Carrear

[Emanuela]

One of the things that makes me really sad about Sjogren is that it is destroing my dreams and hopes on a good carrear. I'm reallizing just now that I cant manage a more challenge position in this conditions. I m always tired and always with some trouble in my eyes....problems have get worse in the last two months.
Every day I wake up and cry (I still have some drops) I cant see my eyes always red....I look at the mirror every 5 min....I cant stay in front of computer all the day....my daughter is only 2,5 y and is really hard to take care of her when the only thing I want is close my eyes and lie down in my bed. I'm stoping dreaming and only see a black future for me and my family.

How about you? How do you manage yuor job? Children?family?
Emanuela

[A66eyroad]

I'm sorry this has happened to you.

Everybody is different, and some people have a harder time than others. I'm sorry you're having a hard time!

I've had a great career in the financial field, starting as a receptionist in a bank, then a teller, then on "the platform" (opening accounts and loans), and then studying for and passing the Series 7 (securities rep) exam and the Series 9/10 (supervisory) exam. I now have a great job as the assistant to two busy financial advisors.

Probably ignorance is bliss, in my case. I wasn't diagnosed until about 5 or 6 years ago, although I've had symptoms and had been sick for, easily, 30 years. I remember thinking that somebody could put all my symptoms together and find something wrong, back in 1985!

But because I didn't know there was anything wrong with me, I pushed and pushed. When I finally hit the wall, I was bedbound for more than a week. Then I was diagnosed and started taking Plaquenil, which was a miracle drug for me. It took 6 months for me to start feeling better, and a year to get the full effect.

Now I'm not disease-free by any stretch of the imagination, but I have many more good days than bad. I work hard during the week, with an hour commute each way, and I spend my weekends doing NOTHING most of the time. But I have a great job and great friends and have a pretty full life.

What are you doing to help you cope? Has your doctor prescribed Plaquenil?

[Mexgal]

I am so sorry to hear what you are going through.  Especially with the little one.  I understand how are this can be.  I can honestly say that I am happy I am retired.  But when I have a flare I get so desperately ill with the worst flu like symptoms.  I can't move from the couch/bed.  I have educated my family and friends and they know when I am out of commission that it is what it is.

With that being said I too vote to ask your doctor about Plaquinil.  I believe that has helped be for the times between my flares.
Best of everything to you
Sallie