentanyl, Percocet, Zofran

ohiolady

Anita,

Hopefully calling today.  We stopped at my daughter's house on way to Ohio and I haven't had a minute.  I will keep you posted.

Anna
SJS  Hashimoto's   Mild Raynauds  GERD  Gastroparesis
Restasis, Evoxac, Dexilant,  Domperidone, Zofran and Synthroid. Fish Oil, Vit D and B12  R lipoic acid,  Acetyl L Cartnine, Vitamin B1, and The Perfect Food Green and Fruit supplement

Kidney Cancer Survivor   
Female   Age: 62

rnathans

I ordered mine on Monday and it shipped Tuesday. How long does it usually take to arrive?

anita

I got mine this last time in exactly 10 days from shipping date...and they shipped it the day after I ordered it.  You should have yours by the middle-end of next week.
52 yr old SjS, APS w/strokes, Autonomic Neuropathy, PN, Nephrogenic DI, (CVID) IgG def., Cushing's, Asthma, Gastroparesis.  Sero-neg w/+ lip biopsy.  Meds: IVIG & pre-meds, Arixtra, Aspirin, Plaquenil, Cardizem, Toprol XL, Domperidone, Nexium, Midodrine, Symbicort, Fentanyl, Percocet, Zofran

ohiolady

Ladies,

I placed my order with  the pharmacy just now.  I emailed my script to them and it should not be a problem to order in future.  This is what I was told.  Thanks for all the information!

Anna
SJS  Hashimoto's   Mild Raynauds  GERD  Gastroparesis
Restasis, Evoxac, Dexilant,  Domperidone, Zofran and Synthroid. Fish Oil, Vit D and B12  R lipoic acid,  Acetyl L Cartnine, Vitamin B1, and The Perfect Food Green and Fruit supplement

Kidney Cancer Survivor   
Female   Age: 62

rnathans


rnathans

I am happy to report that my domperidone arrived today. They would have delivered it Tuesdy but no one was home then or yesterday to sign for it. Now let us hope it works. My husband reminded me that years ago it did not work in the tablet form, yet I got good results this year for the months I could get it compounded. Hoping my case is just not as severe this time.

anita

Great news!  Hopefully it will work well for you.

I just received my second order yesterday.

Anna, did you get yours yet?
52 yr old SjS, APS w/strokes, Autonomic Neuropathy, PN, Nephrogenic DI, (CVID) IgG def., Cushing's, Asthma, Gastroparesis.  Sero-neg w/+ lip biopsy.  Meds: IVIG & pre-meds, Arixtra, Aspirin, Plaquenil, Cardizem, Toprol XL, Domperidone, Nexium, Midodrine, Symbicort, Fentanyl, Percocet, Zofran

ohiolady

Not yet Anita.  I am getting mine standard shipping because we are on vacation.  We return home in ten days.  I will let you know.  I am assuming it will work as well as the Canadian.

Anna
SJS  Hashimoto's   Mild Raynauds  GERD  Gastroparesis
Restasis, Evoxac, Dexilant,  Domperidone, Zofran and Synthroid. Fish Oil, Vit D and B12  R lipoic acid,  Acetyl L Cartnine, Vitamin B1, and The Perfect Food Green and Fruit supplement

Kidney Cancer Survivor   
Female   Age: 62